when things add up

By suzzy Saturday, January 07, 2012

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i havent been on in awhile .Think since august, i have been going through alot. Just lately been dx for it.In december dx with fribro an problems with my neck an now more things are going wrong. i have taken alot of blood work again an the 20 of january i well know what is going on.i have just wanted to crawl in a shell,an hopefully things well past.i have just filled for FMLA an i wished i did it when V did.rheumy is leaning on sjogren an lupus too an dont know what all.i just feel like the pesron who i am isnt me no more

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Comments (11) | Add comment

V, Health Guide

1/ 7/12 4:48pm

Hi, Suzzy,

I am sending you a virtual hug. Hope you get it soon.

We all go thru the denial process, Suzzy. At least you have FMLA in place now, or will soon, and that is a very good thing. No looking back, sweetie. You are on your way to finding what is really going on with you and getting some meds to help. I know you have had trouble with the meds, too, and it has been rough. BUT, sounds like you have a good RD and he is determined to find out what is going on and help you.

My Rx for you: Rest...a lot...take your pain meds and/or prednisone or whatever combination of meds your RD has prescribed. Don't be so hard on yourself. Don't give up hope. You just need to get on the right meds. Hang out with that adorable grandson of yours and let him give gramma some love. Things will get better.

suzzy

1/ 8/12 1:55pm

thank you V ,i caint believe how bad this stuff could hurt a person.i hope i can get meds for this or i hope this gets better. the 18 is my sons birthday an the 20 we all are going to stay in the hotel since the weather is cold swim an go do some bowling which i caint bowl but the kids can an have a great time an hopefully this stuff well calm down for me its like 20 times worse then poison ivy my eye itches ,my hands my face,my lips burn

V, Health Guide

1/ 8/12 4:20pm

What does your RD say is causing the skin issues, Suzzy...Lupus, possibly?

suzzy

1/11/12 3:32am

lupus ot sjogrens i think

suzzy

1/11/12 3:32am

lupus or sjogrens,

Lene Andersen, Health Guide

1/11/12 12:49pm

oh, sweetie. I'm so sorry to hear you've been going through such a hard time. Sending hugs and hopes that you'll find out what's going on, so maybe they can help.

suzzy

1/12/12 5:58pm

called the rheumy today to see what test came back an not all test are back so still not sure of lupus an sjogrens,,,,,,,,,,,,,,,,,, getting where i dont care if i see my rheumy anymore just spend money on what

Lene Andersen, Health Guide

1/12/12 9:57pm

I get that. It must be so frustrating.

Brad, Health Guide

1/12/12 10:51pm

Suzzy,

So sorry you are going through all of this. I guess the good thing is, you should have some answers soon. Knowledge is power and with a dx you can start researching and working with your doc on a medical plan as well. I really wish you the best and better days are ahead. We are all here for you!

Brad

suzzy

1/13/12 6:11pm

i do know this i hav ben with meds for the last past 15 years and havent had stuff happen to me like i when i have since i have been on the meds, mu body doesnt even know who i am anymore

suzzy

1/13/12 6:12pm

with out meds for the last 15 years

when things add up

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