I saw an endocrinologist for two years with chief complaint of elevated PHL and vitamin D deficiency. I also had progressive osteoporosis. For two years I was placed on a high dose of Vitamin D with bloodwork done about every 3-4 months to check my PHL which always was high. This doctor told me no need to worry too much about taking Calcium because my body was unable to absorb it due to my high PHL. They did scans on my parathyroid to check for anything abnormal. They could find nothing on the scan. He then suggested that I have "exploratory" surgery on my parathyroid glands to see if they could locate the malfunctioning parathyroid gland's'. My doctor left this clinic, and I saw another doctor within the same group. The new doctor told me that I did not have osteoporosis, and for me just to stay on the Vitamin D. This doctor also told me that my PHL was now normal! Normal? It had been abnormal 4 months prior. I questioned him about this and he seemed to be very ill at ease and nervous. I then decided that I would find another doctor. I saw this doctor last week. His advice to me is to remain on a high dosage of VitaminD, along with 1200 mg. of Calcium per day. He also wants me to start on Forteo, even though my PHL is still elevated. He acted as though this was of no great significance. So, I am completely confused about what treatment would be best for me. In the meantime, my condition continues to deteriorate, and I am in excruciating pain 24/7. I also have scoliosis and fibromyalgia.






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