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Essence of One
- Location: Casselberry, FL, United States
- Gender: Female
- Birthday:
- Bio: Migraineur-Musician-Artist-Writer
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HEALTH INTERESTS:
Migraine with AuraDRUGS I AM TAKING:
none at presentABOUT ME:
I'm 36 and I was diagnoed with chronic migraines around 2000 but suffered them through my early 20's due to misdiagnosis. As a musician/singer, artist, writer, and video gamer, the very things I love to do have become harder and harder as my symptoms seem to progress. Recently I have been undergoing a change in my triggers, which I did not know could happen. I have lost over 20 pounds in 2010 because I have so many food triggers that I become paranoid to eat.. Now the lights in my apartment (FLOURESCENTS) appear to be in a constant state of flickering, even when they are brand new. I can smell the scented candles throughout the day and night that my neighbors burn which have also become triggers. For so long I have felt like I am just a light weight when it comes to pain, always having to explain to people why I get sick so frequently, why I have to cancel dinner reservations and family gatherings. My loved ones and my friends feel like I am pulling away from them because of my inability to get together on a regular basis. Explaining to someone who has only had bad headaches that a migraine attack is NOT a headache, there is so much more to it than that and they think I am overstating, lying, being paranoid. I am no longer under doctor care because my doctor did not know enough about migraines to treat me properly. He noted in my records that I am drug seeker and should look into getting therapy to reduce stress. Now any doctor I go to will get these records and become immediately biased that I am not suffering from migraine but rather I am seeking medication. As a result, I have not been able to find a doctor who will start any sort of management with me. I had no idea just how many people do have migraine and after feeling so misunderstood for so long, sites like this give me hope that I am not alone in this suffering. It is unbearable to live with this at times, when they attacks happen a few times a month, most times at least one a week, some worse than others. My family gets their feelings hurt because I don't want them to touch my skin, especially during an attack, they don't understand that it is not a pleasant feeling to be touch when your body is hypersensitive to so many things during the attack. Currently I am not working; I can't hold a job because they say that a migraine is a headache and a good employee should be able to suck it up and work through a headache, too many missed days from vertigo, nausea, light and sound sensitivity, too many mistakes from not being able to verbalize the right words to make a sentence make sense, or the pausing to find my train of thought when taking a customer call. I know this is supposed to be about me but right now in my life, migraine defines my life and everything in it...something I want to change and manage. Until I do, the only thing I can tell anyone about me is that I am is a migraineur.PHOTOS:
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Living With It in Migraine
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