Alittle bit about Graves Disease and some other stuff

By angie Wednesday, September 05, 2012

Thanks Rena, Wonderwoman, V, and everyone else for your support. Graves Disease is caused by a defective thyroid, hyperthyroidism.... I was hypo, but that changed somehow. It affects your eyes and some other parts but I myself am still learning about it. I do know that it causes swelling and enlargement of the six muscles that hold your eyeball in place and makes it move. Imagine the feeling of someone behind your eyes pushing your eyes outward stretching the muscles. It's quite painful.All the pain meds I'm on and anti inflammatories don't touch it. You ever seen a person whose eyes are buldging way out, that Graves at its worst. Can't remember the name. ... The treatments vary, but from what I know so far is they can put you on prednisone, then zap it with radiation if that doesn't work, then removal of the thyroid. And stay on my thryroid meds for life, which most people end up doing anyways. I am almost at the point, like tomorrow, calling the "eye socket" specialist my opthamologist told me to call if it got flared again,my eyes are burning bad and I have a excuse the term hellacious headache. IT IS!!! The day before yesterday, my right eye went black on the right side of my vision. So, they said it wouldn't affect my vision so do they have my diagnoses correct?????? And to update you guys more, I also got diagnosed from my RD with osteoarthritis that showed in my xrays of my hands n feet. So, She put me on neurontin 3x's a day. It makes me a happy drunk. LOL I can barely walk straight, but it helps my pain and my anxiety. She also put me on cymbalta 3x's a day instead of the 3 pills n the morning that my shrink put me on... It works better that way. I am also voicemailing my RD because my insurance needed a CPT code for my tub. I kept getting that the vendor had that, not the doc. Well, the insurance said it was the doc, so I got mad!!! I spent all weekend looking for these codes on the internet. Guess what, I found them. (I already had the ICD-9 code but that wasn't enough.)So, I found the CPT codes also called HCPC... I called my RD, leaving another voicemail with the code of 99215.... For some reason, docs aren't using that code but rarely now. It covers alot. So, my message was for the doc to check out the code and if she agreed to please call my insurance and give it to them. I also, found a cadillac walk in jetted tub through Envy the maker of these tubs with no middle man. They are SOOO polite. They are in Arizona, free shipping, no sales tax and the guy said set up is dummy proof cuz they even send instructions. He said its simple. But I can get an installer if i prefer. Here it is, the tub is ONLY $2899.00. Thats still more than I can do on my own til maybe tax refund time, but if insurance pays I only have to pay 20%.... He said not to do Premier or safetub. I had already looked at them so I knew he was tellin the truth. They are 9 to $10,000 .... Envy offers an awesome warranty 10 years on the tub and lifetime on the seal on the door. And 31 jets. This is the large size, the water will come over my shoulders and I'm 5'7".... So maybe all my jabberin will give some of you guys some short cuts and help you out. I'll let you know how it works out as I haven't heard back from my RD office yet but I am being patient til next Monday, then I'll call them again.... Persistance,LOL!!!! Luv u guys, take care.

Using Technology to Improve Your Quality of Life: Apps for Arthritis and Chronic Pain
V, Health Guide
9/ 7/12 7:22am

Once again you share some valuable information for us, Angie.  Isn't it crazy how we have to follow up on everything?  That is why Lene always writes about advocating for ourselves. I think you are already there!  Wink

 

So sorry about the Graves Disease.  Does not sound pleasant.  Please share info on this as you go along and learn.  I am interested on how this is treated, and how you are doing, and I am quite sure other readers are, too.

 

You have a great attitude, Angie.  And do I see a bit of stubborness there, too? That is a good thing.  Just keep being you.

 

Blessings,

V

 

 

9/ 7/12 8:21am

Thank you. You made me smile! Yes, I am stubborn!Wink

Lene Andersen, Health Guide
9/12/12 11:59am

I often say that having a chronic illness is like having an advanced degree in project management in your post proves it. It's astonishing that these people are getting paid to do things and yet, we are the ones where to find accurate information for them. Like you don't have enough to do. So sorry you're going through a rough time and that everything seems to be hitting at once. Hope they find a way to keep your eyes down toward dull roar.

 

Sending hugs.

9/15/12 9:32pm

I have gained alot of strength and a more positive outlook because of the support from the people on this site.... Me "accidentally" coming across  this site wasn't an accident. It was meant to be. God Bless ALL of you guys that manage and hold RA central together! Thank you.

Lene Andersen, Health Guide
9/17/12 10:36am

we've got a really good team here and some amazing community members. Together, we get each other through the hard times and cheer for the good. I'm so very glad you're part of it.

9/15/12 7:59pm

I'm glad that this post was highlighted today because I am currently under investigation for hyper-T, too. Don't know if it's Graves or not but I have nodules, symptoms of hyper-T that come and go. Thanks for sharing and I wish you the best as you look for the best Tx.

9/15/12 9:29pm

Good luck. Shoot me a message anytime! I'm a big advocator, if thats even a real word,lol... I'll be glad to help you anyway I can. Good luck and keep us posted. 

V, Health Guide
9/17/12 8:02am

How are you doing, Angie?  Had you on my mind lately.....

 

Blessings,

V

9/17/12 8:57am

Hey, V. Thanks! Thats so sweet.... I am ok. I can't remember if I told yall Ive got osteo too, but its moving fast in my hands and feet. I also think its in my upper spine as I can barely stand at the sink for 15 minutes for cookin or washin dishes without it feelin like I been there all day..... The knots are big and showin up on both hands and I cant straighten out my hands to lay my hands flat. I should be hearin anyday now on my letter of reconsideration on permanent disability.They sent me to see their shrink cause of my "claim" of anxiety,panic and depression... Go figure. I feel positive it will be approved this time and not need to go to a hearing, but I'm prepared for anything. I have retained an attorney, a very good one, so Ive got my ducks in a row. I have been thinkin about you too. I think cause you were the first person who had a very compassionate reply to my post. But you're that type of person as I've read in some of your other replies. You are a blessing. Talking to you somehow gives me strength and keeps my faith strong.. Like I know you in person and not in the cyberworld,lol! How are you enjoying your scooter? How you been feelin? Thank you for thinking about me and especially for reachin out n lettin me know, we have talked about this in some of our posts, I believe it was Lene(shes a doll too). It brought sunshine to my otherwise blah mornin...... HugsWink

V, Health Guide
9/17/12 9:16pm

I've been flaring a bit, Angie, but much better today!  Smile

 

Got my bloodwork results and the Orencia is working much better than Humira for me.  Woo Hoo!

 

Last day at work is Friday.  Just had to share that. LOL  So good to hear from you.  You make me smile. 

 

Hugs to you, Angie.

 

V

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By angie— Last Modified: 09/17/12, First Published: 09/05/12