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Thursday, June 05, 2008 Joyce asks

Q: Have only taken Forteo injections,developed severe cramping L arm,hip and thigh. esp.@nite.

 Also constipation. Took shot the same time each day and rotated the sites. Called my dr. and he said to stopped Forteo.I am feeling so much better and can now move about better. It has been one week since I stopped. Afraif to call my doctor as I am afraid he will tell me to start again. What do I do? Took Actonel for 6 years and my oste got WORSE.

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7/15/08 5:06pm

I have experienced those severe shooting pains/cramping in arms, hips, shins, and thighs, ---especially at night. Much too uncomfortable to get any sleep at least a night a week.

 

One thing the nurse told us at the training session was to make certain not to "time" a dosage of calcium too close (I use a four hour margin) to the "time" of your injection.  That helped me tremendously!!!!!!   Wink  I called the Forteo hotline today because I still have pain/cramping off and on for no apparent reason.  They did not even know about the "tip" I shared above, much less have any new ideas on how to avoid the side effects.  I have found no pain medications helpful except for the kind that "knock you out."  Forget Aspirin, Tylenol, Advil, etc.  No good.

 

Please, someone . . . if you know of any other "hints"--let's please pass them along.  We need to use this drug and want to find a way to endure it.

 

 

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8/30/09 12:21pm

 

I began taking Forteo July 15, 2009. After four weeks I began having severe cramping pains in my right thigh, so much that it was difficult to walk.  I continued the Forteo for two more weeks and the pain continued in the thigh and traveled down the calf. The doctor who prescribed the Forteo and my primary care doctor do not believe that the Forteo is causing the pain. A calciuim level test showed normal levels. An injection of steroids into my hip has not relieved the pain.  It has only been five days since I stopped the Forteo but I wonder if this pain will ever lessen.  

I know I need to take Forteo as I have had five spontaneous compression fractures of the spine in the past three years but at present I am unable to do anything.

Any responses  will be very much appreciated....

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