Thursday, May 31, 2012

BerserkeRA's Posts

I went on an RA Safari (and yes, there are lions there)

Long story short: My current meds leave a lot to be desired.  A week ago, I was in to see the rheumy, and commented that I didn't think the sulfasalazine was working very well (and neither is the humira, but heck it's only been 3 months on that -- also, I'm currently taking 30 pills per day, and have a topically applied treatment, plus a... Read moreChevron

Serial Anti-TNFs questions and an explaination of why serial anti-TNFs makes sense

Have you taken more than one anti-TNF?  These drugs include: 1) Infliximab (Remicade) 2) Adalimumab (Humira) 3) Golimumab (Simponi) 4) Etanercept (Enbrel) 5) Certolizumab pegol (Cimzia)   Which order did you take them in?  What were your results?   My first biologic was Enbrel, which didn't seem to do much for me and I... Read moreChevron

Absolutely Allergenic Actemra

I tried actemra today -- literally, I tried to take it and failed.    Today was to be my first infusion of actemra, and it was the first time neither infusion nurse could find a vein.  I had puffs of cotton stuck all over me by the time they found a huge vein in my elbow that would advance.   They gave me the standard "This... Read moreChevron

Orencia obstreperously obstinate

I've been on Orencia for 13-14 months now.  I can't say that it hasn't worked at all, because I have seen some improvement.  However, I'm definitely not in remission, and worse still, I don't feel like my disease is under control, or even adequately managed.   Orencia is slower getting started than the anti-TNFs (it may take 3-6... Read moreChevron

Hippy the Hippo (hip damage?)

I've noticed recently that my hips are begining to "pop" deep inside, and along with that feeling comes intense pain.  I've had numerous cartiledge tears over the years, and the pain is much more intense than that.  Ussually this happens after I've been immoble for a while, then get up and take a step.  Most of the time, the pain is... Read moreChevron