Wonderful gift!

Laurie Community Member October 30, 2011
  • Hi RA Family

     

    I have to share this, it's so important to me.  I was diagnosed with RA in Dec 2009 and a few of the other autoimmune ugliness and was told by both my rheumatologist and my primary doctor the week following Christmas 2010 that I'd never be well enough or strong enough to return to my way of life, my true love for kayaking and hiking.... so I sold ALL of my gear and boat to a friend here in town.   It really broke my heart and let everyone know really the state of how well I'm not!  My siblings could no longer say I was just making it up to get attention.  When I sold my kayak, they knew it was real.


    Well, I want all and everyone to know I have been kayaking twice this week.  The first time was Monday on a very small lake, maybe 45 minutes and I was in love all over again.  And today we went to a bigger lake about 90 minutes in the gray and drizzling rain.  This time I was tired enough when I got home I slept for a couple of hours and my legs are weak this evening.  But I DID IT!!!!!!  I kayaked and loved every single moment of it.  I have to get out at a dock, lift myself up and out, or roll over into the water....  I'm reasonably good at using a dock, but someone has to hold the end of the boat as the friend took the rope off the nose so I can't tie up to get out - - I just can't stop smiling.

     

    This has given me more hope for my future than anything in the 2 years I've had RA.  I was terrified of just sitting by the tv for 20 or 30 years - and now with 'hope' - - I can try anything again!

     

    Laurie

7 Comments
  • V
    V
    Health Guide
    Oct. 30, 2011

    That is wonderful news!  Thank you for sharing. I can feel the joy in you heart as I read your words, and your smile is contageous.

     

    Blessings,

    V

  • Laurie
    Nov. 04, 2011

    Thank You for being chosen for the community blog - I hope it reaches loads of RA folks as the Humira has brought back into my life many things I loved and lost, and now some things I'm getting back.  The hope is what's important here - I'd lost all hope of having any joy in life.

    Thanks so  !   Laurie

  • Lene  Andersen
    Health Guide
    Nov. 02, 2011

    I'm so happy for you! Regaining the parts of your life that you lost is a truly mindboggling gift. Congrtulations!

     

    one of the things I've realized after starting the Biologics, Humira in particular, is that I keep getting stronger and keep getting to places I thought I never see again. And then another one and another one and every day, it makes me aware...

    RHMLucky777

    Read More

    I'm so happy for you! Regaining the parts of your life that you lost is a truly mindboggling gift. Congrtulations!

     

    one of the things I've realized after starting the Biologics, Humira in particular, is that I keep getting stronger and keep getting to places I thought I never see again. And then another one and another one and every day, it makes me aware of how miraculous these treatments are. It took years before I could wrap my head around it and now, although I believe there are things I will never do again, there's a small voice in the back of my head that says "you never know." My biggie right now is traveling. used to do it all, but haven't been able to for a very long time. But maybe that's just temporary...

     

    The sky's the limit!

     

    PS your siblings that you are making up RA to get attention? how old are they -  12? Nevermind, I'll move on. What's important is that you found your kayak again.

     

     

    • Laurie
      Nov. 02, 2011

      Thanks Lene - I've been on Humira about 5 months and like you, I see changes back to regular life everyday!  I'm glad you're getting bits back too.

      Laurie

  • Leslie
    Oct. 30, 2011

    How wonderful that you are feeling well enough that you can do some of what you love again! I have had RA for two years and early on I lost a lot. Now that the meds are working I am slowly regaining some of what was lost. I am flyfishing again and was canoeing this summer. I am not as strong as I was and regaining that strength might be a long road - may never...

    RHMLucky777

    Read More

    How wonderful that you are feeling well enough that you can do some of what you love again! I have had RA for two years and early on I lost a lot. Now that the meds are working I am slowly regaining some of what was lost. I am flyfishing again and was canoeing this summer. I am not as strong as I was and regaining that strength might be a long road - may never quite get there, but all is not lost. And there is hope!

    • Laurie
      Oct. 30, 2011

      Thanks - and I'm glad to hear you are beginning to get some things/activities back too.  I'm like you, in the very beginning I lost really a lot.  My rheumie called it 'fast onset' and told me the withering tiredness would be as crippling as the pain-filled limbs.  I think that's why I'm so so so surprised that I'm doing things now.  I was...

      RHMLucky777

      Read More

      Thanks - and I'm glad to hear you are beginning to get some things/activities back too.  I'm like you, in the very beginning I lost really a lot.  My rheumie called it 'fast onset' and told me the withering tiredness would be as crippling as the pain-filled limbs.  I think that's why I'm so so so surprised that I'm doing things now.  I was a distant hiker too, but my knees hurt too much and when I think of hiking I can't open my hands etc....  but sitting in the boat not using my legs seems to be working.  Hang in there - if it can happen to me, it can happen to you too.

  • Debra
    Oct. 30, 2011

    It's good to hear good news. I know that whenever I can get out and hike I feel the same way. The extra rest before and after is worth the time doing something you love.