I started Forteo August 2007, my diagnosis after a bone biopsy showed it is the only drug that will work for my condition. In November I really had severe bone pain - the shooting kind I hear some of you describe. It was becoming almost constant and not tolerable even with pain medication. On December 6, upon visiting my doctor, we decided to take a "holiday" from the drug, especially with the holidays coming up. I think it took about 4 weeks before I noticed , hey, I'm not having that shooting pain. I then resumed using it Feb. 1, 2008. Instead of injecting between 7-9 pm as my doctor had suggested, have been injecting early afternoon, thinking maybe if I walk and move around rather than closer to bedtime it would be better. So here it is June 7 and I have not had the severe pain of the first round - have had a little. I am fortunate to have a prescription for ty.#3 and tramadol for back pain, so maybe would be in some worse pain if not for that. However I cannot stress how severe it was last fall and the description of the deep shooting pain is accurate.
The reason I found your site is because I googled "bone pain and fever" - I have been running a low grade fever for a couple months and investigating other causes - but this is interesting that some of you have the fever. I really want to stick out the treatment as long as possible, I am 53 and have had fractures, so need to do it. Especially since the other options won't work.
There is evidence in the research on Forteo that intermitent use can still be beneficial, either one month on, one off or 3 on 3 off.
I would love to correspond with anyone on these matters, thank you
Published On: June 08, 2008