prednisone tapering and adrenal gland exhaustion/deficiency

Deener Community Member July 16, 2007
  • Hi there,

    My husband has had RA for 5 years and is in the process of tapering his prednisone...Everytime he cuts it back he goes into severe withdrawal-

    shakes beyond, low temp, high temp, night sweats, shivering huge amount of allergies, extreme tiredness. Does anybody know how long this process takes and if the adrenal glands ever start reproducing cortisol on their own??? We need huge help on this because everytime he goes to cut bac and has this happen, DR's tell him to increase the preds...They think it is his arthritis causing this but it is Adrenal gland exhaustion....We have researched this forever....I know that when you are on preds the med produces cortisol for you...Need some insight....

     

    Can anyone out there help or has anyone been through this at all??? We need to know cause DR's are not helping...THANKS IN ADVANCE...

23 Comments
  • Anonymous
    Needing Answers
    Feb. 11, 2014

    I have been on Prednisone for over 10 yrs. straight due to severe chronic Asthma. I went through injections and then to the pill version. I just took a test to check the function of my Adrenal Glands and discovered they are flat as can be. I too am wondering if I will ever get off of this terrible drug they call Prednisone. I am only 45 but feel like my life...

    RHMLucky777

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    I have been on Prednisone for over 10 yrs. straight due to severe chronic Asthma. I went through injections and then to the pill version. I just took a test to check the function of my Adrenal Glands and discovered they are flat as can be. I too am wondering if I will ever get off of this terrible drug they call Prednisone. I am only 45 but feel like my life is over. I sleep constantly. I can easily sleep up to 18 hrs. daily. On top of that, when I am awake I am stressed and just want to go back to sleep. I am too young to be this old !!!! Help from anyone would be greatly appreciated. I want to live and watch my Grandson grow-up.

    • Deener
      Feb. 12, 2014

      Hi,

       

      You have to wean off it very slowly.It may take years.It depends on how much you were taking.You also will need adrenal support. I took a natural adrenal supplement from a natural path (ISOCORT) Do not chew horrible taste.It was very hard to do.You have to bring back, if you can,very slowly.You are waking them up.I ended up taken prednisone for 7...

      RHMLucky777

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      Hi,

       

      You have to wean off it very slowly.It may take years.It depends on how much you were taking.You also will need adrenal support. I took a natural adrenal supplement from a natural path (ISOCORT) Do not chew horrible taste.It was very hard to do.You have to bring back, if you can,very slowly.You are waking them up.I ended up taken prednisone for 7 years and cut it back my self. I stress it was hard to do but the benifits is much greater for me.I was cutting back at first 5 mg for awhile untill leveled off and then try to cut back 5mg.If that doesn't work for you then cut it smaller increments. Do what you can do to make yourself feel better.It turns out after 8 years i didn't have Rheumatoid Arthritis after all, i have LYME DISEASE and Found a lyme doctor and Now everything is much better.Hope this helps. be Strong. P.S. my wife was the first post here

  • kiabirdy
    Feb. 07, 2012

    Hi how you going?

     

    It sounds like you are going through hell :(

     

    I have been through what you are goign through :)

     

    I was on Prednisone for ten years on and off for a disease called Ulcerative Colitis. When I was able to eventually say goodbye to it after they cut out my large intestine, I went through very bad withdrawal.  I was throwing...

    RHMLucky777

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    Hi how you going?

     

    It sounds like you are going through hell :(

     

    I have been through what you are goign through :)

     

    I was on Prednisone for ten years on and off for a disease called Ulcerative Colitis. When I was able to eventually say goodbye to it after they cut out my large intestine, I went through very bad withdrawal.  I was throwing up constantly..twitching..could barely get up..faintness..sweating...sore joints. I went down to 41 kg.  The doctors told me that it was all in my head, i was in and out of emergency constantly..by luck or by god I found a naturopath and she got me through the withdrawal.  She put me on a protein drink with vitamins and minerals in it which were synergistic.  This means that for the body to properly absorb a vitamin such as calcium then there must be enough magnesium in the body for the calcium to be absorbed, so if you have to have a formula which has all of the vitamins and minerals in it that the body needs to be able to heal.  Ok..so that is your protein drink and you drink that all the time..i was drinking up to 8 cups a day of that.  Now the other thing that you need is magnesium.  Now magnesium is very important because when you are going through this then the adrenals are basically stuck in what is called the fight or flight mechanism where they will not allow the body to relax and recuperate which is what you need to heal..aldesterone is telling the kidneys to eliminate large amounts of magnesium and zinc which is what the nervous system needs to calm down and hence recuperate. Ok so to get the adrenals over this you need to take magnesium (large amounts ) all the time..powdered magnesium is the best because it is absorbed straight away.. Do not go off sugar..keep eating high gi..the body seems to need the sugar when it is going through this..your blood sugar seems to go very low because it is all out of balance. You can go off sugar later if you are trying to lose weight for cushings..   

     

    This is just my opinion, this is what worked for me,  I am not a naturopath, I am not a doctor :)  If you want to get in contact with me and that goes for anyone else here suffering on this thread then contact kiabirdy@gmail.com

     

    I hope that this helps :) hugs :)

  • ocngrl
    Nov. 09, 2011

    I have been trying to find a diagnosis for five years, and finally had one Dr. actually take note of my symptoms, run the adrenal panel blood work and was diagnosed in August of this year. I also am wondering if I will able to ever get off of the steroids. I have two very supportive physicians and have schedualed appointments coming in early December. I will...

    RHMLucky777

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    I have been trying to find a diagnosis for five years, and finally had one Dr. actually take note of my symptoms, run the adrenal panel blood work and was diagnosed in August of this year. I also am wondering if I will able to ever get off of the steroids. I have two very supportive physicians and have schedualed appointments coming in early December. I will ask both these questions  and get back with you on their opinions. My e-mail address is ocngrl_2000@yahoo..pls reply there, as I my never find your post again since I am just browsing.  I have Very helpful information on vitamins used to support adrenal recovery and can see vast improvement. Used to wake up feeling like I had walked up hill all night..that has been mostly managed thru the vitamine regime. Your adrenals produce vitamins and and the defficiency can be most of your lingering symptoms. My chronic infection every fall with allergies, resulting in burst eardrum etc med treatment  every year I am thankful I am not going thru that this year. I am sleeping better and the horrible mental battle to stay happy and positive has been somewhat improved. I could see results of my vitamin scheduling in two weeks and expect really good results in a three month period. Vitims are so expensive, so it's takin me awhile to get them altogether, get them at a health food store, don't order them. This is what you will need, and keep in mind that your body produces these naturally during the early morning and daylight hours, so getting them schedualed is a hassle but well worth it as most of them have to be in your body continuously and suppliments only last around 3-4 hours at a time.  Ok....now then you will need  (for a therapudic dosage)   B5_ 500 mg daily..take 250mg at 8am,  then I take 20 mg in a Bcomples at 11:30am ( the B5 and B6 are best used with B complex.)  B5 is VITAL to your recovery. Then again at 2:30pm  B6 -300mg daily..100mg at 8am..11:30am 2:30pm. Takr the B Complex at 11:30am.   DHEA-50mg daily anytime prior to the 8:am vitamins.  Vitamin D-7000iu daily at the same time you take the DHEA.  Vitamin C 3000mg per day. 1000mg at 8am, 11:30am 2:30pm.  Also vitimins are best absorbed if you use a yeast cleanse for lower bowel, I alternate  between the cleanse and using a tablespoon of  "ground" flax seed" for that  Also for those racing thoughts and any night without sleep...use 5HTP sleep is essential for recovery. if you are experiencing this symptom, take 50mg. early in the evening ,if you haven't gotten restorative sleep after this, do 50mg again the next night. if that still isn't working take 50mg on the third night. If you still are not having restoritive sleep, increase the dosage by 50mg every three days but only until you reach a max dose of 500mg. oh my..I have only had to use this two nights in a row to get sleep and prior to taking this I experienced up to 3-4 nights without good sleep.  the flax seed you will be using contains the important Omega 3..mine has 24000 units per two tbls. you can use any source but I get around 6-12000 per day.  Hope this helps...These are the most necessary ...and start with B5 if you can't get everything all at once, it is the most vital.  ...wishing you much better days and including a prayer...

  • Anonymous
    allmymarbles
    Nov. 20, 2010

    I have no idea of why anyone would treat adrenal fatigue with prednisone. It was prednisone and inhaled corticosteroids that caused my adrenal fatigue in the first place. It got so bad that at times I had difficulty in walking across a room. I stopped the steroids a little over a year ago, and have only now begun to recover from the fatigue. The most helpful...

    RHMLucky777

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    I have no idea of why anyone would treat adrenal fatigue with prednisone. It was prednisone and inhaled corticosteroids that caused my adrenal fatigue in the first place. It got so bad that at times I had difficulty in walking across a room. I stopped the steroids a little over a year ago, and have only now begun to recover from the fatigue. The most helpful factors in curing the dysfunction were ashwagandha and very large doses of vitamin B5.

  • Anonymous
    Suzie
    May. 11, 2009

    Where do I start! I have never commented on any of these sites before, but I felt I had to this time. There are alot of you having problems with this drug, which for me was the start of the root of all evil!  I was finally diag. with lupus fifteen years ago, which I had for about ten years before that. I went to the Cleveland Clinic and got lucky...

    RHMLucky777

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    Where do I start! I have never commented on any of these sites before, but I felt I had to this time. There are alot of you having problems with this drug, which for me was the start of the root of all evil!  I was finally diag. with lupus fifteen years ago, which I had for about ten years before that. I went to the Cleveland Clinic and got lucky and got a dr. which did all the right tests and my ANA was positive. Was put on prednisone, felt and did better for a while. Had to take Methotrexate also for all the horrible pain from thr RArthritis. I was on prednisone for over ten years. Terrible weight gain, couldn't sleep, terible pain, flu like symptoms every other week, fevers, night sweats, sore thoat, earache, raw tongue,terrible tiredness, sometimes having to stay in bed for weeks at a time. Moon face, and what they now call buffalo hump, a hump on the back of my neck, between my lower neck and upper back. Finally after these ten years of never getting better but worse the dr. said it was time to come off the prednisone, so I started following his schedule of every week cutting a little. It took about three months, and I definetly felt worse all the time, but I stuck it out, only in the first week of being off all of it, I remember sitting in a rocking chair and not being able to rock or even get up from the chair without the help of my husband, and even then I could barely walk. On the fourth day of feeling like that we went to the dr.s and they ran blood tests and sent me home to "rest". The next day I recieved a phone call from the dr.s office to send my husband to the pharmacy to pick up a perscription right away, it was ready and waiting ther for me, and for me to take it immed!!  Then they would call me back. It was for hydrocortisone, 20mg, two times a day. As soon as I took it in a half and hour later I started feeling like I was alive again. Sure enough, the dr.s office called and said that my adreanal glands had stopped producing, and the hydrocortisone would take over for it. I was acutally sitting there, at fifty years of age and was slowly dyeing!! Your adreanal gland once it quits working, never comes back!!!!! I got that information from the best doctors alive. All the rest will tell you to try this or that , none of it works!!!!!!!!! I am still on the hydrocortisone, have been for six years now, twice a day. As long as I take it I am ok, and I don't have to worry about forgetting to take it, because my body lets me know, I get really tired and can barely move. If I have surgery, I have to tell them that I am adreanal gland defecient, and they have to give it to me in an IV with my surgery or I can't even lift my head off the pillow, or get out of bed without passing out!! I still have the lupus, always will. also have severe fibromyalgia, so I have all the bones and organ damage from the lupus, along now with the muscle and nerve damage for the fibro. But let me tell you even though every day living with this pain, I will never go back on the prednisone!!!!!!!!!!!!!! It led to everything bad that is wrong with me today. It ruined my life, and I feel so sorry for anyone who ever goes on it. Pain believe me when I tell you is terrible, but you can get though it other ways. Go to a good pain clinic, a good one, with dr.s that care and take the time to listen to you. and don't try to shove a bunch of pills at you, but offer you some real treatment. I have had both of my knees totaly replaced, the last two years, and they are now working on my spine to get me to be able to walk without so much pain, so far I have one more surgery to go thru on Wednesday, then the implantable spinal cord stimulator, which blocks the pain to the brain, and then we will see, but I have already had  two days in the last month that I was able to walk in a store, get what I need and checkout and made it home, first time in over two years!! So I had given up and now there is hope, for now, so if there is for me there is for you, don't give up. It really does make us stronger~

    • Anonymous
      It's the Food
      Jun. 11, 2009

      I am so glad I knew about safe therapies for Addison's before my husband was put on toxic hydrocortisone and fludrocortisone. Do these drugs make you feel better immediately? Yes of course, but it's a devil's bargain. Over time they eventually stop working and then cause the very thing they are used to treat: adrenal insufficiency. Then nothing works and...

      RHMLucky777

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      I am so glad I knew about safe therapies for Addison's before my husband was put on toxic hydrocortisone and fludrocortisone. Do these drugs make you feel better immediately? Yes of course, but it's a devil's bargain. Over time they eventually stop working and then cause the very thing they are used to treat: adrenal insufficiency. Then nothing works and you are...well screwed. That seems to me like a profoundly unwise treatment plan.

       

      So how did they treat Addison's before synthetic steroids? With adrenal cortex extract (ACE) and licorice extract (using appropriate potencies). And if you look carefully in the literature, these therapies were safe and highly effective. Hell, they could keep adrenalectomized cats alive indefinitely with the right potentcy of ACE. Before the 70s, ACE was listed in the PDR as safe and effective. They removed ACE from the PDR when the synthetics came along, which have legendary long-term toxic effects. How dumb. Or maybe corrupt?

       

      So I took my husband to a doc who knows about these treatments. Within 2 weeks his electrolytes were back in balance, his blood pressure came up to normal (from 90/65), and his appetite came back. Within 4 weeks his energy improved, he gained needed weight, and he was just about fully functional. I got my husband back. I really had nearly lost him.

       

      Thankfully, we didn't listen to the endocrinologists, who were hopping mad that he wouldn't take their toxic drugs. They kept trying to scare him, saying he was going to die. Really? His labs don't indicate that any more.

       

      Essentially we followed the therapy outlined at this web link (even though he was never on prednisone), including licorice extract, good diet devoid of white flour and sugar, and plenty of animal fats and cholesterol. (Oh, his lipid panel improved significantly too, do don't listen to the docs regarding "dangerous" saturated fat and cholesterol. They're totally stupid about that.)

       

      http://www.westonaprice.org/askdoctor/steroids.html

       

      For you RA sufferers, I think this protocol would probably be effective, along with low-dose naltrexone therapy.

      www.lowdosenaltrexone.org

       

      Good luck and for god's sake, do your homework. Don't rely on docs for the final word.

    • Anonymous
      keith
      Aug. 08, 2010

      iv been on prednisone now for 30 years because of having ankilosing spondilitis and crones i have ask the doctor about coming off them plenty of times but have been told that the pluses outweight the minises and after reading your letters on coming off im inclined to think im better stopping on them keith

  • Anonymous
    fiddler
    Oct. 05, 2008

    I don't know about the adrenal gland exhaustion, etc. but I do know it's possible to live on Prednisone for a long time without it killing you.  My dad had severe RA, starting back in the late 1950's.  Doctors tried everything but never found anything that helped except Prednisone. Daddy said he knew it would shorten his life, but if it meant...

    RHMLucky777

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    I don't know about the adrenal gland exhaustion, etc. but I do know it's possible to live on Prednisone for a long time without it killing you.  My dad had severe RA, starting back in the late 1950's.  Doctors tried everything but never found anything that helped except Prednisone. Daddy said he knew it would shorten his life, but if it meant he could be up and around instead of flat on his back in bed, it would be worth it.  He took it about 15 years, then decided to wean himself off it.  He did it over a long period of time, but even so he did it too quickly and suffered a heart attack as a result.  The doctors put him back on it and as I recall it took them at least a couple of years to wean him off it completely.  The Prednisone did a lot of bad things to him, but he was able to enjoy life a bit for the time he was on it.  His life once he got off it was full of pain and misery, but he lived to be 87, after being stricken with RA at 55.  Now I'm on it after a bout of Stevens-Johnson Syndrome, and I wonder how he stood it for so long.  I wonder if your husband could find help at Mayo's or Scott and White in Temple, TX.  Best wishes and prayer for him and you.

  • Anonymous
    dawn
    Apr. 24, 2008

    hi there. i am a 26-year old woman. i have had autoimmune arthritis symptoms for about 2 years and just got finished tapering off prednisone. i was lucky--i was only on steroids for about 10 months, and the only significant outward side effects were very bad acne and a shortened menstrual cycle, but steroids really do a number on your body chemistry. i also...

    RHMLucky777

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    hi there. i am a 26-year old woman. i have had autoimmune arthritis symptoms for about 2 years and just got finished tapering off prednisone. i was lucky--i was only on steroids for about 10 months, and the only significant outward side effects were very bad acne and a shortened menstrual cycle, but steroids really do a number on your body chemistry. i also am on methotrexate and humira, which have my symptoms 90%. here are some suggestions which greatly eased my tapering off. One is to try to stabilize blood sugar and feed your body well by eating whole foods, and especially by not drinking soda/alcohol or eating too much refined sugar. Another is to cut down stress as much as possible and to spend time in the sun to increase natural vitamin D. Finally, accupuncture and massage are great--not for RA symptoms, but to facilitate the recovery of the kidney-adrenal complex. Accupuncture is great for that. Through this difficult period in my life, I have come to realize that there is too much of a dichotomy between holistic and western medical approaches. One approach really can and does support the other, and if you commit to both approaches in good faith, they can and will enhance each-others' effectiveness. Your husband already has a tremendous asset in you, a loving and supportive partner. All the best of luck!

    • Anonymous
      Michele
      Jan. 28, 2009

      Hi Dawn,

      I am a 25 year old woman and have been on Prednisone and Plaquenil for just over one year.  I too have had autoimmune arthritis symptoms for a few years now.  The doctors can't figure out what exactly it is.  I recently found out that I have a rare bleeding disorder too.  I am about 6', 142 lbs, and have hypermobility syndrome. ...

      RHMLucky777

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      Hi Dawn,

      I am a 25 year old woman and have been on Prednisone and Plaquenil for just over one year.  I too have had autoimmune arthritis symptoms for a few years now.  The doctors can't figure out what exactly it is.  I recently found out that I have a rare bleeding disorder too.  I am about 6', 142 lbs, and have hypermobility syndrome.  They are calling my arthritis sypmtoms either seronegative arthritis or an undifferentiated connective tissue disorder.  I am now down to 2.5mg and am excited to get off of these.  My bone scan said I'm already approaching osteoperosis bone density levels.  They have me on Calcitonin, Calcium and Vitamin D.  I want to try accupuncture now more than ever!  I put in a call to my Rheumy yesterday to ask her when I'm supposed to reduce my Prednisone again and also to get info on a permanent pain medication.  All of this crapola has seriously caused me to become a hypochondriac.  I drive my husband crazy, the poor guy.  It's like I'm obsessed with figuring out the root cause of these strange symptoms.  I looked into spondylolysis since I have saclarization at the L5 with nerve compression.  The Rheumy scolded me and told me she couldn't help me and that I should see a mental health physician.  She refuses to do x-rays, despite me trying to show her previous MRI, CT Scans and X-ray findings that were last taken in mid-2003.  I want to follow up now that I'm getting all of these other weird problems.  The problem is that I have my healthcare through the VA since I am a Marine Corps veteran.  I can't sign up for healthcare at work until June, for August 2009 enrollment.  I'm stuck with HER until then I guess when I can toss in the towel with the VA and maybe get the healthcare I need. 

  • Anonymous
    Gretchen
    Feb. 06, 2008
    I have been on steroids for almost 8 years now. I originally went on them to treat Pericarditis after heart surgery for a congenital defect.  My heart is fine, but I can't get off the steroids.  I either have a recurrence of the pericarditis or Adrenal Insufficiency.  I am now with an endocrinologist who has me on Hydrocortisone (oral, not...
    RHMLucky777
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    I have been on steroids for almost 8 years now. I originally went on them to treat Pericarditis after heart surgery for a congenital defect.  My heart is fine, but I can't get off the steroids.  I either have a recurrence of the pericarditis or Adrenal Insufficiency.  I am now with an endocrinologist who has me on Hydrocortisone (oral, not the cream!).  It is a short-acting steroid.  The theory is to take some in the morning (20mg) and some in the evening (10mg) and then let my body try to "kick in" during the night and start producing its own Cortisol.  Don't be alarmed at the dosage, it is different than Prednisone.  So far it has not worked for me, but maybe it will work for some of you out there.   By the way, there are no proven "natural" remedies - don't kid yourself. 
    • Anonymous
      Muse
      Mar. 08, 2010

      Please don't kid yourself into thinking that conventional meds are the only way, THEY ARE NOT. You just have to dig a little deeper to find the natural non-toxic stuff.

  • Anonymous
    kat murphy
    Jan. 23, 2008
    hello....read your question while researching my own health concerns about addision's disease....my mom developed colitis bad suddenly and ended up on prednisone for 15 years...they could never get her off of in...constantly she tried....she developed diabetes and arthritis and eventually had all of her knuckles replaced surgically....finally after 15 years...
    RHMLucky777
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    hello....read your question while researching my own health concerns about addision's disease....my mom developed colitis bad suddenly and ended up on prednisone for 15 years...they could never get her off of in...constantly she tried....she developed diabetes and arthritis and eventually had all of her knuckles replaced surgically....finally after 15 years of misery they put her on methotrexate the arthritis drug....and it flared up her colitis so bad she finally decided to have her large bowel removed and go with the "bag" and get to live some kind of more normal life than what the methotrexate provided....uncontrollable diarrhea....but she caught a super bug from improperly cleaned operating equipment and died a long cruel death in intensive care after months of alternating between comas and unbearable pain which no drug they could come up with could help....my advice is to go to a naturopathic doctor as soon as u can find one and get off the prednisone.....it is a killer if u ask me....:(((...but its interesting because i found your question researching addison's disease because i also have crohns and 3 other autoimmune diseases and now think that i have always had addison's disease and that it runs in my mother's family and that she herself actually had addison's as the underlying cause of all her illness and my own.....and there i find your question about tapering off prednisone like mom always was trying to do but couldnt.....perhaps your husband also has addison's and that is why he cant cut down?....i know no one could figure out why she couldnt cut down so it might be the reason.....myself i have been having what i think are addison crisis and went to a good naturopath and she could tell right away that my adrenals are not functioning and put me on and adrenal support supplement...i urge your husband to check into it....good luck and let me know how if goes:))))kat
  • Anonymous
    DJ
    Jan. 06, 2008
    My brother in law called me to see if I could research prednisone as my sister is having the same results withdrawing from the drug as deener's husband. The docs keep telling her to increase the amount. My brother in law is at his wits end as to what to do. Does anyone have any help for these poor people? PLEASE!!
    • Anonymous
      Missy
      Mar. 07, 2008

      I found everyones letters as I was searching for help. I'm currently trying to get off Prednisone.  My advice to your sister or anyone dealing with this same problem is DO NOT try to go cold turkey or do it with a schedule "you" think is appropriate--the rumors that it could kill you are very true, I know,...

      RHMLucky777

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      I found everyones letters as I was searching for help. I'm currently trying to get off Prednisone.  My advice to your sister or anyone dealing with this same problem is DO NOT try to go cold turkey or do it with a schedule "you" think is appropriate--the rumors that it could kill you are very true, I know, I almost did when I tried to do it on my own schedule several months ago.I now have a schedule from a doctor and I'm still having a horrible time with it. This is one of the hardest things I've ever had to do because it effects so many things in your life and everyone around you and it's usually not in a good way. Not to mention that most people that needed steroids longterm had or still have other health issues, like myself. I'm not sure how my husband and kids have not run off, I can't even stand myself. Good Luck to everyone effected,I hope all of us make it thru, because at times I know it doesn't feel like we will !!!

  • Anonymous
    Jean Nettleton
    Dec. 02, 2007
    I am tapering off the prednisone, after about 6 years of being on it. gaining about 60 pounds. And now adrenaline problems that are causing rapid and irregular heart beat. Including high blood pressure. Now I am on medication to control the adrenaline problem, the prednisone really messed me up.
    • Anonymous
      Anonymous
      Dec. 02, 2007
      Are you talking about Adrenal Gland problems??? My husband is having huge issues with his Adrenal Glands as Prednisone shuts them down. HE is now on a supplement to restart. What increments are you tapering down with? Are you going through shakes and withdrawal symptoms???? IT takes a long time for sure and he has gone through sooooo much as well....Has anyone...
      RHMLucky777
      Read More
      Are you talking about Adrenal Gland problems??? My husband is having huge issues with his Adrenal Glands as Prednisone shuts them down. HE is now on a supplement to restart. What increments are you tapering down with? Are you going through shakes and withdrawal symptoms???? IT takes a long time for sure and he has gone through sooooo much as well....Has anyone told you how long it will take to taper off of it???
    • Ginnie
      Jun. 04, 2012

      My husband has just come off prednisone after 5 months and is still on cell cept, his exhaustion is so bad and we found out he was not producing his own cortisol, you said your husband was on supplements to get his adrenal glands working again, what suppliments are they.  I need to do something to help my husband get through this problem and I think supplements...

      RHMLucky777

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      My husband has just come off prednisone after 5 months and is still on cell cept, his exhaustion is so bad and we found out he was not producing his own cortisol, you said your husband was on supplements to get his adrenal glands working again, what suppliments are they.  I need to do something to help my husband get through this problem and I think supplements are the answer instead of more prednisone.

      Thanks

      Ginnie

  • Anonymous
    joe
    Oct. 18, 2007

    okay, so when i was 17 i got sick, high fevers and extreme fatigue. they threw me in the hospital and poked and prodded for two weeks but never really settled on anything solid. Then someone thought of Prednisone and i was magically healed. Could actually get out of bed and walk down the hall again. After the hell of the hospital, i was all for it. I don't...

    RHMLucky777

    Read More

    okay, so when i was 17 i got sick, high fevers and extreme fatigue. they threw me in the hospital and poked and prodded for two weeks but never really settled on anything solid. Then someone thought of Prednisone and i was magically healed. Could actually get out of bed and walk down the hall again. After the hell of the hospital, i was all for it. I don't remember what my dosage was, but it was large enough that it took 2 years to taper me off of it, even though i felt healthy after my muscle mass came back. 

     

    Those two years weren't so good though. Prednisone is a horrible drug. i have a scar/stretch-mark across the middle of my back that looks like someone stabbed me. The ones on my hips i call my tiger stripes. They found a scar on my eye and a few of my teeth fell out. 

     

    I got better, but whatever the disease is (they considered Adult Stills and RA and lupus but never really settled on anything). It has come back 3 or 4 times in the last 14 years but after the last "specialist" i saw, i gave up on traditional medicine. i don't want to take prednisone, ever again, but since i've been in a miserable relapse of this disease for the last 10 weeks, i've considered it. 

     

    i can't tell you how to do it with RA, especially after being on it for 5 years. Definitely don't do it yourself. I moved across the country during my two year taper and still had to find a new doctor to make sure i was doing okay, and on his schedule. According to wikipedia, going cold turkey can possibly kill you, or just give you many other problems. You've got to taper.

     

    Now i'm starting to think that i just need to find a way to kick start my adrenal gland. There's some info out there about "adrenal fatigue" which seems to mirror my symptoms. prednisone fixes it, but there seem to be natural medicines that can help rebuild the adrenal functions without such side effects.

     

    that's my two cents. good luck to you and your husband. 

    • Anonymous
      Anonymous
      Oct. 04, 2008

      I have been on 60 mg for 4 months for interstital lung.  This drug is horrible.  I am on 3 antibiotics for various things because prednisone reduces one's immune system so drastically.  I catch everything.  So I will find another doctor to help me taper off.  You know about the adrenal fatigue.  I have researched that taking adrenal...

      RHMLucky777

      Read More

      I have been on 60 mg for 4 months for interstital lung.  This drug is horrible.  I am on 3 antibiotics for various things because prednisone reduces one's immune system so drastically.  I catch everything.  So I will find another doctor to help me taper off.  You know about the adrenal fatigue.  I have researched that taking adrenal cortex extract 2-3 drops a day , some have to double the amount to start, helps when weaning off 2-5 mg.  There is also something called drenamin that stimulates rebuilding the adrenals.  May God show us both favor in getting this monkey off of our backs. 

  • angytvjunkie4
    Jul. 20, 2007

    Hello,

    I have been taking prednisone for over 2 years and I recently stopped completely. I gained a bunch of weight, and got steriod induced diabetes. My Rheumy says its like a credit card buy now pay later. I have never been through what your subscribing. How awful for your husband. How much is he taking? I took 1 per day and did the tapers about once...

    RHMLucky777

    Read More

    Hello,

    I have been taking prednisone for over 2 years and I recently stopped completely. I gained a bunch of weight, and got steriod induced diabetes. My Rheumy says its like a credit card buy now pay later. I have never been through what your subscribing. How awful for your husband. How much is he taking? I took 1 per day and did the tapers about once or twice a month. It was awful. Let him know that I'm praying for you and him, and must I commend you for sticking with him, how you must love him! Unfortunately, my husband couldn't deal and left. Keep the faith and I hope this helps! Take Care!

    Angy

    • Deener
      Jul. 20, 2007

      Thank you so much for your response...Did you cut by 1 ml at a time??? so what do you take in place of the preds now....Are you on anything natural at all....How do you deal with it?....How long did it take...Are you glad you are off it now? Did your adrenal glands get comprimised....What did your rheumy say about going off of it?Do you feel better off it than...

      RHMLucky777

      Read More

      Thank you so much for your response...Did you cut by 1 ml at a time??? so what do you take in place of the preds now....Are you on anything natural at all....How do you deal with it?....How long did it take...Are you glad you are off it now? Did your adrenal glands get comprimised....What did your rheumy say about going off of it?Do you feel better off it than you did on it????How old are you? My husband is 41 and I am 33...This is an extremely difficult situation to deal with on top of the RA especially at our ages.. Do you have kids??? My hubby and I are not sure if all this will affect us getting pregnant...I guess if you feel like crap it doesn't help hey....Not to mention the amount of stress it puts on me too...I try to be strong for him but I have my days where I feel like I can't handle it...Thank you so much for talking to me as I so need to talk to someone who is going through he same thing as him. It helps me get through it and it helps me talk about it....I do not really have anyone that can even begin to understand....Unless you are in the situation, you cannot fully understand....I am so sorry your husband left..My husband has told me to leave to have a better life but I love him for better and for worse and feel we will get through this....Thanks again..I appreciate your prayers. :)