Wednesday, February 15, 2012
joguinn
  • joguinn is Janine
  • Location: OR, United States
  • Gender: Female
  • Bio: Mom, wife, christian: secondary progressive/past 9 years.
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HEALTH INTERESTS:

Patient Advocacy,  Progressive MS,  Thriving,  Living as fully disabled-mostly at home

DRUGS I AM TAKING:

copaxone,  neurontin,  baclofen,  wellbutrin,  paxil

ABOUT ME:

I am 44, a wife of 23 years, mom to 18 yr old college student, former professional with a dream job, who now is learning how to live her life as it is today-mostly at home and fully impacted by MS. The hallmarks of my MS are left sided symptoms that are starting to show up on my right, clear brain MRIs (they recently found 3-am I crazy to be so excited?), off the chart spinal test numbers, a tremendous 8-yr struggle for diagnosis and pervasive nerve pain. Currently I am learning how to live a purposeful and joyful life within the limitations of this illness.

PHOTOS:

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ROLES:

Living With It in Multiple Sclerosis

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joguinn commented on Does sex improve MS symptoms

07/08/10

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joguinn asked Electrical Stabbing Pain: Have you had it? Solutions?

01/13/10

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joguinn commented on Any advice on filing for Social Security Disability?

11/24/09

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joguinn commented on How to Use a Sense of Humor to Cope with Multiple Sclerosis

11/24/09

My_home_ico_answerQuestion Answered
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joguinn answered normal mri brain, neck, spine and normal evoked potentials make MS unlikley?

07/02/09

My_home_ico_answerQuestion Answered
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joguinn answered I like to drink a glass of wine once in a while. Can I still do that with ms?

07/02/09

My_home_ico_answerQuestion Answered
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joguinn answered When do you know it is time to turn mobility over to a wheelchair?

06/11/09

My_home_ico_answerQuestion Answered
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joguinn answered how can i get help paying for copaxone

06/11/09

My_home_ico_answerQuestion Answered
Our community members depend on one another for support and advice. Can you help as well?
joguinn answered If you have a normal brain Mris for 15 years . can you still have MS?

06/11/09

My_home_ico_answerQuestion Answered
Our community members depend on one another for support and advice. Can you help as well?
joguinn answered If you have a normal brain Mris for 15 years . can you still have MS?

06/04/09

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