I need to vent, I hurt!!!

By Tmichel Tuesday, May 22, 2007

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Hello,

I just wanted to vent alittle today, I hurt!!!! My whole body is in pain today. I haven't had this bad of a FLARE for a month. I can't walk on my feet only on my heels. I feel like I'm walking on marbles on the pads of my feet. I have stabbing pain in my left foot that make me have an out burst or two. I'm having pain just typing this gripe, because my fingers are so swollen and stiff.

I went back on my steriod prednisone 5mg and it makes me sooooo irritably and pufffy. I'm also taking diclofenac 75mg a antinflamatory!! IT"S NOT WORKING!!!! I've soaked in epson salt bath twice today and one steam shower nothing!

Is there anything that works for anyone else!!

I have my soon to be 5 year old very active son crawling all over me wanted to go do something today on this beatuiful 75* Iowa weather. And all I want todo is go back to bed. I have a pain pills but with him I can't take them I'll fall to sleep. Besides they only take the egde off not take then pain away!!

WHAAAA!!! I just want to cry oh yhea I already did that today.

Please pray for me that I get pregnant soon, so I have more of a purpose to be off my Biologics Humira and the faster I can get back where I was before I went off to get pregnant!!!!!!!!

Peace, Michel

Comments (9) | Add comment

nicolynn

5/27/07 12:52am

I know that feeling, from a different place. I am so uncomfortable taking pain meds, but it's an absoulte necessity for me. I don't get "high" like many people would think, but the pain meds work great and allow me to function in the day.

I hope you begin to feel better soon. We're out here if you need us!

Jenny

6/ 1/07 11:50pm

Michel,

I'm

Jenny

6/ 2/07 12:07am

Michel,

I'm a 55 year old mom and I've had RA for 32 years, having been diagnosed a couple of months after my first child was born. I remember what it was like with a small child and feeling pain in every tender spot. When the ra first began and my lst baby was an infant, i remember what it was like to take each step like i was walking on broken glass, and then when I had to reach to pick her up and my fingers and hands felt broken. just pain everywhere.

my 3 children are each 5 years apart and i went through so much guilt because i wasn't everyday the healthy mom they deserved, or i really wanted to be. but children are understanding. i learned on the pain days that we could do calmer things, like coloring, reading, some fun art project. can you pitch a quilt on the ground outside and set up there for you to share the great day together? maybe take some cookies and a coke and make it a fun picnic snack? as hard as it is, sometimes moments like that could help me put mind over matter. do you have help so that sometimes you can trust your child to someone else, then take your pain meds and lie down for an hour or 2 so you maybe can get some pain relief and then maybe get to do some mommy things. I fought at my younger age filing for disability, but after continuously being in a battle for pain, i did file for disability and that money, even though it was a very small sum, at least allowed me some funds to hire part time help in the home so on sick days i could have help, take my pain meds and get myself pulled together and then get to be a part of the remainder of the day with my children.

good luck with getting pregnant. my ra went into remission with each pregnancy so it made it a good 9 months. and although doctors didnt want me to have children because it would be harder physically for me, it was those children who have kept me fighting the ra all these years. they keep me from letting the ra win.

God bless. There will be a better day tomorrow.

Jenny

Anonymous

7/17/07 3:59am

Hi, you are not on humira because you want to get pregnant? I'm on Methotrexate, paracetamol (for pain) and Indomethacine (for inflamation) I have bad days but it is bearable.

I wonder if you have to stop taking all the medication while pregnant?

I hope you feel better soon. have you notice that the weather is what makes the pain worst? I'm from Mexico city and Now I live in southern California and I feel much better here because its sunny most of the time. In Mexico in the rainy season my joins hurt everyday very badly.

Sarah

11/17/07 5:44pm

Hi, How are things now? I urge you to read the book by Margaret Hills and visit her website. There are so many success stories from drinking Apple Cider Vinegar/Honey and taking Molasses/watching diet and taking vitamins and minerals. My daughter is SO much better and she is also having acupuncture. The acupuncture is trying to rebalance the hormones. Hope this can be of some help to you. Regards.

sonnmist92

5/ 9/08 9:50am

I've been hesitant to try the meds. that mean injecting myself, so I've been reading about other people that have tried them to determine the pros and cons. I can certainly relate to the "end of my rope" feeling and the desperate desire for relief from the pain! My RA went into remission during pregnancy with my daughter, but gradually returned after her birth and found new joints to attack. I was told that our bodies naturally produce prednisone during pregnancy.

I've decided to hold off on the Enbrel for now because I may have found a better solution. I'm currently taking Minocycline and one Naproxen a day with dinner. I've also been taking Flex Protex for about a month and I can't get over the difference in the way I feel...it's incredible!! It's all natural and contains a COX2 inhibitor...again a natural one that won't harm your stomach! I was struggling to sleep at night because the pain in my wrists, hands and elbows was unbearable. I was taking a pain killer every night before bed, but it would only last about 4 hours. I no longer need the pain killers and I have no trouble sleeping...I'm hopping out of bed in the morning feeling great! Check out Flex Protex on the web and see if it might be worth a try!!

Good luck and take care! ~ Christine

Lynn

4/27/09 7:51am

Michel it can always be worse that is what you have to keep telling yourself. As far as the fatigue, my doctor prescribed Ambien my first year 1999 so if anything I could at least get a good nights sleep. I also take ultracet for the pain, my doctor doesn't want me on a narcotic so the ultracet works but more than anything it perks me up! Just like drinking a pot of coffee then I have energy to do what I normally would not, so it helps the pain and gives me energy. I am on Orcencia and have been for 6 months it has not done a thing for me in fact my hand is getting worse. I am also on Arava once a day.

email me if you like dover217@bex.net

Lynn

tmichel

4/27/09 3:30pm

Hi, Lynn, When I received an email that you had posted a comment on this website today, I honestly had forgotten all about it. It has been two years since i've posted, and that is becasue I am pretty much pain free these days. I am still on the same amount of prednisone 5mg and diclofenac 75mg. Very low dosages. We are still trying to have a baby with nnot much luck. I have a OB consult next week. I turn 41 in june so I'm getting up in years now for that to happen for me. This is the deal in 5years I gained about 50lbs and lost ten here and there. But the Since I made a decsion to become more disipline with my eating(which I was an out of control horrible emotional eater!!)I met a lady at a RA support group that was 10 years older than me and decided I wanted to do what she was doing. Since I've already tried everything else I mean everything else to crazy home remeides. I've completely changed my eating choices, some are gluten free on my starches and taking a daily liquid organic vitamin & mineral mixture, Omega liquid orange flavor(can still taste the fishy but the orange makes it a little bet better, but it's better then choking down those horse pills). Cutting down my sugar, sodium, starchs and CORN anything. I've also found a holisitic Dr. Chiropractor who's shown me how to still move and stretch even when it hurts. If you don't use it you lose it she says. Those have been my only changes since my last post in May 2007. I'm so excited to even say this month April 7th I started taking Turbo kick boxing again. I do a low impact beause of my shoulder roter cups but I'm moving and it's fun. I haven't been able to do that expect before my RA and during the later part of my Humira injections. Don't get me wrong that evil serpant of RA likes to remind me it's still there. And those flare up days are usually days three & four before my menstrual starts. Why those days I'm not sure, my holisitc doc. says it could be do to the fast release of estrogen my body gives out. My flares last about anywhere from 8, 9-10 hours. Very rarely I have a two day flare. I know I shouldn't but I usually bump up my predisone for those days get a adjustment, massage and very hot long epsone salt soak. So, I can't really complain when I know it wil only lat a little while and I work myslef through it. I'm slowing getting my life back and I thank God everyday. Having support outside your home & friends circle and this site is nice to have, but, talking to someone with RA is even better becasue I truely do know what your going to through. So please feel free to email me too. jojozmama@msn.com I'd love to chat more. PS: That goes for anyone reading this reply feel free to email me to chat. Take care and many blessings to you! Michel

khadeejah

12/24/09 12:23pm

hello there oh my i finally have meet someone out there that goes through what i go through everyday.i understand ur pain im only 43 yrs old and i just got a divorce and moved at the very begining of the month,no one understands the way we feel unless they r in r shoes i do the same thing the only thing that usually ends up working is pain meds. i thought i was crazy or going crazy when i told my mother that the meds. just take the edge off so i can cope and not get so depressed this last month has been my worst i felt ever.i guess because of the great change in my life.I do know tha stress triggers the attaks we have and the more stressfull the situation the more it is going to hurt.Auqua therepy is wonderful i feel so good in the water no pain at all and i can enjoy exersise again,this is a cripling disease and we have to take extra care of our selves xxxxxxxxxxtra care of our selves this is the bodies we will die in if u can follow me i would just love to feel like i did when i was 30 yrs old.i have 6 children and would like to have more but i think thats it for me to hard on the body and high in stress and 2 out of 6 of my children have MR mental retardation so we i have a flare up like this i get so depressed but cant stay there or else ill never feel better mind body and spirit must feel good for no pain and that takes alot a huge amount of work.So day by day hour by hour min. by min.u may need a mild nerve medication because stress can bring on attaks so my hopes r with anyone that has RA take all this advice been there mind body and soul all have to be in well working order for relif good day to everyone

I need to vent, I hurt!!!

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