Thursday, May 31, 2012

Need some inspiration . . . .

By Debs Wednesday, November 07, 2007

Hi everyone.

I'm so glad to have found this website! It's such a relief to know that you have all probably been through every emotion I am griping about right now!

 

I cannot cope with my life. I am so in pain everyday of my life, every part of my body is screaming at me. All of my fingers are so swollen, throbbing and disfigured, (they won't even allow the most basic activities of daily living, like holding a hairbrush, turning the shower on, dressing myself, writing, driving, the list is endless as you all know). My feet don't want shoes on them at any time, and they don't want me to walk without extreme difficulty, and my neck pain is keeping me awake every night.

I'm so exhausted.

Im finding it really difficult to keep up full time employment, in a mostly male environment - where a headache is enough reason to take the day off sick - and my fiance hasn't spoken to me for three weeks, cos he thinks I'm nuts (and an idiot)!  

Has anyone else gone through the psychological torment and physical pain this illness makes us have to deal with, and how did you all cope?

 

I'm also finding it more difficult to cope just now, because I know I must  split with my fiance, who hasn't even said "Hi" for the last three weeks. May I add, he has attended hospital with me on every occasion. He is fully aware that there is no cure and he sees me go to pieces, with the painful injections and menu of treatment I have to endure, in order to get a few weeks of semi-normality! Therefore, he is not in the dark. He is as educated as I am about this illness. 

I wont be seeing my rheumatologist till Christmas Eve, and I really dont think I can wait that long. I dont know where to turn, and I'm so lonely. Please, everyone out there, please help if u can. . . . .

 

And please forgive me for griping x

 

 

 

 

 

 

 

Is this normal ?
11/ 8/07 12:09pm

Dear Debbie,

 

Thanks for submitting a SharePost.

 

We have wonderful community of individuals experiencing similar emotions and situations, so please don't think you're alone.  And please don't apologize for gripping, that's what we're here for!

 

I've pulled together from information form the RA site as well as the Chronic Pain site, which I hope you find helpful.

 

Stress and Depression in Rheumatoid Arthritis

 

Diagnosed with Rheumatoid Arthritis: Ten Years Later 

 

Managing Chronic Pain 

 

Living and Coping with Rheumatoid Arthritis

 

 

Also, I recommend looking at the Rheumatoid Arthritis message board, where a lot of conversations are taking place.

 

Please let me know if I can help with anything else and please keep us updated on your condition.

 

Best wishes,

Katherine  

 

 

Anonymous
Catherine
11/20/07 8:11am

Hi Debbie,

I just found this web-site today when browsing through to find out how long I have to put up with feeling sick all day every day since I started taking sulphasalazine. I've already gone past the 'three months' they say it takes to get used to it. I'm beginning to think the small amount of benefit I get from it is just not worth the queasy stomach. I think we all need to grouse about how we feel sometimes. Being in constant pain and having restricted movement is just not fair!!!! My 28 year marriage broke up two years ago and at 51 yrs of age I'm on my own. Its not as bad as you might think.The holding on and hoping for it to improve was more painful than the actual day to day of getting on with living.

1/ 1/08 11:43am

Hi Debbie, first off get rid of that man. Did you know stress can cause ra to flare.Maybe you need to try another doctor, or ask your doc to change your meds. Its easier said than done, but try to get as much rest as possible. Since that dead beat wont help you,no since it keeping it around.You need someone who really cares about your ra and you. someone who is willing to walk slow,someone willing to fix a meal for you. Someone to run you down. So get rid of the stress and please pray. Than always help.

 

Also try squeezing a ball, flex your hands and feet. stretch your arms. maybe that little exercise will help.

 

Wishing you many pain free days

Annie

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By Debs— Last Modified: 09/21/10, First Published: 11/07/07