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very much like me
Nan
Friday, August 21, 2009 at 05:30 AMre: very much like me
Anonymous
Saturday, August 22, 2009 at 07:04 PMNan,
What you are going through sounds like what they put my mom through. After the gambit of trying different drugs (same ones as you and then add Enbral) she has developed Cirrosis of the liver (from all that wonderful drug thereapy) and if she lasts the year we will all be surprised. Question everything they give you and then ask again. Better safe than ... Also look up candida albicans, it mimics RA but unlike RA it is curable. I heard an old Greek quote from Hippocrates (I think) "let food be your medicine and medicine be your food!" Good luck and may God bless all of you who suffer from these terrible illnesses.
re: re: very much like me
Barb
Tuesday, August 25, 2009 at 09:59 PMWell, I looked up candida albicans, and I couldn't find anything that said it mimics RA or is even remotely similar - perhaps I was not looking in the right place? If you have a link to some information about it, I woud be grateful to read it. I would love nothing more than to find something that offers an alternative diagnosis to the symptoms I've been having, since I really, really do not want to have to experiment with the drugs that are available for RA or have to deal with injections or anything else.
On a side note, I'm going to see the rheumatologist again and see if there is any swelling to be worried about - my hands have been exceptionally bad this week and I think my knuckles look larger, although it looks more like a bone-type of larger rather than a puffy swelling-type larger.
If she still doesn't think it's RA, I would at least like her to offer up an alternative, because having all this pain and spending all night every night with ice packs on my hands makes for most unhappy times.
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Hi, your symptoms are very much what I have experienced. My hands, particularly my thumbs, started hurting about 3 years ago. I thought maybe I did something to my right because it hurt more and the left is doing more work and I didn't give it too much thought. Went to the doc, she said tendonitis and sent me to ortho for splints and pt. ortho said this might be ra, have I been tested?. I said no and kinda dismised it, I played with the pt putty for several weeks, wore the splints but never got better. I went back 3-4 months later because I just woke up one morning and both my ankles were hurting. My feet/ankles never hurt. I walk about 20-30 miles per week work out 5-6 days per week at the gym, this is weird. Doc sent me for ra test, came back negative, did the whole aleve thing with NO relief and 2 months later I am hobbling everyday, very painful ankles and hands. It felt like someone was trying rip and tear my thumb joints from my hands. I never noticed any swelling but a little warmth in the area like it had a fever. My doc put on prednisone for 2 weeks, she said if it helped it was a sign that it could be ra. I was the best few days I had had in almost a year by then. Went to a rheumy about a year after symptoms had started, still my bloodwork was normal so he started me one plaquenil for a while then added arava when my elbows and shoulders joined the party. And he said it was just to see what happens, he noticed swelling that I did not see. The meds started helping about 6 weeks into tx. He ran bone scans and mri's and they did show bi-lateral inflammation in various joints. He took me off the arava, it had some strange side effects, and put me on methotrexate. I've taken my 5th dose this week and I can already tell its helping, about a week ago my shoulders started feeling better, my ankles and hands are feeling better. I have left out alot, trying to make a long road shorter. I am actually on my second rheumy cause the first said I was making it all up. My current rheumy continually says that I am the weirdest case he has dealt with and my tx was imperical. I had signs and symptoms but nothing concrete, no absolute testing. I am glad and thankful that he believed me. He has said that he believes its ra and still says that I am the weirdest case. I am walking again, not like I used to and the gym is a thing of the past but tai-chi and yoga are enjoyable replacements.
It has changed me, it has been a long frustrating road, alot of tests, alot of tears, too much pain, no absolute answers to help me or my docs.
I really hope you get the answers and the help you need. I really hope its not ra, no one deserves what this illness dishes out.