Thursday, May 31, 2012

Newly diagnosed

By CJE4491 Tuesday, February 10, 2009
2/10/09 1:48pm

It's not in your head, I don't think so anyway! It affects many joints. Some days I have it in my knee, then it will switch to the other knee. The next week it will be my elbow and shoulder, etc. I'm glad that you finally got a diagnosis and I hope the meds work out.

2/10/09 1:51pm

that's exactly how it works.. you could wake up one morning with severe excruciating pain and by 2 pm, it's gone...but it'll show up somewhere else just as painful, or not as painful....it's very unpredictable...good luck and hope you get relief from your meds!

2/10/09 10:38pm

No it is not in your head. Although I have the same thoughts on a very regular occasion. Or the thought that since the humira has not kicked in maybe I don't really have this. Denial is not jsut a river in Egypt.

2/11/09 8:55am

Thanks for the input.  I don't have the RF factor so I tend to think the doctor has made a mistake.  That just feeds my "all in my head" thinking.  It came on very quickly (I would say over the course of 6 months) and in many posts I've read people indicate they thought they had it for years before diagnosis.  Does it make sense that I just happened to be lucky enough to be diagnosed that quickly? 

 

Its funny.  I had a chainsaw "incident" several years back and I'm even thinking that maybe the erosions they found are actually from the chainsaw.  I tried that but the doctor said the uninvolved hand was actually worse. 

2/11/09 12:11pm
Chainsaw incident. Very interesting:) I do not have the RF factors in my blood and my xrays are ok. My diagnosis is based on my symptoms and my reaction to the drugs. My hard core symptoms where i was completely dysfuntional came on this last April and I was diagnosed in June. I too am blessed to have gotten diagnosed so quickly. It takes some people a long time to get diagnosed. But on the other hand when I look back I have had problems for years and blamed it on other things. Holding a cell phone= my excuse was that my mom has osteoarthritis in her hands so that was the problem. Not being able to sleep on my hip= because I have had to kids. My ankle and knee bothering me because my feet had self diagnosed osteoarthitis. Oh yes and then my feet being bad because I had osteoarthritis. I kept putting all that off to something else. Now I realize it was all connected. Yet I still tell my doctor I think I am crazy every time I see her. At which she usually responds by saying you are not crazy I can see and feel your inflamation. I am hoping some day to not think I am crazy and to be back to where I was before all this. The two people I have direct contact with who have say I will. So I guess we can both hold out hope. Hope talking with others helps. But know you are not alone in the it's all in your head group:)
Anonymous
Brett Morris
2/11/09 3:19am

i have had ra for 3 years and i find now its hot im aching allover like having the flu. I went to doctor as when i sweat my skin starting burning. Doctor told me its the medication coming out through my sweat. It even burns when i cry .

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By CJE4491— Last Modified: 09/21/10, First Published: 02/10/09