Have you ever been scared of something yet kind of looking forward to it at the same time?
This is exactly how I feel at the moment.
I have Rheumatoid Arthritis, Lupus and Fibromyalgia and was diagnosed almost 20 years ago. I have been through a whole list of treatments trying to find one that works for me. The closest I came to seeing any improvement was when I was put onto Humira injections. Slowly after a few weeks of having the needles I (and others around me) started to notice that I was able to do little things that had seemed impossible for me before.
Unfortunately after a year on Humira I hit a wall and it seemed that my body built up some kind of a resistance to it and it just stopped working for me.
I was then put onto Enbrel and was hopeful that I would have the same positive reaction to it as I did in the beginning with the Humira. I never did :(... I kept waiting and waiting for it to kick in and for me to start feeling better but it just never happened. My specialist agreed that I was getting no benefit from it and arranged for me to begin Orencia infusions
Before the infusions could commence, I was experiencing extreme pain in one of my big toes and woke one day to find it huge, and red and filled with pus. I was admitted to hospital were they diagnosed it as Septic Arthritis and had a permanent line attached so that I could receive IV antibiotics 24/7 for months. In October the line had to be removed as it too had become infected. Things were very drastic and I came very close to losing my foot.
My Rheumatologist tells me that it was because the Enbrel had made me so immuno-suppressed that I contracted the infection. I have had to wait months now until the infection had completely cleared before trying to start the Orencia again.
So now TUESDAY is the big day, I will have my first infusion.
Like the heading of the post says, I am very apprehensive yet at the same time hopeful that Orencia will be the miracle that I have been hoping for.
I keep telling myself that I couldn't receive a better Christmas present than a chance to feel at least a little bit better.


Wow...Im sorry for everything you've gone through..Im also taking Enbrel right now..My husband has been sick..and I feel even worse right at this moment...My Rheumy tells me that I need to be careful when I get around people with a cold or what not because Enbrel does lower the immune system even more than it already is...
hope you get the miracle you search for so much....That would be the best Christmas Present ever!!
Take Care..