Thursday, May 31, 2012

Moving complications and RA

By Bjjorn Wednesday, December 22, 2010

I was diagnosed with RA in 2008, and had things under reasonable control until recently when we moved from Wisconsin to California. 

 

Trying to find a Pricmary Care Dr. and a Rheumatologist while living in a very remote community meant I was without my main medication (Orencia) for about 7 weeks.

 

If I thought I had RA under control, I found out that I was VERY mistaken!

 

I eventually was placed on Enbrel Sure Click and have improved, but no where near where I was prior to moving.

 

I would say the moral of this tale is to spend alot of energy on getting your primary and specialty physician's set up before you move!

V, Health Guide
12/22/10 9:52pm

Hi, Bjjorn!

 

This is a great post. Most of us would not think about how important it is to line up a doctor before we move. We are usually all caught up in getting the furniture there, etc. 

 

Sorry to hear you are having trouble getting your RA back under control. Hopefully the meds will kick in soon. Moving can be stressful, too. Maybe when things settle down, and you get into a routine, you will feel much better.

 

Hope you have a wonderful holiday.  Don't forget to take care of you.

 

Peace,

V

12/23/10 12:26am

Well, I thought about it but obviously it didn't work out well, I had a pin head for a Rheumatologist in Wisconsin who would not work with me to get and additional infusion at a local hospital.  Then it was getting the new doc, getting a time,  then goinng thru the whole process with the Insurance company.  Anyway, be prepared to start at the beginning again.

 

I also finally figured out that the stress of moving, moving to 4200 feet, considerably colder temps, and drier weather have really caused some major pain and fatigue flares.  I will be glad when it all settles down.

 

Bottom line, spend as much time planning for your medical move as you do your house move.

Lene Andersen, Health Guide
1/12/11 1:14pm

you're absolutely right - I actually just posted on how to make sure you have the right medical care is the foundation of your metaphorical house. Very good advice to make sure you have doctors lined up before you move to a new area. Thanks so much for posting this.

 

How long have you been on Enbrel? It can take up to a couple months before it builds up enough in your system to have maximum impact. A lot of doctors also use combination therapy with Enbrel and methotrexate, as two medications can work much better than one alone. As well, I found that a small dose of steroid can take Enbrel from working well to working terrific.

 

and just because I'm curious, was there a specific reason why your present doctor changed you to Enbrel when Orencia was working so well? And if Enbrel is still not working as well as Orencia did, why not change back?

 

 

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By Bjjorn— Last Modified: 01/12/11, First Published: 12/22/10