Friday, February 03, 2012
Well hello my newfound RA family! A few weeks back I began posting on this site, as all signs were pointing to my having RA. Since that time, I have been diagnosed positive for RA (my factor was 149.1....UGH) and have lived quite the whirlwind. Through all of this, I have been extremely blessed to have a net of support literally and figuratively holding me up.
So today my treatment was identified. Along with weekly methotrexte, I'll be going on Remicade. So what can you tell me, friends?
Sorry to hear you have RA, but SO thankful you are getting treatment quickly. That is key to your well being. I have never taken Remicade, but I know several people who do have those infusions. One of my good friends here, has a Remicade infusion every six to eight weeks. She goes to the infustion center, takes a book, and makes it her "me" time. LOL I have been told that Remicade is similar to Humira, but I don't know that for certain. All of the people I know are premedicated before each infusion with prednisone and/or benadryl, etc. I hope someone who is on Remicade sees your post and replies. Just wanted to say congrats on getting started on meds quickly. When do you have your first infusion?
Best Wishes,
V
Hi V!
I had my first infusion yesterday and all I can say is...
OH MY GOODNESS!!!
I was told to anticipate maybe a little relief quickly, and that the bulk of the relief after the 2nd infusion (which is two weeks from yesterday). My infusion was at 8:30 am. I came home after and napped for about 2.5 hours - that in itself was a feat, as the pain usually limits me to sleeping about 90 minutes before I wake up with pain.
I woke up from the nap, and for the first time in nearly 6 weeks, I could open and close my hands. I can straighten my legs out, and my feet swelling had reduced significantly, and pain was down significantly. Though I am still kind of tired, there is already a major difference between yesterday morning and today. I slept most of the night, and have nothing but hope that future infusions will keep things moving!
How is your sinus infection going?
Fantastic news!
I have read where some people get immediate relief from biologics from time to time. How wonderful for you, and what a relief for you to be able to rest.
Please keep us informed and let us know how you are doing. Many of us are interested in how infusions work for others. Especially those of us on on biologics who may move on to infusion therapy some day. Maybe if/when you feel consitently better you could write a SharePost about your experience.
Blessings,
V
I meant to say WHEN ( not if/when) you feel consistently better, you might consider writing a Share Post about your experience!
So far, the first infusion seems to be hitting the "little joints" - fingers, toes, and a little on my wrists. I am really looking forward to the next infusion...and to sharing how it goes!
wow, Stacy - that's an incredible experience. I have the same kind of thing happen to me when I started Enbrel. Got my shot, had a nap and woke up a different person. I still remember that miracle and am very grateful. I'm so glad it kicked in so quickly for you!