Thursday, May 31, 2012

Ratnapriya

By Ratnapriya Thursday, July 09, 2009

I have been living with RA for the last nine years and for the last six years it is being properly treated. I am a research scientist working in a leading research institute in my country as faculty. After returning to my country after several years in different labs in Europe, I became the victim of drug induced RA which was not diagnosed for three years that left extensive permanent damages. None of my doctors believed I would ever walk leave alone work.  But I told myself that RA cannot rob me of the dream I had all my life to have my own research group and work in the field I love. Several people told me to give up my job. I refused to let go of my dream because that is what kept me going through the dark corridors of pain. Now after nine years, I head a research group as Professor and work full time as any of my healthy colleagues. I walk with a bad limp cannot negotiate staircase without a crutch and have several other disabilities.

If you think the pain is gone and I am better. Hell no!!!! Like all RA patients I have bad days and very bad days. Fatigue that can knock anybody down even when I am in an important meeting. This is because I keep telling my RA that it cannot take over my life and I will definitely put one foot before the other. My students do not mind at all if I take five minutes to walk from one lab to another. My colleagues have got used to picking up things from the floor for me and never be condescending to me. My husband feels and tells me that I am normal (far from truth) and have learned to walk as slowly as I do when we share a walk and forces me to go beyond my limits. I on my part take my RA meds regularly do a yoga and free hand exercise regime to keep me as mobile as possible. During the initial period of my disease  the faces around me were all filled with pity. I hate pity. Slowly over the years, pity has been replaced by grudging respect. It is difficult living with RA, it is more difficult  to do it smilingly. But give it a try, that smile on your face can definitely push your RA to the backseat of your life.

Trauma and RA flares.
7/ 9/09 10:13am

Dear Ratna,

 

Boy o boy  i know wht u mean there!. been there, done that.

i stuck to a company for 6 yrs even though i ws dragging myself everyday...

everyone told me i shd quit, except my family !. they never gave me any extra leverage or made me feel "special" haha!

i was saddened tht in ur case it ws drug induced RA. that shd nevr happen 2 anyone..

i hve a sister who ended up with polio when she got vaccinated.

anyway, i m reckoning u r frm india? ooh, am i not glad if u r.

its tough 2 find support groups in india. I am originally frm Kerala, but married to a punjabi and settled in Bangalore (national integration yay!). Now i am in canada( i quit my job only becz of tht). Keep posting.! i am so tempted to say namaste ;-).

 

Roshni.

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Anonymous
Anonymous
7/10/09 7:37am

Roshni you are right, I am an Indian woman scientist quite well known in my field. That is why I am using a name given to me by one of my relative which I do not use officially. Sorry for that. You are correct we do not have any support groups like this in India but we can always use this site. As I have said keep smiling and never say no to life. RA or no RA

Ratnapriya

Lene Andersen, Health Guide
7/ 9/09 11:03am

respect. That's the way to go. Like you, I hate pity, nothing drives me more mental than pity. Congratulations on having taken your life back!

7/ 9/09 12:41pm

Keep up all the hard work! Your motivation and strong will to battle this disease is encouraging! Thank you! 

7/10/09 8:04am

I should define what I mean by drug induced RA. I had sprained my ankle in 2001. I did not break any bones, but  bad badly damaged a ligament. I was about to take a trip to MP India where we had planned some trekking too. My doctor prescribed 50mg of Vioxx (at that time quite new in the market) (chemical name Rofecoxib which is a COX-2 inhibitor) for a month to take off that nagging pain in my ankle. Vioxx has now been taken off the market for its side effects. During that month I was taking Vioxx I lost 14kg, my appetite was completely gone and I lost all muscles in the body being reduced to just skin and bones. None of the 17 specialists I consulted in different areas would believe me that the effect was after I took Vioxx, nor can they figure out the reason for this drastic decline, since none of the clinical tests showed up anything in the initial phase. So I was told everything was in my mind. It was so frustrating. Lucky for me a retired doctor of a Govt hospital in my city believed me and pumped me with all kinds of antioxidant vitamins and minerals etc. After six months I could slowly get up from my bed and start walking with a cratch. It was only in 2003 that a doctor in CMC Vellore in India took my case as a challenge and I was diagnosed as a strange case of drug induced autoimmune disorder which happens to be RA. This post is just a warning to all RA patients to be careful of new pain medications and is better to stick to old ones that have been in the market for long and whose side effects are well known.

Ratnapriya

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By Ratnapriya— Last Modified: 12/19/10, First Published: 07/09/09