Friday, June 01, 2012
My Six Sons
  • My Six Sons
    is 50, mother of 6 boys, and schnauzer lover. From London, Ontario area
  • Location: St Marys, Ontario, Canada
  • Gender: Female
  • Birthday: April 17, 1959
  • Bio: Why can't the doctors figure it out? Or do they even try?
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HEALTH INTERESTS:

MS,  Epilepsy,  Osteophorosis,  Pain Management,  Sleep Apnea and Narcolepsy

DRUGS I AM TAKING:

Lamotrigine,  Hydromorphine,  Lyrica,  Celebrex,  Levothyroxine,  Cipralex,  Prozac, 

ABOUT ME:

What can I say - I have been to hell and back over the past 4+ years and still do not have a diagnosis. Is it MS, or Epilepsy, or Fibromyalgia, or Vasculitis, or, or, or,. Is it none of the above, all of the above, or a combination of the above. I have been to so many doctors, that I feel like I have a doctor for each body part, and, none of them care what the other one is or is not doing. I don't honestly know if I have M or not. According to the neurologists, my symptoms would lead them that way but there are so many atypical symptoms, they keep looking for other explanations. My symptoms have not been textbook. Some are in line with what they would expect, and some have nothing to do with MS, that they know of. Problem is I am getting sicker and sicker, I can feel it by the day, but no one has put a label to it so, any treatment that I am currently receiving is for individual symptoms only. For the purposes of "about me", I will list my symptoms. They started four and a half years ago, and new symptoms continue to appear. The severity varies, which symptoms are active varies, and the number of concurrent symptoms change. I would be happy to talk about any of the individual symptoms to either provide info, or to try to find someone with any similar problems. Ok, here goes - Atonic temporal lobe seizures with loss of consciousness (started when I was 45) - Debilitating headaches - Short term memory problems, at times with no recall even when reminded. - Anxiety and panic attacks - Depression - Skin rashes - Various injuries that resulted from falls during seizures, including concussions, broken bones, and 3 herniated discs (C4/5, C5/6, C6/7 inoperable) - Pain, bad pain - muscle, joints - Tremors and ticks in my face, arms, and constantly have the hiccups - Tingling and loss of feeling in fingers, and reduced feeling in extremities and face - I drop everything, trip over nothing, and have very little grip strength. - Severe sleep apnea - very severe - Residual latency daytime sleepiness (exactly like narcolepsy except I have an overpowering feeling that I have to sleep and I have to sleep now!) - Extreme dry mouth - Vision problems, it is like a child with a lazy eye except it is both eyes and both interior and exterior muscles making them cross one way in the distance, and the opposite up close. At times my vision goes 'digital' - Extreme dry eyes - Eye hemorrhages - bilateral - Very little sensation of when I have to urinate. A few episodes of loss of control - Difficulty swallowing, I have to think about it - Feelings of "a slimy fuzzy tennis ball" in my throat that actually makes me gag and vomit at times (nothing is there though) - 3 spontaneous stress fractured vertebrae at T5, 6, and 8 - Low bone density - Hypothyroidism I am likely missing a few, but you get the idea. The strangest part is that it is so random. For a couple of days my hip will be so sore I have to struggle to walk, then I will wake up and my hip feels better, but I can't raise my arm because my shoulder hurts so much. Then tomorrow a different problem, then back again. The randomness is what causes me to feel like I must be insane. Kind of a 'what's wrong now' feeling. I feel that some, well most of the doctors do not take me seriously, even though they can physically see me gagging on nothing, or can see the blood in my eyes. Most, at one time or another have commented that they see by my chart I have struggled with depression, and am I sure it isn't just that. In other words - are you sure this isn't just all in your head. I could go on and on. I desperately need answers!

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Living With It in Multiple Sclerosis

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