I am in so much pain...I can't take it anymore. I'm so tempted to go to ER but, currently, I'm just so weak and tired, as well as my entire family/friends have either passed on, or move out of ny; and these ER's aren't too good; I'll tell you. Can't hardle ever urinate, without pressing lower bladder and it never fully comes out. And NOW, I lost my ability to orgasm, simulatenously my sex drive has gone through the roof...leaving me in the most painful constant state of senstivity or "need to orgasm" that I ever had in my life. It literally, affects my entire day, 24/7. Anything that touches me (from the bed to my underwear, urinating...makes me feel, so close but when i attempt to climax...I lose it? I think 2X in 6 weeks and those 2 days, i was actually able to function. But if I try and don't have orgasm, I found out that the pain becomes 10 fold worse...and it lasts throughout entire day.
In 2006, I had to wear a Foley Catheter for 6 months...yet, they never gave me a definative diagnosis. That entire time, I only remembered extremely missing the urge to orgasm. Since then, I've tried the cipro (which helped for a while, then stopped), and the Uroxatal w/proscar...The proscar actually had a paradoxical effect on me, as i thought at least it would reduce my sexual drive; but it only made it stronger. a new Urologist, 3 months ago...was nice, but he sent me for Cytoscopy and other tests. Almost a week or two later...I developed Severe over sensitivity in penis head and testicles moving up and down; craving release. But no matter what I do...I get right up to the pont where it feels "no return"...and then I loose it (self-stimulation).
I cannot take this anymore and yet, I know...the MD won't see me until I take the Cytoscopy...however, my memory of taking that test in 2006 hurt so much, and I didn't even any sensitivity in penis then....now, even if the air blows past me or my underwear...it stimulates. And I can't get myself to allow a lab technician to stick those wires deep within my penis...I'd have to be strapped down literally. I fear if someone touches me, I'll come close to orgasm and or erection, and I'm terribly embarrassed too.
Lately, I've self-medicated myself...w/Zyloprim thinking maybe it's too much Uric Acid, I've even taken Zithromax, thinking maybe a past relationship gave me "chlamydia"...nothing helps.
My diet is extremely limited to soft fatty foods and I supplement w/Boost Plus, due to GI issues as well (ileostomy was added 9 months back)...and I drink a lot of Cranberry Juice mixed the boost (high Protein, high fat...high uric acid in the Cranberry Juice).
I'm only 48 years old and I feel like I"m trapped and nobody understands. And these Emergency rooms around NY, they treat you so lousy and usually the results is..."go to your MD"...and my MD of 20+ years (great man)...just reitred a few years ago; my new General MD is young and disinterested.
Meanwhile the pressures of being on disability, in this economy and handling day to day matters, doesn't go away, and lately, I just can't think anything beyond this pain.
Has anybody ever had been in a situation where they not only had severe urinary
retention but it developed into a feeling of constant over sex stimulation with the inability to relieve yourself? I've went through all the literature on the internet...and only bits and pieces.
Any suggestions, thougts either medically or ideas to approach this Urologist, who has no clue where I dissappeared to because I never completely that Cytoscopy...and from when i saw him 3 months ago...I'm in a completely different situation. He was nice too...but you know you it's practically impossible to reach an MD on telephone.
I'm prayig night and day.... Thank you for reading this..sorry for length.
JC




