A lot has happened since I was diagnosed with Multiple Sclerosis in 1988. I received a Bachelor's Degree in Film from University of Maryland and a Masters in Instructional Design from New York University. I have worked in the film archive industry, desktop publishing, television production and most recently higher education where I have researched instructional design in health education.
While my diagnosis and education/career track seemed separate realms of my life, in the past decade they have aligned as my work in education became focused on individuals learning about chronic illness through the Internet and the need for an online environment that recognizes the specific characteristics of this group.
Using my own experience with MS as well as my expertise in instructional design, I have designed a website that provides low-anxiety learning for individuals who need to understand their lifelong illness as it grows and changes. This unique approach gives the users control over the process, and thus empowers them for a life of learning. Receiving the first grant ever given by the National MS Society, the development of MSSoftServe.com is underway. I have founded the non-profit SoftServe Matters to make this and other sites like it, a reality for the people who need it most.
Writing has become my most effective coping mechanism. I’ve been blogging for over a year and it not only helps me process and deal with the challenges that MS doles out, but it also connects me to others in a most healing way. mslol.wordpress.com
Married to a wonderful man, and mom of a spectacular daughter- I live and grow and appreciate everything I can as I endure all that tests my will.
Living With It in Multiple Sclerosis