Buckle Me Up Campaign

i posted a few weeks ago that Deborah Norville was on a local radio show talking to the morning shows hosts about rare diseases and mentioned RA, because her mother has it.  she too said it's not well known. 

we should nominate her to be the RA spokesperson.  She's lived it secondhand, and is all too familiar with it! 

i vote for Deborah Norville. 

Who else would make  great spokesperson, I wonder? I guess until then, all of us will have to do our best.

This is Tiffany Westrich, Owner/Designer and website owner of www.jewelrymessages.com .  Apparently Microsoft is coming out with a new edition and they said that's why it sometimes warns of my site as a "phishing network"?  I promise Sara didn't partner with a bad site :) ... I'm trying to fix this but not having much luck!  There is also PayPal/Secure check out so I assure you it is safe! 

Maria-thanks for such a hopeful and happy comment! It helps.

You are most welcome! I have definitely learned (dealing w/this since the age of 5), you can't let it beat you!  Have to wake up each day telling yourself it could be worse.....8-)

Cheryl-thank you so much! I will definitely be keeping everyone here up-to-date.  Tiffany and I have a lot of ideas brewing, and we are going to need lots of people's help so stay tuned....

Yes, please come if you can Sunday for the Official Launch Party!  It will be 1pm, following the Arthritis Walk, at Big Deans Muscle Inn, along the boardwalk at the beach (not on the pier).  There will be a banner outside and I designed special beer cups that they will be serving drinks in ... They ask if you are having pain while holding this beer... then there are 3 possible answers:

1.  Pain while holding a beer???  NEVER!

2.  No pain but it's not my first one!

3.  Yes, I experience chronic pain.  I have Rheumatoid Arthritis.

(then on the bottom it says:)

Join the Buckle Me Up! National Young Arthritis Awareness Movement:  What IS Rheumatoid Arthritis?

Because no one should feel pain while drinking a beer.

On the back there are facts about RA.  I'm bringing 100 to hand out and there will be a raffle too!

I hope you'll be able to make it and that you will both have a fabulous time tomorrow!  I can't wait to see all the pictures.

I too sent an email to Oprah, after Montel was on, saying we needed to address ALL autoimmune diseases not just MS... Way to go.

That's fantastic....we need to send avalanches to all of them until it finally happens!

Thanks, you too!  I've heard that copper can be helfpful, too. I have another bracelet that I wear that has copper in it...but not sure I've noticed a difference so far.

Saenia, I think there will be plenty of ways for you to get involved.  We are cooking up a bunch of ideas that people all over will be able to help out with wherever they are.

Will do!

Thanks, Adirai!

We are planning on making these available all over the world... I am working with the PayPal account currently to make this happen (obviously shipping will just cost more :) )... but we are all in this together!  Sara and I truly are attempting to unite as many people under one umbrella who are ready for society to understand what we have!  The more who understand, the better the fundraising; the better the fundraising the more research, medications, insurance breaks, etc.  So the more voices the louder we can become... I will let Sara know when this is taken care of so she can pass on the word!

Wheee!

Lol, I like your thinking Debra :) ... we'll put it on our list for the merchandise store that will be on the bucklemeupmovement.com site.  We are both so happy with the overwhelming response to the movement, that as I mentioned in and earlier post, we needed to develop a website for everything involved in it!  We're also going to have to set up BMU as a non-for-profit itself, then have merchandise such as key chains, car magnets, pens, coffee mugs, etc. for sale that raise money for this movement (currently everything is coming out of pocket for advertising, banners, etc).  The bracelet will stay as the "symbol" of the movement but we are certainly open to suggestions for other merchandise as well!  Thanks for sharing!

Ah!  The stupid, little necklace clasps!  I put a necklace on on Tuesday and haven't taken it off because I can't!  Evil little things. 

OK, I know that isn't supposed to be funny, but it kind of is!  Hope you get the damn thing off soon.

It's okay to laugh.  I am.  Can't do much else.  It's still on by the way, but tomorrow is methotrexate day.  I have a long list of objects I now hate: pop-top cans, door keys, spray bottles, child-proof anything.  Just have to laugh at myself whenever I'm stuck.  I feel like a monkey trying to figure out how to get the ants out of the hill with a stick sometimes, confused and uncordinated.  It helps me to laugh to think there is a British man commentating on what I am doing, "Now, we watch as she attempts to squirt toner into a cotton ball.  Ah, her index finger does not work.  How will she squirt this quaint plastic bottle?  Let's see what she will do... Oh!  Look at that... she is setting the bottle down and squirting the bottle with the heel of the hand.  Smart girl!"

My favorite was when the pharmacy put my salsalate in the childproof bottle. Hello -- *arthritis* medicine...  I had to take it back and make *them* open it for me.