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jeansaladyis interested in people with same problems.
- Location: Port Saint Lucie, FL, United States
- Gender: Female
- Bio: Married 49 yrs. with three children, six grandchildren
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HEALTH INTERESTS:
Fibromyalgia, Low back pain, hip and neck pain, osteoarthritisDRUGS I AM TAKING:
Cymbalta, crestor, zanax, ultracet and darvocet.ABOUT ME:
I was brought up in MA, we moved to FL 6 yrs ago. Other than my children and grand children, I really miss my Maine lobsters, shrimps and Alaskan king crab. I certainly don't miss the winters. When I was younger, I always enjoyed doing crafts,and knitting. I have a dollhouse that I still try to work on. many other things I had to quit. I like listening to quiet music when I'm alone. I like Alan Jackson, Josh Groban and a few others. There are a few TV programs that I enjoy. I like a good movie, but they are few and far between these days. The Notebook was good, also Phantom of the Opera and I enjoyed the Bucket List. Once in a while I like going out to eat at the Outback. I play cards on the computer, and like to visit the internet to see what is happening. I have a long haired black cat who follows me around all the time. He's a good cat, his name is Scooter but wherever I stand, he's has to lay on my feet and that can be dangerous, but I love him. My grand daughter lives with us and whenever we leave, he sits near the window on the porch and cries till he sees us again. My granddaughter goes to college here and is pretty much my best friend also. She's been with us since she was small. My husband has his own health problems, kidney CA, diabetes, but he keeps busy and usually finds some little project to do. I have no idea where he gets the energy, since I don't have any at all. We live in a 55 & over community and we like it very much. Neither one of us can walk much, so we've not gone on vacation for a long time. It would be nice, but we've had some nice vacations in the past. There's nothing much else to say. We're satisfied with what we have. I started with degenerative c-spine problems after a car accident. I was about 36 at the time and some time later, I was diagnosed with fibromyalgia. As a child, I had several knee operations in Boston, and of course I developed arthritis. I am now 67 and the osteoarthritis goes from my c-spine, shoulders, wrists, hands ( which are so deformed, I'd like hide them). Recently, my hips have been causing problems and walking is becoming such an effort because the pain is sometimes unbearable, going down from my hips to my knees and feet. Last month my orthopedic doctor said I had a arthritic back and with the FM, there was not much they could do for me. He wants me to see a rheumatologist. All that would mean is more pills, and I don't want that. I also found out I had osteoporosis, which I guess is natural for my age. Five yrs ago, we moved from MA to FL because I couldn't stand the cold. And now in FL, we keep our AC at 79 because most times I still get cold. I've been to many doctors, and have tried just about every drug imaginable. Finally, just gave up, and all I take is cymbalta for depression and supposedly, it's also helps with the pain. Although, I can't imagine it getting any worst. It just seems, that within the last year everything has gotten so much more painful and the arthritis has progressed so much faster. I just have no idea why. If anyone knows, I love to hear from you also. Before going on disability at 55 I did typing for the doctors and walked a lot because my job was working at a hospital. That was when I finally got diagnosed 1985. 6 yrs ago, I developed a sleep and dream disorder. Seems I start dreaming and can not get out of the dream. Something in my brain, apparently is not doing it's job. The first time it happened, I woke up but couldn't open my eyes or my mouth. I was just paralyzed. I could hear what was going on around me but I just could not tell my husband that I was awake. That was one of the scarious things. Once they checked on me, everyone thought I had had a stroke. Twice I was admitted into the hospital only to be told that I was paralyzed and they wanted me to go to a sleep clinic. After the second time in the hospital, I would just decided stay home and wait it out. Sometimes I would be able to get up by noon or a little later. Sometimes it would just be a few hours. My MA doctor has always believed it was stress. A way of detaching myself, sort of getting from it all) but my psychiatrist in FL could not tell me what the cause was except that the brain was just not getting me out of that dream period. Besides, that I was not getting any of the body healing sleep. At the sleep clinic, I found out I had a moderate sleep apnea. but since I didn't get paralyzed at that time, they had no idea what caused me to be paralyzed. This varies sometimes sometimes happening once every two month, or it can happen 4 and 5 times in a week. So talk about being strange. Sometimes I would wake up with my body being in a catatonic state being so rigid, that no one could move me. other times just paralyzed and you could pick up my arms, but they would just fall again. There are many scenarios to this situation. Sometimes I just stay in bed where I'm comfortable, because I know that as soon as I get up and start moving, it's downhill from there. Just looking at me also, you'd never know I had pain unless I try getting out of a chair, or walking. Just thought I'd I'd try to find anyone with this problem and just get this off my chest. I keep wondering when the Golden Years will be here???? All I do is pray to God that I be able to take this pain, since I'm not at all ready to go yet...... Thanks for reading this.PHOTOS:
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ROLES:
Living With It in Chronic Pain
RECENT ACTIVITY Notify me when there are new posts
jeansalady commented on Golden years?????
09/16/08
jeansalady answered After I close how do I get back in?
09/14/08
jeansalady answered I have constant chronic pain, is there anything out there to help me
09/14/08
jeansalady answered I have constant chronic pain, is there anything out there to help me
09/14/08
jeansalady answered Burning foot pain, body pain, and no diagnosis
09/14/08
jeansalady answered I have constant chronic pain, is there anything out there to help me
09/14/08
jeansalady commented on aches and fatigue
09/13/08
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