I want to stop the methotrexate

amy's compassion Community Member March 21, 2009
  • I just can't live with this nausea, numbness, dizziness, and incredible fatigue from the methotrexate. So many of you guys have had some success after a period of adjustment but after five weeks, I'm just getting sicker. I am up to 12.5 mg per week; I don't know if that's high or low but evidently it's too high for me.

     

    How does your body react when you stop this med? Many thanks and blessings for listening to me.

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53 Comments
  • Lene  Andersen
    Health Guide
    Mar. 24, 2009

    Different people have different reactions to medications and each of us decide what is a tolerable side effect and what isn't. What you're describing certainly sounds like intolerable side effects - this medication is supposed to help you feel better, not debilitate you in another way. That said, you may want to consider moving more slowly with increasing the...

    RHMLucky777

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    Different people have different reactions to medications and each of us decide what is a tolerable side effect and what isn't. What you're describing certainly sounds like intolerable side effects - this medication is supposed to help you feel better, not debilitate you in another way. That said, you may want to consider moving more slowly with increasing the meth. I am very sensitive to medication and any time I start a new medication, I insist on starting at half the regular dose and increasing the medication as my body adjusts, i.e., with me assessing whether I'm ready for the next increase instead of blindly following the "accepted" way of doing it. This confused my doctor in the past, but she's come around after years of witnessing that this works for me. You have options - you can either go back to your doctor and put your foot down, requesting another type of medication or you can decrease your dose significantly and see if you body adjusts in such a way that the side effects are tolerable.

     

    Good luck - please let us know about your progress.

     

  • jamichelle.fenn
    Jul. 30, 2015
    I was diagnosed with JRA at 11 years old, and put on Methotrexate by my Rheum. Dr. As well as my parents; I didn't really understand what was going on, I only knew that I had to start taking a lot of medicine and that we had figured out why I was often in pain for no obvious reason. THIS WAS THE WORST DECISION... EVER. EVER. I am now 19 years of age, and while...
    RHMLucky777
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    I was diagnosed with JRA at 11 years old, and put on Methotrexate by my Rheum. Dr. As well as my parents; I didn't really understand what was going on, I only knew that I had to start taking a lot of medicine and that we had figured out why I was often in pain for no obvious reason. THIS WAS THE WORST DECISION... EVER. EVER. I am now 19 years of age, and while I and my parents didn't understand what was going on at the time, I do now that I am able to reflect. I was on the tablets for about 2 years, and the injection for about 1. My parents were very busy so I'm supposing that's why, with all of my whining, they didn't understand that it was the result of my medication... I certainly didn't. I thought it was just me. Symptoms: Palor. Not just pale, but sickly palor. Dark, dark, dark circles. Pale, chapped lips. Intense nausea. Mood swings (although, granted that could've just been a response of going through all of that + puberty ) Sagging skin (I constantly looked sick) Head fog. Being in public school with a suppressed immune system, I did indeed get sick a lot. Trouble sleeping. Almost akin to insomnia. I slept about 3 hours a night during that medication, though fairly that could've been depression. Kids are cruel and blunt. My teachers didn't know for two years, and I didn't tell other children, so I was intensely bullied for my looks. I got off of methotrexate for my freshman year, and while things looked up, I was still bullied a little because I still was malnourished (very underweight, depressed, still a little saggy) and coming off of all of that damage. Also, I'm still on an immune suppressor. Eventually I figured it out, though it took me til the end of my Junior year or so (I started homeschooling at the beginning of Sophomore year). It significantly reduced by white blood cell count, is what I was told, and even though I spent time in the sun, I had a "fatal vitamin D deficiency"; their words, not mine. Now I have a very careful diet, I exercise regularly (be careful... please. I messed up a lot and did things my body couldn't handle. Light cardio, such as walking to a light speedwalk, is best; if you can, swim), I sleep a minimum of 10 hours a night (my rheumatologist said this was normal), I take supplements, I'm on Enbrel. and I drink a lot of water. I look and finally feel healthy again! I mean, yeah I have acne which I've always dealt with, but that's normal. I take health very seriously. Of course I still have pain, particularly in the morning and at night, as well as my occasional mini-flares, but overall, I found what is working for me. What I'm getting at here is, if you're going to put your child on this, PLEASE PAY ATTENTION AND BE AWARE OF THESE THINGS. PLEASE. Obviously, this won't happen to every one; everyone's body reacts differently. I simply had a severe case. Simply put, pay attention ( :
  • dramsey46
    May. 17, 2015
    It is my understanding that methotrexate-related nausea is due not to stomach irritation but to the stimulation of a receptor in the brain that causes nausea. Any thoughts?
  • erika.hamilton85
    May. 08, 2015
    I'm currently reducing my methotrexate - without the consent of my specialist and it is hard. I start on 25mg and have been de-ducting 2.5mg every three months which is what my GP recommended. The symptons are tough, but it is worth it. It is best to go at it really slow, it isn't worth the risk to end up having to start all over again and having to come out...
    RHMLucky777
    Read More
    I'm currently reducing my methotrexate - without the consent of my specialist and it is hard. I start on 25mg and have been de-ducting 2.5mg every three months which is what my GP recommended. The symptons are tough, but it is worth it. It is best to go at it really slow, it isn't worth the risk to end up having to start all over again and having to come out of remission.
    • Lene  Andersen
      Health Guide
      May. 08, 2015
      May I ask why you are reducing your methotrexate? Are the side effects too hard for you to handle? If so, you may want to consider injectable methotrexate instead of oral — it is much easier on the stomach. That said, reducing slowly is the best thing to do, as stopping methotrexate "cold turkey" can lead to an intense flare. If you are in remission, however,...
      RHMLucky777
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      May I ask why you are reducing your methotrexate? Are the side effects too hard for you to handle? If so, you may want to consider injectable methotrexate instead of oral — it is much easier on the stomach. That said, reducing slowly is the best thing to do, as stopping methotrexate "cold turkey" can lead to an intense flare. If you are in remission, however, you may want to reconsider going off the medication. Remission tends to be drug-induced and when you stop the drug, the RA comes back. In addition, once you have gone off a drug, you may not respond as well to it again. There are a number of factors to consider in going off medication. I'd recommend that you talk this over with your doctor so you have as much information as possible. Of course, taking a medication (or not) is ultimately your decision and you have a right to decide what course to take with your medical care. Please keep us posted on how it goes?
  • Anonymous
    Jan. 26, 2015
    I was on methotrexate for 10 long, devastating years. I took 8 tabs of 2.5 mgs once a week. Although doctors told me it was the cure to help my disease, behcets disease, it was only slowly killing me from the inside out. My disease was getting worse! You know it's sad how much faith we put into these doctors when a lot of them do not have good intentions. Methotrexate...
    RHMLucky777
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    I was on methotrexate for 10 long, devastating years. I took 8 tabs of 2.5 mgs once a week. Although doctors told me it was the cure to help my disease, behcets disease, it was only slowly killing me from the inside out. My disease was getting worse! You know it's sad how much faith we put into these doctors when a lot of them do not have good intentions. Methotrexate is chemotherapy. I do not have cancer, but if I had continued taking it there would be no doubt that I would get cancer in a couple years. Does it make sense to poison yourself back to health? No, it doesn't. Do you ladies really know what you're putting into your body? If it's not helping now, what makes you think it'll help 5 or 10 years later? I just turned 21. I had to quit my job and take this semester off because I can't function; I can barely move! I am such a strong woman because of everything I've been through but I was crying myself to sleep almost every night because of the pain! Anyways, I decided to take a different route. It sure in hell is not the easiest and I only recommend it to the strong because the weak will not survive this battle. About 2 months ago, I saw this holistic doctor. I already know some of you probably think they're quacks (I've read it all) but that's when your research comes in handy. Anyways this doctor took a sample of my blood and immediately put it under a microscope. He said my blood was one of the worse he's ever seen (said it was similar to his cancer patients) and said I had to move quickly. He told and showed me all the damage that was done inside my body from all the methotrexate I had previously consumed for the last 10 years. I then found the cause of why I always felt so tired, why my body was being attacked, why I could barely remember anything, and why I could barely lift myself out the shower/ out of bed. He didn't recommend me to stop all my meds at once but I'm stubborn and was petrified by the results and did so anyways. I stopped all the metho, all the 800 mg ibuprofen I took 3 times a day so I could move from point A to point B, I stopped the embril and humera that did not help my swelling, my arthritis, or the pain I endured daily! I quit cold turkey and I do NOT advise that to anyone!! The holistic doctor then gave me a diet that I have to stand by for the rest of my life which isn't bad because I rather be healthy and live a longer life. Anyways he gave me a pack of detoxing stuff like clear synergy and green synergy, and so much more. I have to admit detoxing has been one of my toughest battles. Detoxing results in pulling TEN years of POISON out of my body. Look your body is trying to tell you something. I knew something wasn't right with me THREE YEARS AGO just like you ladies know something's not right with you now! Metho is NOT good for you. My first 2 weeks of detoxing I was miserable. I felt so sick! I couldn't get out of bed. Your body definitely reacts and it wants to remove the toxins out of your body, and depending on the damage it could make you feel terrible for a little while. That's the hardest part; getting rid of 10 years of chemo..I mean methotrexate. This process is not a short one for me and I'm not even half way done but going through this is not only for my physical state. I have been eternally battling with myself the last 2 months of me detoxing. When going through this you need to give yourself time to rest physically, emotionally and mentally. You need to STAY AWAY FROM STRESS. I made a mistake in getting back into an abusive relationship and that was what caused a small portion of my depression. Also, you must believe in yourself! Have faith in God that he WILL get you better! Excerise lightly; they go hand in hand! EAT HEALTHY! You are what you eat and a lot of foods cause cancer! Be aware of your body! Take a look at your blood! Research! You have to want this! With this being said, I'm still going through hell and back with the detoxing and I had to take a slower approach because my body could not handle the detoxing like a normal/ healthy person could (know your limits). But just know I'm becoming more aware of myself... My mind, body, soul and spirit. It's only been 2 months and it will probably take a year or two for me to fully get the 10 years of poison out and to get healthy again but it is worth it. My health is worth it and so is yours. I hope I helped someone! And just know, THERE IS A WAY OUT OF YOUR MISSERY. Metho is not the answer to that! My diet consists of a diet similar to the Paleo diet. I cannot eat meat until I am finished with the clear synergy (the detoxifier). This diet and detox also helps you lose weight. The doc took a sample of my saliva and it showed that I am very acidic which is bad... A healthy person my age is at an alkaline state. So I have to be careful of acidic foods such as strawberries, lemons and oranges. I'm still tired and fatigue which lets me know my body is pulling toxins out still (that is normal for the beginning stage especially depending on how much damage metho has caused). My body is getting better (lesser lesions, boils, hives, memory loss, etc). I find it easier to move around a little more (I do still feel pain but not as bad). This is a very slow process because it's the natural way of healing so you need patience and endurance! I did invest in a medical card. I use to hate weed (it's still not my favorite) but when you quit all your pain killer meds like ibuprofen you begin to feel the real pain that was being numb by poison on a daily basis, weed seems like the best choice out there and it's an healthier approach (DO YOUR RESEARCH)! It took me a while to get use to and I still am getting use to it. There are many ways that you can intake weed. I only take it when needed too btw. Anyways good luck to whoever reads this! Believe in yourself and just know you are not crazy. You know your body better than anyone else (including useless doctors). -anonymous
    • mariacapio1956
      Apr. 09, 2015

      I read your story and want to thank you. Just today I was trying to convince my daughter to stop taking methotrexate. My beautiful daughter no longer looks or acts like herself. Her beautiful blond hair is niw brittle and course and breaks off. She gets white patche's on her tongue she swells up she's put on a lot of weight she's confused and vision gets blurred....

      RHMLucky777

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      I read your story and want to thank you. Just today I was trying to convince my daughter to stop taking methotrexate. My beautiful daughter no longer looks or acts like herself. Her beautiful blond hair is niw brittle and course and breaks off. She gets white patche's on her tongue she swells up she's put on a lot of weight she's confused and vision gets blurred. Now because of these symptoms they diagnosed her with bachets. I'm so afraid for her. She has a beautiful 3 year old child and now the husband filed for divorce because he can't hack it. Please let me know what dr you went to to help you get off this dreadful mediation. Thank you

  • dawn
    Sep. 08, 2014

    Hi Everyone i have been on methotrexate injections for 16 weeks now & i dont no how long i can stay on it,i feel sick all the time iv no energy,my eyes look awful,it comes to something when you put full make up on & you dont look as if you have any on....also everything hurts soo bad,im only on 15mls,the night i iinject myself i lay on the bed &...

    RHMLucky777

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    Hi Everyone i have been on methotrexate injections for 16 weeks now & i dont no how long i can stay on it,i feel sick all the time iv no energy,my eyes look awful,it comes to something when you put full make up on & you dont look as if you have any on....also everything hurts soo bad,im only on 15mls,the night i iinject myself i lay on the bed & i just melt,i feel terrible,im getting married at the end of the yr but the photos would look awful so i think im going to cancel it

    i just want to no if i was to just stop the injections would i suffer with awful side affects like withdrawl

    thank you

  • Anonymous
    mama
    Aug. 16, 2012

    I have been taking methotrexate for 15 years, in the beginning I took it on tues. and on Thurs. I had terrible migraines and felt sick.  My rhume. started weaning me off a year ago, I am down to 2.5 mil a week now, BUT I am so emotional, especially on Thursdays, is it just me, or has my body gotten so used to a drastic change on Thurs. that I am still...

    RHMLucky777

    Read More

    I have been taking methotrexate for 15 years, in the beginning I took it on tues. and on Thurs. I had terrible migraines and felt sick.  My rhume. started weaning me off a year ago, I am down to 2.5 mil a week now, BUT I am so emotional, especially on Thursdays, is it just me, or has my body gotten so used to a drastic change on Thurs. that I am still dealing with it even though I don't take that amount anymore?

      I am going through a family situation now too that doesn't help.  Does anyone know if that is normal for someone weaning off of methotrexate?  Mama

    • dawn
      Sep. 08, 2014

      Hi Mama

      i feel quite scared too i didnt no that we would have to be weaned off the injections,i guess iv been quite naive about it really,i feel much the same as you...im sick of feeling like this....i feel rough as hell the day before the injection is due & the day i have it well im so unbelievably tired for that day & up to 2 days after ....i would...

      RHMLucky777

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      Hi Mama

      i feel quite scared too i didnt no that we would have to be weaned off the injections,i guess iv been quite naive about it really,i feel much the same as you...im sick of feeling like this....i feel rough as hell the day before the injection is due & the day i have it well im so unbelievably tired for that day & up to 2 days after ....i would rather go back to the sunbeds than this

      look after your self Mama

      Dawn

    • erika.hamilton85
      May. 08, 2015
      I am currently weening off mine and i take mine on a friday - i definately am more emotional and painful on a friday evening/saturday morning than anyone should be! i was on 25mg, now i'm on 5mg and it's really hard just know i know EXACTLY what your feeling! my specialist says that emotions "aren't affect by metho" which i think is a total lie! we are doing...
      RHMLucky777
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      I am currently weening off mine and i take mine on a friday - i definately am more emotional and painful on a friday evening/saturday morning than anyone should be! i was on 25mg, now i'm on 5mg and it's really hard just know i know EXACTLY what your feeling! my specialist says that emotions "aren't affect by metho" which i think is a total lie! we are doing great - keep it up!
  • Anonymous
    mama
    Aug. 16, 2012

    I have been taking methotrexate for 15 years, in the beginning I took it on tues. and on Thurs. I had terrible migraines and felt sick.  My rhume. started weaning me off a year ago, I am down to 2.5 mil a week now, BUT I am so emotional, especially on Thursdays, is it just me, or has my body gotten so used to a drastic change on Thurs. that I am still...

    RHMLucky777

    Read More

    I have been taking methotrexate for 15 years, in the beginning I took it on tues. and on Thurs. I had terrible migraines and felt sick.  My rhume. started weaning me off a year ago, I am down to 2.5 mil a week now, BUT I am so emotional, especially on Thursdays, is it just me, or has my body gotten so used to a drastic change on Thurs. that I am still dealing with it even though I don't take that amount anymore?

      I am going through a family situation now too that doesn't help.  Does anyone know if that is normal for someone weaning off of methotrexate?  Mama

  • Jeanne
    Dec. 14, 2009

    And I can't forget to mention the terrible effect methotrexate had on my hormones.  I was emotionally on a roller coaster with nasty sores all over my face.  I had to come off this medicine one time before and it was horrible!!  If you come off the medicine please try not to come off all at once.  Ease yourself off if you can if it's...

    RHMLucky777

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    And I can't forget to mention the terrible effect methotrexate had on my hormones.  I was emotionally on a roller coaster with nasty sores all over my face.  I had to come off this medicine one time before and it was horrible!!  If you come off the medicine please try not to come off all at once.  Ease yourself off if you can if it's affecting you emotionally like it did me.  Trust me! :-) good luck

    • Anonymous
      Anonymous
      Jan. 04, 2010

      Thank you to everyone for posting.  I came here looking to see if I could stop mtx without side effects too.  I was diagnosed with RA about 6 months ago.  I'm a middle-aged female.

       

      I was started at 12, then up tp 15 of mtx.  No nausea or anything and it's helped calm the flares,but I don't sleep well,feel like I'm on steroids...

      RHMLucky777

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      Thank you to everyone for posting.  I came here looking to see if I could stop mtx without side effects too.  I was diagnosed with RA about 6 months ago.  I'm a middle-aged female.

       

      I was started at 12, then up tp 15 of mtx.  No nausea or anything and it's helped calm the flares,but I don't sleep well,feel like I'm on steroids or something,all pumped up. 

       

      I'm wanting to deal with the stressors,make changes in my life and try to be healthy that way.  I know I got sick because of stress. I'm female and middle-aged.  I know it's a real disease,but I have to wonder if changes in living,diet,etc,could be just as effective as medication. I was working a job I hated and other negative things going on in my life when it started.

       

      I will consult with my doctor also,but I've had it with this illness. 

       

      I'll let you know if it works.  Good luck to everyone. 

       

       

    • Anonymous
      Carol
      Nov. 24, 2010

      Well I don't know about you,but I am stopping..(cold turkey) I've been on Meth for about 3 months now, and now found out I have Megoblastic Anemia from it. Well I will not tolerate the side affects no more (mine were sleeping 2 days straight after taking it, and naseua also)   Also they don't tell you about another option for treatment either , it's...

      RHMLucky777

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      Well I don't know about you,but I am stopping..(cold turkey) I've been on Meth for about 3 months now, and now found out I have Megoblastic Anemia from it. Well I will not tolerate the side affects no more (mine were sleeping 2 days straight after taking it, and naseua also)   Also they don't tell you about another option for treatment either , it's been around for 50 yrs. And alot of people are living normal lives..including remission from this RA.. Called----Antibiotic Protocol  (pioneered by Thomas McPhearson Brown. Do your homework and arm yourself with knowledge on this treatment. Most mainstreamed Dr's  won't use it, or deny its existance. I've done months of research on looking for alternative treatment, other than what they only want you to know. And found this, there are Dr's out there who will treat you, you just have to ask. My appt is on Feb 8th 2011.. So i know i must have a 4-8 week washout from the Methotrexate anyway.

         Like I said, look up the Road Back Foundation website, that is still keeping this AP treatment alive. Along with Dr. Mercola, and Dr Gabe Mirkin..

    • Monica
      Mar. 16, 2012

      Diet changes also make a big impact.  We did the GAPS diet withmy son and once we found the foods that were causing him problems we saw huge improvement.  We then started homeopathy and he is doing awesome!

    • agnes
      Nov. 24, 2010

      Follow-up to comment from before-  I am still on it.  I went off of it and flared and could hardly walk from the swelling and pain in my feet. Limping home from a day at the ER through the take-out line at Panda Express. 

       

      I'm going to try reducing the pills from 8 to 7 then to 6,as my doctor recomended.  Every...

      RHMLucky777

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      Follow-up to comment from before-  I am still on it.  I went off of it and flared and could hardly walk from the swelling and pain in my feet. Limping home from a day at the ER through the take-out line at Panda Express. 

       

      I'm going to try reducing the pills from 8 to 7 then to 6,as my doctor recomended.  Every night no matter what the weather is I sleep in light clothing with the AC running and a fan on.  Permamnent menopause?

      Other then that and feeling tired generally,my joints are pretty good, can do anything I want to really... just the fatigue is a problem.

       

      I almost wish I looked sicker and people would not expect so much. They think I'm being a diva if I don't want to go somewhere. I appear normal but want to be carried around by servants. I've seen every moive worth watching.

       

      I'm on Enbrel and mtx,folic acid. 

    • Carole Wilk
      Dec. 25, 2010

      I was diagnosed with RA Summer of 2009.  I was put on Meth once a week 4 tabs pill form.  I too was ill while taking.  Losing hair, eyebrows, and marks on my face. ( dark spots )   Then Rheumy increased to 6 the Meth as I was having terrible neck and shoulder pain.  Took that for quite awhile.  Then told him I wanted to reduce...

      RHMLucky777

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      I was diagnosed with RA Summer of 2009.  I was put on Meth once a week 4 tabs pill form.  I too was ill while taking.  Losing hair, eyebrows, and marks on my face. ( dark spots )   Then Rheumy increased to 6 the Meth as I was having terrible neck and shoulder pain.  Took that for quite awhile.  Then told him I wanted to reduce the meth and I went down to 5....

      I was told not to drink ever.  But every once in awhile I had a drink or wine.  On Dec 4, 2010 had some wine and the next day my legs broke out.  Thought it was the sulphites in the wine.  Then took the meth on Monday the 6th of Dec...my legs were soooooooooo broken out with a rash.  I called the Rheumy who is far away from me...and all I ever talk to is the nurse (not right away)  like at the end of the day when they are finished with patients.  She told me I shouldn't drink!   She told me she would call me the next day to see how I was.  NOT the Rheumy!!!!   I never really think talking to a third party is going to get the story straight.  She calls on Tuesday and says stop taking the meth and see if your legs clear up.  I told her I already took it!   So she said to me don't take it next week and then call me and let me know if your legs clear up.  I told her I was going away for a week and that I would be back on the 17th of Dec.  My legs cleared up right away....and I never bothered to call her!   I wanted to talk to the Dr.   They have note even called to see how I am feeling!!!!  It is Dec 25 right now.  I have not taken the meth this week either.  OHHHHHHHHHHHHHH I feel sooooooooooooo much better.  My neck and shoulder still hurt, but not too bad where I can stand it.  I do not intend to take meth....but I do need to find another Dr...and I am in the process of doing so.   I have a problem with other drugs.  I am allergic to cortisone, and just about everything.  My body does not tolerate drugs at all.  Antibiotics either!!!  So when the next episode happens...I can be in real trouble.  On meth I was not able to have surgery either...because of the auto-immune disease. My Sed Rate is high...and just don't know how to get it down.   Carole 

  • Jeanne
    Dec. 14, 2009

    Oh gosh I'm the same way.  I just got off the methotrexate.  First I was taking the methotrexate orally and I kept vomiting.  Then earlier this week I tried the methotrexate through injection and oh boy!  This is the first day I've felt halfway normal since last Monday.  I spent the whole week in bed vomiting all week.  It got...

    RHMLucky777

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    Oh gosh I'm the same way.  I just got off the methotrexate.  First I was taking the methotrexate orally and I kept vomiting.  Then earlier this week I tried the methotrexate through injection and oh boy!  This is the first day I've felt halfway normal since last Monday.  I spent the whole week in bed vomiting all week.  It got so bad I had to go to the ER because I couldn't keep any fluids or food down.  The medicine for me at first was my miracle-I was almost in complete remission.  But then all of a sudden my body has no tolerance for it at all.  I'll never ever take that medicine again.  For everyone it's helped I wish you all so much luck!  I'm sorry it didn't work out better for me but I know for alot of others it's been great.

    • mom of six
      Jun. 07, 2011

      Boy do i ever know where you are coming from!i started off on oral meds, no change in symptoms have been on injections for 10 weeks, during this time  i have experienced nothing good at all symptoms range from night sweats to nausea , recently i developed multiple infections in upper respitory tract, 3 weeks later  despite antibiotics, nebulizers...

      RHMLucky777

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      Boy do i ever know where you are coming from!i started off on oral meds, no change in symptoms have been on injections for 10 weeks, during this time  i have experienced nothing good at all symptoms range from night sweats to nausea , recently i developed multiple infections in upper respitory tract, 3 weeks later  despite antibiotics, nebulizers and puffers i still have symptoms, i quit the methotrexate a week ago and am feeling better already, for me it's a case of do i put up with the pain from Ra or become a semi invalid due to side effects .

      I hope you feel better soon.

  • Anonymous
    kim
    Nov. 19, 2009

    Alright, heres my say. Im 17 yeas old, i ws diagnosed with ruematoid arthritis a year and a half ago. id been on mtx and prednisone for the first year. i was up to 20 mg of mtx. i tapered off the prednisone, and im completely off of it. but my dr. told me i had to wait till i was 18 to try tapering off of my mtx. i was sick of the side effects, and...

    RHMLucky777

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    Alright, heres my say. Im 17 yeas old, i ws diagnosed with ruematoid arthritis a year and a half ago. id been on mtx and prednisone for the first year. i was up to 20 mg of mtx. i tapered off the prednisone, and im completely off of it. but my dr. told me i had to wait till i was 18 to try tapering off of my mtx. i was sick of the side effects, and just thinking about swallowing the drugs makes me ill. one day about 4 months ago, i decided to just stop taking it. ive had no flares since. altho this probably isnt recomended, it worked for me.

    • amy's compassion
      Nov. 19, 2009

      You listened to your own body and made a good decision to stop the mtx.  I think each of us has to do what we feel is best in our situation. What might work for one wont necessarily work for another. I think it's great you got yourself off everything in your own way and it's been a good outcome. Congrats.

  • Linda
    Apr. 14, 2009

    I have been on 10 mg for yrs and had no ill effects, so maybe your rheumy can lower your dose.  Mine just increased mine to 15 mg.  I took it yesterday and am ok so far, just a little tired.  I stopped and got some nausea med on the way home but didn't need it.  My doctor prescribed Provigil to take for the fatigue.  I also take Orencia...

    RHMLucky777

    Read More

    I have been on 10 mg for yrs and had no ill effects, so maybe your rheumy can lower your dose.  Mine just increased mine to 15 mg.  I took it yesterday and am ok so far, just a little tired.  I stopped and got some nausea med on the way home but didn't need it.  My doctor prescribed Provigil to take for the fatigue.  I also take Orencia IV but my sed rate is still 95.  I don't think I'm getting better but I'm not any worse.  :)

    Hang in there and good luck!

     

    Linda

  • Tisha
    Apr. 03, 2009

    I was told by my Dr. that it is very dangerous to just quit metho. I have been on it foe 8 months so I know how your feeling..I'm also fatigued the day of I'm mostly in the bed. Everyday after that , is just slowly allowing me to move a little more..then here comes tuesday again ! Then the cycle starts over..I take 6 tabs every tuesday..my Dr. told me to up...

    RHMLucky777

    Read More

    I was told by my Dr. that it is very dangerous to just quit metho. I have been on it foe 8 months so I know how your feeling..I'm also fatigued the day of I'm mostly in the bed. Everyday after that , is just slowly allowing me to move a little more..then here comes tuesday again ! Then the cycle starts over..I take 6 tabs every tuesday..my Dr. told me to up it to 8 tabs , but I got so sick and vomiting the next week I took 6 and told him I cannot do the 8..I also take a low dose of predizone 5mg every morn to keep the swelling out of the joints..thats what causes the pain..Since I started the predisone I don't hurt in my joints as bad. The Mexotrexate is only for slowing down the RA that is attacking your joints and eating away at your joints...So if you stop it, then you will have a relasp that can cause immense damage to your joints and will make it harder to try to get it into re-mission . I thought the same too..I wanted off.!But I also want to be able to walk and not be in a wheelchair ! By the way I take 15mg per week..At first I bought Immitrol for nausea and took it 30 min before taking my pills and it works..But I don't need it hardly anymore. Hope this helps!

     

    Tisha in N.M.

    • amy's compassion
      Apr. 03, 2009

      Hi Tish, thanks for your post - I didn't go off of the methotrexate without my rheumy's approval. He said to stop it completely and start on the Arava, which I haven't yet started. When I finally said "enough!", I put a call into him and he said to just stop. No problems at all and it's been more than a week now. Everyone reacts differently, as you say. I will...

      RHMLucky777

      Read More

      Hi Tish, thanks for your post - I didn't go off of the methotrexate without my rheumy's approval. He said to stop it completely and start on the Arava, which I haven't yet started. When I finally said "enough!", I put a call into him and he said to just stop. No problems at all and it's been more than a week now. Everyone reacts differently, as you say. I will continue with the meds because of what you mention - joint damage. I still take a small amount of prednisone and plaquenil for now. But you bring up an excellent point - don't just discontinue any of these meds without consulting with your dr. first. Thanks again and hope your ra is managing well. Blessings.

    • dawn
      Sep. 08, 2014

      im on methotrexate for arthritis & psoriasis

      i found that everything hurts so much more than before,my hands are really bad but my proriasis has improved slightly,but has started to return in places,theres no way im increasing it,i really want to come off so i can feel normal again

      all the best

      dawn

  • TNcreativelady
    Mar. 23, 2009

    Hi,

    I tried methotrexate for 7 months by injections once a week and was horribly ill from it to the point I was in the bed from Friday after work when I took the injection from the doctor until Monday morning. I explained this to the rheumy I had at the time. He refused to consider other possiblilities (granted it was 1994 &...

    RHMLucky777

    Read More

    Hi,

    I tried methotrexate for 7 months by injections once a week and was horribly ill from it to the point I was in the bed from Friday after work when I took the injection from the doctor until Monday morning. I explained this to the rheumy I had at the time. He refused to consider other possiblilities (granted it was 1994 & there were not as many options). However, when he said to me"If you want to be my patient, you will take it!" My reply? Guess we are done then! I stopped it immediately and found another rheumy. No effects from stopping aburptly, other than relief!

     

    Later I found out that the reason I was so incapacitated (extreme fatigue and nausea) from the drug was that I had had Hep C and hadn't know it, so the drug was just too hard on my liver. I still have to be careful of what I take and the impact on my liver.

     

    I do not agree as one commenter stated that you should keep at it as it is not as large a dose as some cancer patients. Bottomline I believe you should listen to your body. No one else but you should ever tell you what to do, listen for options and speak up when it is not working...be proactive but don't panic. I have found that the joint damage comes slowly.

     

    I was diagnosed in 1993 when my spouse of 24 years left. I became a single parent of three teenage boys without any support from family, in a new community and had a horrible boss. It was tough but it is amazing what one can handle. Keep focused on creating a healthy, happy life and finding blessings and joys in what is around you. You will get through this one step/day at a time.

     

    Diana

     

     

     

     

    • dawn
      Sep. 08, 2014

      you have had a really rough time from what you have said,i really hope things are better for you now

      you have given me hope about just stopping the injections im due to inject on wensday but i just cant anymore im so fed up of feeling so ill...

      thank you xx

  • TNcreativelady
    Mar. 23, 2009

    Hi,

    I tried methotrexate for 7 months by injections once a week and was horribly ill from it to the point I was in the bed from Friday after work when I took the injection from the doctor until Monday morning. I explained this to the rheumy I had at the time. He refused to consider other possiblilities (granted it was 1994 &...

    RHMLucky777

    Read More

    Hi,

    I tried methotrexate for 7 months by injections once a week and was horribly ill from it to the point I was in the bed from Friday after work when I took the injection from the doctor until Monday morning. I explained this to the rheumy I had at the time. He refused to consider other possiblilities (granted it was 1994 & there were not as many options). However, when he said to me"If you want to be my patient, you will take it!" My reply? Guess we are done then! I stopped it immediately and found another rheumy. No effects from stopping aburptly, other than relief!

     

    Later I found out that the reason I was so incapicatated (extreme fatigue and nausea) from the drug was that I had had Hep C and hadn't know it, so the drug was just too hard on my liver. I still have to be careful of what I take and the impact on my liver.

     

    I do not agree as one commenter stated that you should keep at it as it is not as large a dose as some cancer patients. Bottomline I believe you should listen to your body. No one else but you should ever tell you what to do, listen for options and speak up when it is not working...be proactive but don't panic. I have found that the joint damage comes slowly.

     

    I was diagnosed in 1993 when my spouse of 24 years left. I became a single parent of three teenage boys without any support from family, in a new community and had a horrible boss. It was tough but it is amazing what one can handle. Keep focused on creating a healthy, happy life and finding blessings and joys in what is around you. You will get through this one step/day at a time.

     

    Diana

     

     

     

     

    • colleen
      Mar. 30, 2009

      Amen!! I have heard sooo many bad things about methotrexate, i wont go on it. My Drs want to try becasue i have bad reactions to EVERYTHING else. I have way too many bad reactions and allergies and have problems with my eyes , stomach, and reactions so he is putting me back on prednisone again. i cant take all the other injectables. i also have 3 other people...

      RHMLucky777

      Read More

      Amen!! I have heard sooo many bad things about methotrexate, i wont go on it. My Drs want to try becasue i have bad reactions to EVERYTHING else. I have way too many bad reactions and allergies and have problems with my eyes , stomach, and reactions so he is putting me back on prednisone again. i cant take all the other injectables. i also have 3 other people i know who had to go off it also because it ruines their liver.  So listen to your body!! i hate the pain i am in everyday 24/7 but cant stomach the sickness it causes and the liver problems. i know there are some people who do well on it but they must be normal with no other problems?? colleen

    • TNcreativelady
      Mar. 31, 2009

      Colleen,

      I read an article the other day that stated that even with methotrexate and the other biologics that came out in the past 9-10 years, RA suffers do not have substantially better results.

       

      I have tried them all it seems. I'm in a funk about it...wanting to have good quality of life but wondering whether that is possible when so many reactions...

      RHMLucky777

      Read More

      Colleen,

      I read an article the other day that stated that even with methotrexate and the other biologics that came out in the past 9-10 years, RA suffers do not have substantially better results.

       

      I have tried them all it seems. I'm in a funk about it...wanting to have good quality of life but wondering whether that is possible when so many reactions and liver damage come along with these utterly expensive drugs.

       

      Personally I'm at a lose.  Family and friends are having a hard time understanding my present position not to take anything. Everyone has an opinion. Ultimately, it's mine to make and for now I'm saying no to the drugs. I do reserve the right to change my mind.

      Blessings to you.

      Diana

    • colleen
      Jun. 19, 2010

      thanks. yes i agree, noone understands and its our own choice. we turn to docs for help and guidance, doesnt mean we have to do everything they say. i have had some drs who get nasty when you dont do what they want. i have had some bad ones this past year. pulmy dr the worst. so i am at a point to do nothing right now. who knows maybe next week i will feel...

      RHMLucky777

      Read More

      thanks. yes i agree, noone understands and its our own choice. we turn to docs for help and guidance, doesnt mean we have to do everything they say. i have had some drs who get nasty when you dont do what they want. i have had some bad ones this past year. pulmy dr the worst. so i am at a point to do nothing right now. who knows maybe next week i will feel different. its a daily struggle and in much pain even with meds but am not ready to take the meds that slow progress yet. i have them sitting here too. i guess i can function somewhat and have really bad days most of the time but have a good supportting hubby and kids. i keep busy as i can making jewelry. thats my therapy. and yes its funny cause my hands are bad, have good tools with big grips!! haha. i just know too many people that have had bad reactions or one friend passed away and that scared me. i am sure there are many people who have good reactions and no problems with meds but i am one that has problems with evey drug, period! so its an indevidual choice. stay in touch, colleen

    • TNcreativelady
      Jun. 20, 2010

      Hi Colleen

      It's nice to have an on-going conversation with some one who understands. Felt like the post was a black hole for a long time...this is great.

       

      So I lasted with no drugs until the middle of April when I was no longer able to do the daily living activities by myself. I said 'uncle' and got a shot or a long acting cortisone-based drug. Not great...

      RHMLucky777

      Read More

      Hi Colleen

      It's nice to have an on-going conversation with some one who understands. Felt like the post was a black hole for a long time...this is great.

       

      So I lasted with no drugs until the middle of April when I was no longer able to do the daily living activities by myself. I said 'uncle' and got a shot or a long acting cortisone-based drug. Not great for the bones or the blood sugar but...

       

      I also have adrenal insufficiency problems which further complicates things and is why I need cortisone too. so I'm taking daily low dose hydrocortisone by mouth (not prednisone) and getting long acting shots every 2 months.

       

      My husband's reaction the day after the shot was "yes!, she's back!"

       

      So I'm still trying after all these years (like the Everyready bunny!) to find balance with quality of life, cost of meds and their reactions on my body. It is a tough nut to crack but like one dr says, I'm stubborn. He didn't mean it in a positive manner either but it is one of those traits that has benefits if you use it in a positive rather than a negative way.

       

      I should note that I'm feeling more hopeful than my March note...comes with less pain.

       

      Hang in there :)  Diana

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    • Anonymous
      Anonymous
      Jun. 20, 2010

      funny, thats what everyone says abt me9stubborn) Drs too. but they know me by now and kinda accept it but when i come in crying aying i can take it no more, they try to get me to try something new. unfortunatly, medicare doesnt cover a lot of the drugs(i am disabled) and i cannot afford the copays for them(dmards). and have had bad reactions to a few. i am...

      RHMLucky777

      Read More

      funny, thats what everyone says abt me9stubborn) Drs too. but they know me by now and kinda accept it but when i come in crying aying i can take it no more, they try to get me to try something new. unfortunatly, medicare doesnt cover a lot of the drugs(i am disabled) and i cannot afford the copays for them(dmards). and have had bad reactions to a few. i am stubborn abt my body. good to some but not to all. it keeps me going and thats positive. people say you look good and i say, amazing what a little make up and curling my hair does?? or i try to get out and about because i have always been very active and they think i feel ok(friends) its really madning to me, they truly do not get it. my hubby is only one with exceptiion of good friend whos hubby died from complications of RA a little over a year ago. the meds caused lymphoma, and he was a good friend. so thats the one lady who does get it, she has helped me a lot to know i am not alone and she boosts me up when i need it most. my hubby also says people dont get it. so its a silent disease i feel sometimes because of it. what do people expect me to do? walk around and look like death? i have some pride in what i look like. even if i feel like it. i wish i could go on tv with others and tell a story to everyone about it.. I also have lupus so it makes it double hard on mt body. along with colon problems, previous heart attack, and Drs say organ involvement(short of breath) who knows at this point. so i am not sure if i should try the meds or not. i would love a natural way instead. i was on seroids for years for colon and it caused cataracts in both eyes. had new lenses 2 yrs ago but eyes are getting worse again. UGH! i feel like a walking mess. haha. I do have a great God who helps me through the day and am thankful for great church home group i go to weekly. i look at it this way, i have many blessings in my life and some bad stuff(health). cant have it all i guess so i try to focus on the good things on good days and bad days, well i have bad days, thats all i can say. i hope the injections keep working for you, it seems to be not a bad choice for now compared to the other drugs out there. stay in touch. : )

    • TNcreativelady
      Jun. 20, 2010

      Hi again Colleen, a nice celtic name ... I have the celtic roots myself!

       

      Colon problems too-diagnosed with that first a long, long time ago... And at first they said lupus with me as well but the second test was not positive for ANA antibodies.

       

      I was finally diagnosed after multiple huge stressors in my life, although I suspect I had it for many...

      RHMLucky777

      Read More

      Hi again Colleen, a nice celtic name ... I have the celtic roots myself!

       

      Colon problems too-diagnosed with that first a long, long time ago... And at first they said lupus with me as well but the second test was not positive for ANA antibodies.

       

      I was finally diagnosed after multiple huge stressors in my life, although I suspect I had it for many years.

       

      I agree, people do not get it. Folks tell me I look so young and vital, I'm 60 now but inside....wow! The thing is I never know what to say when they ask how I'm doing.

       

      Do I respond with the facts and sound like a complainer?

      Do I gloss over it and not let them know how much pain I have and not use the opportunity to educate them?

       

      I am also disabled since 2003. It's is in every joint, including most of my spine, except for my right jaw. I have 12 screws and 4 rods in my spine too.  With a flair, I cannot open my mouth enough to eat.

       

      Everyone thinks it is like their osteoarthritis where I live in an active senior community. I have that too from being a ballet dancer in my youth and so I am used to pain, but honest, when it gets the whole body at the same time, it is overwhelming...and yet I hate to sound negative and as a complainer.  Most of the time, I seclude myself until I feel better. I have given up a lot of activities in the neighborhood as a result.

       

      Do you have alot of problems with infections?  I do especially when my shot is wearing off...

      keep in touch

       

      Diana

       

       

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    • colleen
      Jun. 21, 2010

      hi. no you dont sound like complainer. i get it. i hide it well most days, that what people dont get, do ya really want to know how i feel? or sugar coat it? i feel awful every day, period.

      yes i have hadd shoulder sx in oct and other one needs it too but it was too painful so no as of now. my whole spine is effected also and all my joints. you just learn to...

      RHMLucky777

      Read More

      hi. no you dont sound like complainer. i get it. i hide it well most days, that what people dont get, do ya really want to know how i feel? or sugar coat it? i feel awful every day, period.

      yes i have hadd shoulder sx in oct and other one needs it too but it was too painful so no as of now. my whole spine is effected also and all my joints. you just learn to get through it somehow to function daily or we would be in bed every day!! it forces you to get out of bed(that is a hard thing too). colon problems x 20yrs plus. i need to get scoped too but hate the prep so i keep putting it off. i really feel a tug to get checked. mom just died and had ruptured colon, thats how it all started. and i currently have issues with colon just not bleeding so i put it off. keep getting eyes checked because of the meds you are on. i had bad cataracts from steroids over the yrs. i do have lupus and RA. and colon. they say i also have crest syndrome. so they say. had issues with heart and lungs past months. on meds for imflammation in lungs, helps a little. well enough for now, have to rest, just came down with cold,sore throat. UGH. and i need to go. nice chatting. stay in touch(i am 48yrs old)

    • Anonymous
      jocelyn
      May. 29, 2012

      Hi ladies.  I'm new to this conversation but wanted to see if I may ask a question.  What do yall have?

       

      I have Polymyositis, Systemmic Lupas and Reynaud's Syndrome since December 2011 - roughly 6 months now.

       

      I am now being told something completely different from another Rheumatologist, so I'm going for a 3rd and last opinion now.

       ...

      RHMLucky777

      Read More

      Hi ladies.  I'm new to this conversation but wanted to see if I may ask a question.  What do yall have?

       

      I have Polymyositis, Systemmic Lupas and Reynaud's Syndrome since December 2011 - roughly 6 months now.

       

      I am now being told something completely different from another Rheumatologist, so I'm going for a 3rd and last opinion now.

       

      One says I have Polymyositis, primary diease.  The other says my lab work is perfect, get off the methotrexate, prednizone, etc. as I'm in remission and the drugs are what's dragging me down and making me sick.  The other wants to increase the metho and by July 2nd, if I still feel like it doesn't work (3 months later), then move to Infusion.

       

      I read the biopsy report from December and it didn't say "inflammation" of the muscles which IS Polymyositis.

       

      Thank you ahead for your response,

      Jocelyn

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

       

    • Anonymous
      Anonymous
      Jun. 18, 2010

      any one try accupuncture???

    • Anonymous
      athruzgal
      Mar. 08, 2012

      I have used accupuncture for over ten years.  It is very effective, if you find a really good accupunturist and can afford the time and money to receive 2 to 3 treatments a week for a month. Then you need a once a week maintenance and later maybe once a month as you feel the need.  My accupuncturist is wonderful and her staff is very loving and...

      RHMLucky777

      Read More

      I have used accupuncture for over ten years.  It is very effective, if you find a really good accupunturist and can afford the time and money to receive 2 to 3 treatments a week for a month. Then you need a once a week maintenance and later maybe once a month as you feel the need.  My accupuncturist is wonderful and her staff is very loving and empathetic.  Be sure you find the right one for you.  I can't really afford the time or money to get treated like I need, but when I can it makes a world of difference in pain,well-being and energy.

    • Anonymous
      Anonymous
      Jun. 18, 2010

      any one try accupuncture???

    • Anonymous
      kat
      May. 27, 2012

      I once decided to go off all meds and cure myself the natural way. I found this lady by the name of Margie Garrison who wrote the book I cured my arthiritis you can too. I used her methods and got to know her personally and lost about 100 lbs in a year and the only pain I felt was when I ran or tried to do sports because I was not in shape. But I have since...

      RHMLucky777

      Read More

      I once decided to go off all meds and cure myself the natural way. I found this lady by the name of Margie Garrison who wrote the book I cured my arthiritis you can too. I used her methods and got to know her personally and lost about 100 lbs in a year and the only pain I felt was when I ran or tried to do sports because I was not in shape. But I have since gone back on medicine because I went back to unhealthy eating. I am in the process of dropping the meds and going back to mostly organic and such I'll let you know how it goes. I miss those days I had when I followed this lady's advise

  • MsFluttersBie
    Mar. 22, 2009

    When you say sicker is it a lung or sinus infection? Are you prone to them?

    By sick do you mean the fatigue and numbness are getting worse? or the nausia and dizziness?  Or does it feel like a cold or flu that won't go away?  let me know?

  • MsFluttersBie
    Mar. 22, 2009

    Patience you have only given it five weeks, the side effects will taper off, get some marijuana, don't worry about eating a meal, snack on crackers and chicken soup, drink lots of water, and give the Kemotherapy a chance to work! Remember you don not have cancer and the level you are taking dosent compare to te extensive amount that you would...

    RHMLucky777

    Read More

    Patience you have only given it five weeks, the side effects will taper off, get some marijuana, don't worry about eating a meal, snack on crackers and chicken soup, drink lots of water, and give the Kemotherapy a chance to work! Remember you don not have cancer and the level you are taking dosent compare to te extensive amount that you would have to take if you were Fighting Cancer!

     

    My Black lab had got hit by a car and had brain swelling, she after recovering had seizures, the first three weeks of taking Phenobarbitual, She couldn't walk and was lethargic, listless, then her body addapted to the chemical now she runs and plays like she did before, so give your body time to addapt to the chemical that will taper thee agressiveness of your ammune system. 

     

     

    I Love Ya Girl! Hang in there! The dizziness and nausia are the Methotrexate, but the  fatigue and numbness are part of having RA and something you will learn to live with, Yoga, stretching, jacuzzi, increase ciruclation and that can eleviate the numbness,  High vitamin and mineral intake with diet and exercise will eleviate the fatigue.  Even when you feel too tired to move push your self to swim or walk, excercise makes your body produce (endorphins) Natures Crack!  Love You, Till Later, P.L.U.R.

     

     

     

     

     

     

     

     

     

        

    • amy's compassion
      Mar. 22, 2009

      I know, you're right about only giving it five weeks but it's making me so sick. Every week is worse. The RA causes all of us to have a certain amount of fatigue but this isn't the RA - I'm fine on Monday through Thursday until I take the Metho. Then it's like I got hit by some sort of deranged truck. I have dry heaves, too. And my fingertips feel like cotton...

      RHMLucky777

      Read More

      I know, you're right about only giving it five weeks but it's making me so sick. Every week is worse. The RA causes all of us to have a certain amount of fatigue but this isn't the RA - I'm fine on Monday through Thursday until I take the Metho. Then it's like I got hit by some sort of deranged truck. I have dry heaves, too. And my fingertips feel like cotton balls. I just don't see the point now because I felt a lot better before I started this stuff. Today was better than Thursday so tomorrow will be better, too. I just can't tolerate this chemical. ugh. Thanks for your caring and you are awesome girl. ---Amy

    • MsFluttersBie
      Mar. 24, 2009

      Well Then Definately stop taking it! I think Sometimes living with RA is "Better" HAHA! than the Crazy Chemicals and their Crazy side effects! Well Till Later Take Good Care!

      Be Positive and "Every Little Thing Is Gonna Be Alright" Love You!   P.L.U.R.

    • amy's compassion
      Mar. 24, 2009

      Okay I've had enough of this methotrexate crap. My rheumy wants me to stop, too. He prescribed something else. I just want to detox. RA may be the pits but some meds are even worse. You are sooo right that "every little thing is gonna be alright." Be good, my friend....amy

  • bj in pain everyday
    Mar. 21, 2009

    Amy,

     

    I had to stop MTX as it did the same or me as well. I could not live with it as well. Not only did it help my joints, but at the same time it destroyed my immune system. I had pneumonia 3 times and took MXT for over 6 months. It was because of this that I finally gave up on my bad rheumy and got a new guy. MTX is not the only drug. Please make...

    RHMLucky777

    Read More

    Amy,

     

    I had to stop MTX as it did the same or me as well. I could not live with it as well. Not only did it help my joints, but at the same time it destroyed my immune system. I had pneumonia 3 times and took MXT for over 6 months. It was because of this that I finally gave up on my bad rheumy and got a new guy. MTX is not the only drug. Please make a appointment now and speak with your rheumy that you simply cannot take this drug. Ask for other options. Make sure you are drinking plenty of water, and try some antacid, pepto helped me with nausea as well as alka seltzer.

     

    Basically when you stop (at least in my case) you feel better. It takes a week or so, but you will feel better. I did not have any side effects from stopping. I did relapse and had a flare. the new drugs I am on are much better for me. As you know one size does not fit all when you have RA. Get your doctor to try other meds. Or find a rheumy that will customize your treatment to you.

     

    Best of luck.

    BJ

    • bj in pain everyday
      Mar. 21, 2009

      Oh I forgot, I was on 16 MG oral once a week, and because it made me so sick orally my old rheumy put me on .6 ML subcutaneously injection once a week. I don't mind sticking my self so the shot took away some of the stomach nauesa. But ultimatly I had to stop it. I take Arava and Enbrel (have to stick myself with Enbrel) and I am having good success. However...

      RHMLucky777

      Read More

      Oh I forgot, I was on 16 MG oral once a week, and because it made me so sick orally my old rheumy put me on .6 ML subcutaneously injection once a week. I don't mind sticking my self so the shot took away some of the stomach nauesa. But ultimatly I had to stop it. I take Arava and Enbrel (have to stick myself with Enbrel) and I am having good success. However it is too soon to tell if it will last.

       

      I think you are on a normal dose. Please speak with your rehumy.

      BJ

    • Anonymous
      amoto99
      Mar. 22, 2009

      Hi bj,

      May I ask how you went about stopping the methotrexate? I mean, did you just suddenly stop taking it or did you taper back, like prednisone? Because I don't plan to take ANY anymore. I so truly appreciate your help.

    • bj in pain everyday
      Mar. 22, 2009

      Amy,

      I went to my Rheumy, and he told me to just stop. So that was what I did. I had no side effects from stopping, and I just gradually got better. It will take about a week or so before you start feeling better.

       

      BJ

    • amy's compassion
      Mar. 22, 2009

      Hi BJ, that's what I think I will do. It's good to know I won't go into some weird withdrawl or something. I'm also calling to schedule a consult with a different rheumy tomorrow. thanks for telling me...Amy

    • Anonymous
      kasey
      Sep. 03, 2010

      Hey, I just wanted to say thanks for asking this!
      I'm 16 and I have a condition in my eye and they have been using methotrexate to treat it for nearly a year,
      I have suddenly stopped taking it now because it makes me feel very dizzy/dehydrated/sick the next day and it makes me feel like my blood pressure rushes.

      Im speaking to my doctor about it soon though,...

      RHMLucky777

      Read More

      Hey, I just wanted to say thanks for asking this!
      I'm 16 and I have a condition in my eye and they have been using methotrexate to treat it for nearly a year,
      I have suddenly stopped taking it now because it makes me feel very dizzy/dehydrated/sick the next day and it makes me feel like my blood pressure rushes.

      Im speaking to my doctor about it soon though, as apparently you're not meant to stop it suddenly.
      Thanks again for asking this!
      Ive trawled the internet looking for answers to it, and this is the most useful info i have come across!
      Good luck with your treatment
      Kasey x

    • Anonymous
      I have ra and ...
      Feb. 20, 2011

      alka seltzer and pepto are both full of aspirin.