Well, for right now I am not doing too much. I had been caring for a 91 year of age women in her home for the last 5 years. I really was just caring for her fulltime the last two. She past away a couple months back. Her husband past aways two years ago. They were the sweetest couple you could know. The husband did have to go into the nursing home at the end. Thought we (son) would be bringing him back home but he died just like that. The misses we kept at home. Son made sure everything was set up so she had everything there just like if she were in the hospital. She did great right up to the end.
Anyway, I am keeping house for one othr gentleman and caring for a sister now. Gets a little stressful with my sister because she is mildly mentally retarded. SO many things she can do but yest so many things she can't.
My pain started at about the age of 7. I remember will...walking home from school. I did not know what was going on. My head just hurt. I was so scared because it hurt so bad. It was so hard to walk home from school. It was a hot sunny day too. At home I tried to tell my mom that I was sick. She just told me to ly down on the couch. I remember I couldn't take the noise. I remember how hot I was and the couch was so hot. I remember a neighbor coming in and my mom and her discussing my condition. I always will remember that day it was terrible.
From then on when that happen it was known as the "24 hour Flu". I would just stay in the upstairs bathroom until I was sure I was all done being sick. We had moved into a bigger home by then. I remember alot of times my step dad waking me early in the morning telling me I needed to get out because he needed to wash up for work. There were times though he would wash up at the same time I was getting sick.
So, I thought it was the 24 hour flu probably till I was 25 or so. Then a doctor said I was having nervous headaches and gave me some kind of drug that made me way off balance. Did'nt help the pain so I stopped taking the drug. OTC meds I would puke up not much longer after I swollowed them. So, I went without anything till I was about 43.
That is when I met a doctor that at least said you are having migraines and started me on Propanol, and Imitrex injections.The tablet form and nasal spray were not available at that time. After a couple years she sent me to a neurologist. That is where I have been ever since.
I am now on alot meds that is for sure. I am not migraine free.
I still have alot of headpain infact. I am so thankful though now when I give myself an Imitrex injection the headpain is usually gone in 15 minutes. I may still have the migraine hangover but that is okay. I don't get as many migraines either. And, the best is I don't hangout in the bathroom anymore. I am so happy
with the progress I have made. The print just changed don't know why. Now, with that I do have some s/e that have stayed with me but they are a fair trade off so I won't complain.
I have found out that I have a much smaller group of friends now. My life has changed completely because of the migraines. Even as a child how I would be at church camp when I was sick. Any programs that my mother signed me up for. Movies that I went to with friends. Picnics what they were like. Traveling in a car, oh that was terible!!! Yes, so many things set me back. It is too bad something like this, that no one, can see determine the life of a child and have alot to do with how you live as an adult. You just always have to be careful.
Enough said for now!
Marlene
Living With It in Chronic Pain
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