Friday, June 01, 2012
Lyddy
  • Lyddy
  • Location: Rolling Hills, WY, United States
  • Gender: Female
  • Birthday: January 12, 1956
  • Bio: 53 year old Wife and Mother with Secondary Progressive MS
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HEALTH INTERESTS:

multiple sclerosis,  multiple sclerosis causes,  multiple sclerosis risk factors, therapies

DRUGS I AM TAKING:

Copaxone and using AFO brace and Electronic Neuromuscle Stimpulator

ABOUT ME:

I am a 53 year old wife and mother of 6. Three of my kids are still home, and 1 is here 2 nights a week. He now lives in a Spl. Hab. Home. Two of our kids are adopted. I have two adult children and 4 grandkids. We deal with several disabilities in our family, but so far no MS, except for me.I was orginally diagnosed and treated for Lupus for over 5 years. Then over time my symptoms started seeming more like MS, so I went to see a neurologist in 2006, who ran a whole battery of tests and found no connective tissue disease such as Lupus. I guess I wanted to believe the doctor who diagnosed the Lupus and wasn't ready to it that maybe I had been misdiagnosed. So I continued on until 2008. My symptoms had worsened and yet the doctor who diagnosed Lupus insisted that it was Lupus. In 2008. I had really painful knees and feet and couldn't hardly walk. Come to find out I need a complete knee replacement on the left. Yet, all along the Lupus doctor just told me I needed to walk more, even when I explained how hard it was and how badly it hurt. I had that knee replaced in Sept.08. I went back to the neurologist and my general doctor. I was having electrical stuff going on all over my body. My right side's weaken had become more significent. I have drop foot and my right hand is weak and is losing grip.I have difficulty writing too. My general doctor retested for Lupus. Still none, so I decided to pursue MS and stop seeing the Lupus doctor. I finally started treatment for the MS in Feb. 2009. I think I was Relapsing remitting for many years. I remember symptoms back when I was in my 20s, so I have had it for a long time. I have a sister who has MS and had an uncle who did. Now my MS is more progressive, and I am not completely recovering any more from exasperations, but am finally on Copaxone and it seems to be helping some. I wear and AFO brace on my right foot and use a Electronic Neuromuscle Stimular twice a day to try to improve my strength. I also walk with a cane.

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ROLES:

Living With It in Multiple Sclerosis

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