HEALTH INTERESTS:
RHEUMATOID ARTHRITIS, , FIBROMYALGIA, CUSHINGS DISEASE, CELLULITIS, SYSTEMIC SCLEROSIS, BILATERAL POSITIONAL UPRIGHT VERTIGO, CHRONIC FATIGUE, ME, BILATERAL LOSS OF PERIPHERAL VISION, ORAL THRUSH, RAYNAULD'S DISEASE, CHRONIC ASTHMA, RECURRRENT CHEST INFECTIONS.DRUGS I AM TAKING:
ORAMORPH, DICLOFENIC, NIFEDIPINE, KLARICID, NYSTATIN, SINGULAIRE, DIAZEPAM, SENNA, LACTULOSE, LORATADINE, MAGNESIUM SULPHATE INJECTIONS, LIGNOCAINE INJECTIONSABOUT ME:
I AM A 47 YEAR OLD LADY WHO HAS BEEN ILL SINCE I WAS 13 YEARS OLD. IT STARTED WITH SEVERE GLANDULAR FEVER AND LEUKOPAENIA WHICH TOOK IN EXCESS OF A YEAR TO CURE. I WAS A PROFESSIONAL DANCER FROM THE AGE OF 4, BUT DUE TO SHOCKING HEALTH PROBLEMS MY CAREER CAME TO AN ABRUPT END. I HAVE SPENT 10 MONTHS SLEEPING ON THE LIVING ROOM SOFA AS I CANNOT WALK UP AND DOWN THE STAIRS. I LIVE HOUR BY HOUR, BUT AM IN CONSTANT PAIN. I HAVE SPENT THOUSANDS OF POUNDS OVER THE YEARS SEEKING SECOND OPINIONS BY TOP CONSULTANTS AND HAVE RESIGNED MYSELF TO THE FACT THAT THE PAIN WILL NEVER DISAPPEAR, BUT HOPEFULLY ONE DAY VERY SOON, IT WILL BE MANAGED AND CONTROLLED. IT IS THE LACK OF AUTONOMY AND INDEPENDENCE THAT HAS REALLY THROWN ME. MY DRIVING LICENCE WAS REVOKED FOUR MONTHS AGO, SO I AM TOTALLY RELIANT ON OTHER PEOPLE ASSISTING ME. I HAVE NO OUTSIDE COMMUNITY HELP WHATSOEVER, BECAUSE THEY CLASS ME AS TOO HIGH RISK. I FALL DAILY, CANNOT TELL THE DIFFERENCE BETWEEN HOT AND COLD WATER AND HAVE SET LIGHT TO MY HOME 4 TIMES IN A MONTH. THANK HEAVENS NOTHING SERIOUS HAS MATERIALISED SO FAR. THE PARAMEDICS MAINTAIN IT IS ONLY A MATTER OF TIME BEFORE TRAGEDY STRIKES.PHOTOS:
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Living With It in Chronic Pain
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