Scared to move forward

     Well, I've made it through my first year without punching a wall. I know it would hurt really bad anyway. LOL  I just stopped taking methotrexate about three weeks ago and I am feeling the affects of not taking it. I am switching to the Remicade infusions in a couple of weeks. Although I am very happy that the insurance company has finally approved the treatment, I am worried about the side effects of the medicine. I've heard some good and some really bad. I'm a little scared. I know I am very lucky. There are lots of you out there that do not have this option and I really feel for you. I wish there were more cost effective treatments for this disease. I recently took a full time job just to get on the insurance and did not know if they would pay for the infusions or not. I was really thinking not but I sure was happy to get that letter in the mail today!

     I am going to take this disease and do whatever I can to make life easier for those of us who have it. I am currently in the process of learning about non-profit organizations and would some day like to start one that would help organize assistance to people that are simply having a bad day and can't get their chores done. I thank my lucky stars on a regular basis because I have the best husband in the world who picks up the loose ends when I'm down for the count. It makes me cry to think about those that have no help doing the dishes, folding clothes, cooking or simply getting a drink of water. Some day I hope to make it easier for at least the people in my area. Any information or advise on this subject would be greatly appreciated. Also, if anyone has any words of wisdom on the Remicade I would like that also.