Thursday, May 31, 2012

Ellen Smith's Posts

Poetry entry living with Ehlers Danlos Syndrome

Suspended in Liquid 11/1/06 I twist, it snapsI bend, it popsI sit, it shiftsI walk, it rotatesI lay in bed and don't dare roll overI am suspended in liquid Your body has strong ligaments, tendons and musclesMy body is held together with muscles onlyYour bone structure is strong and secureMine is suspended in liquid I haven't... Read moreChevron

poetry entry with Ehlers Danlos Syndrome

 Suspended in Liquid 11/1/06 I twist, it snapsI bend, it popsI sit, it shiftsI walk, it rotatesI lay in bed and don't dare roll overI am suspended in liquid Your body has strong ligaments, tendons and musclesMy body is held together with muscles onlyYour bone structure is strong and secureMine is suspended in liquid I... Read moreChevron

10th entry: Where Is That Hand?

Where is that Hand? 7/18/07 I keep lookingI can see it in my mindI feel its existence in my heartBut it must be waiting for the right time The time for me is nowPlease reach out to meGive me your handGuide me into safetyTake me away from my painErase my frightened feelingsI need that comfort and welcome your help Where is that hand?

Entry 9: Playing Pretend

Playing Pretend 7/18/07 When I am around youI am good at playing pretendLiving with EDS has taught me thatAfter so many years of not being diagnosed and understoodThere was no choice but to put up my armor  I try not to tell you that I am scaredI try not to share the level of pain I have gainedI try not to explain how rapidly I feel this... Read moreChevron

8th entry: Remember

Remember 5/1/07 Remember whenYou could physically move betterYou could intellectually achieve moreYou could plan and dreamYou could keep up with others But remember nowAlthough life is not the same,and has turned in a new direction,Life is still with youDon't let the losses overshadow what you have Live in the present!