So I have been feeling horrible lately. Lots of pain and fatigue. I know it the long days and stress at work that is doing it to me. But with teaching a 5/6 combo class and having to young children sometimes I don't have the choice. I have to do what I have to do. But is it just me or does anyone else get really frustrated that they can not do things like those your own age (38) without paying for it the next day? I should be able to work and then enjoy family fun night without paying for it later. I know there are others out there with this disease who would be happy if they could do what I can do. I am sorry to those of you who that covers but sometimes I just need to vent. It is times like these that this also takes an emotional toll on me because I start to think about dealing with this for the rest of my life. Don't get me wrong I am truly blessed and typically handle this disease fairly well but i just figure there would be someone out there that feels the way I do right now, not well emotionally or physically. Just needing to know it is not just me:)


No its not just you my friend its all how have RA. We all suffer the same symptoms...and they are terrible. It has wrecked my life, pain , fatigue sickly feeling constantly even though on Humira, PLaq & methotrexate. I'll just finished talking with my wife so frustrated.....so frustrated.. quality of life is dismall.. I well I'm just lost to put it mildly.
RA can be so overwhelming and it affects every aspect of our lives. I think all of us have been where you are now. Some of us are there right now, so please don't feel alone or isolated. Quality of life is a big issue. For instance, I just had a talk with my PCP. She was concerned about how much Celbrex I am taking because of the possible affect on my kidneys. When I explained that I could not get out of bed without all my meds, she shook her head yes, indicating understanding. She then came to the point of the matter; it is about the quality of life. You are young; you are working; you have a young family. Of course you are going to feel frutrated with your limited energy level. I wonder if there is anyway you could adjust your work schedule to better accomodate you energy. I find it is necessary to set my priorities every day and then do my best to follow thru with them. My house chores go undone many times, because my family and church come before house cleaning duties. I can't do it all, so I choose what I am going to do. I know you are young, and you want to do it all, sweetie, but you need to listen to your body. You need to rest when it is telling you it needs rest. I hope you feel better soon, and please don't feel alone. We have all been where you are now.
Blessings,
V
I am trying to take your advice and rest more right now since my body is telling me to. Frustrating but necessary. Can't adjust my work being a teacher but I do have a housekeeper and will as long as I can afford it:) We have also been using paper plates a lot lately. Sorry to the environment but it is one less thing to do for now:) Thanks for your words of support. Always helps to know I am not alone:)
I think that is what depresses me and frustrates me too, that even with all these meds I still have problems. Although I was not functioning at all before I started on my meds. I have to remind myself of that but I always gave that level of frustration creep in when I don't feel good and wonder what is the point of all the drugs if I feel like crap. Hang in there. Thanks for letting my know I am not alone:)