Saturday, December 26, 2009
Is there anyone who is, or has used Simponi? I am interested in comparing experiences.
Happy Holidays,
donna
Please share Simponi experiences.
12/28/09 9:10pm
i am so glad i found someone taking this medicine. i was on humira and the pain just from the injection was so bad that my dr put me on enbrel. there was hardly and injection pain but now the medicine does not work any more. i will be startin simponi and i am really worried about injection pain or any side effects. please let me know.
thanks lidia 
12/29/09 9:28pm
I have been using Simponi for 6 months now. I previously used Humira and Enbrel and found both of them extremely painful to inject. Simponi is so much better! I have not had any side effects and it has really helped the horrible fatigue that comes with RA. I still have quite a bit of pain, but, without the fatigue it is much more easy to handle. I hope you have good luck with it, too.
donna
2/15/10 10:36am
I, too, had previously used Humira and Enbrel for about 10 years. The pain is durable if it gave me relief. I finally had to change to Simponi because of extensive injection site reactions (my whole thigh would swell, turn red, and itch). I have been on Simponi for 2 months now and I find that it stops working after 2 weeks into the dose. How long did it take for this to work? Have I not given it a fair chance? The pain returns and it is hard to roll over in bed or get dressed, or walk. And I have been sleeping during the day.
5/30/10 12:33pm
I will post news on the Simponi soon but my husband just started and once we know it works or not i will let everyone know if it is helping him at all. He has only had 1 injection with the pen. I dont know how long it would take to know if its helping or not. Anyone who can post how long it takes to notice a difference would help. Does it help anyones pain at all? How much does the pen cost with insurance so we can get an ideal how much it costs and how many injectors do they send. We dont know much yet.
8/ 6/10 12:35pm
I have switched to Simponi from Enbrel. I have had 3 doses and I am finding also that after the first 2 weeks it seems to quit working. I wasn't sure if I was giving it enough time to get in my system good so I am thankful that I have found someone with the same results. I do have a dr.'s appointment on August 31st right before I am due my next dose so I am going to ask him his opinion on what steps I need to take next. Thank you for your post.
8/ 6/10 12:36pm
I have switched to Simponi from Enbrel. I have had 3 doses and I am finding also that after the first 2 weeks it seems to quit working. I wasn't sure if I was giving it enough time to get in my system good so I am thankful that I have found someone with the same results. I do have a dr.'s appointment on August 31st right before I am due my next dose so I am going to ask him his opinion on what steps I need to take next. Thank you for your post.
8/ 6/10 8:51pm
I finally gave up on Simponi and now am on a Remicade infusion. It was only holding me for about 3-4 weeks (suppose to be 8) at which point I needed help getting dressed and showering. I cried each night when trying to turn over in bed because of pain. My doctor had to increase my dose twice and has now added Arava with it to see if I can get longer relief. It is terribly frustrating and painful.
We'll see how this works.
8/ 6/10 8:51pm
I finally gave up on Simponi and now am on a Remicade infusion. It was only holding me for about 3-4 weeks (suppose to be 8) at which point I needed help getting dressed and showering. I cried each night when trying to turn over in bed because of pain. My doctor had to increase my dose twice and has now added Arava with it to see if I can get longer relief. It is terribly frustrating and painful.
We'll see how this works.
8/ 6/10 11:38pm
I have been on the Arava since starting the Simponi and I don't think that it is doing any good. I understand about the pain in turning over in bed. My husband is always asking what he can do to make me feel better and I tell him that there is nothing he can do, (politely of course). I have been researching the different types of medicine to treat RA and there are quite a few so I guess I will keep trying until I find the right one. I just hope I find the right one soon.
8/ 7/10 9:43am
8/ 9/10 9:25am
Do you find that it last the whole 2 mths. or do you end up having flare ups before your next infusion? Also, Do you know if Remicade offers a cost support card (to help you pay for it) as I am on limited funds and have received cost support from both Enbrel and Simponi? I guess at this point I am just struggling to try whatever will work. I just would like to have one day that I didn't hurt. Thank you for responding to my post.
8/ 9/10 9:31am
8/ 9/10 10:32am
Hi Ronnei,
I have had RA for 12 years and was one of the first patients to receive Enbrel when it came out. I had tried a whole regimen of others before that. The Remicade is only lasting me about 3-4 weeks now but my doctor hopes with the addition of Arava and higher dosages that it will extend my relief. Right now I am beginning a flare after 3 weeks and will be seeing my doctor this week.
12/30/09 10:28am
We've put up a post asking people to share their experiences with Simponi and the other new Biologics and hopefully, there'll be as number of comments.
9/27/10 1:58pm
My husband started Simponi May 28th 2010 and Sept 2010 he started to get red bumps on bottom of his feet, rash on top of feet , in between toes, on butt, on stomach on privates. He went to a Dermatologist who told him this could be related to the Simponi Injection Medicine. We will find out for sure seeing his RA doc tomorrow. When you read the side effects on Simponi it does state that people can get Phsorasis with this injection or make it worse if you already have it. My husband never had this issue before or anyone in his family.
By DK— Last Modified: 04/21/12, First Published: 12/26/09
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Unfortunately, I'm not aware of having seen another user post about their experience with Simponi, although I know that we have a number of users who use this drug. I have just recommended to someone else with the same question that they send you a message and/or keep an eye on your post so you can share experiences, especially if you get responses (which I very much hope you do). As I also mentioned to that other user, we are in the process of putting together some information on the new Biologics like Simponi, but unfortunately, this will not be posted for another couple of months. In the meantime, you may find some information on the Simponi homepage.
If you do start using Simponi, would you be willing to post about the experience? we could very much use some information from somebody who has first-hand experience with this medication.