A hard decision to make

For the last 4-5 years I have not been feeling well. Going to the doctor has become almost a given in my life. Pain pills, aching all over, headaches, calling in sick, depression and the general "why me" is a constant.

I was diagnosed with RA, Sjogren's syndrome and Lupus about 6 months ago. Finally, a diagnosis that convinced me the "feeling bad" was not in my head. I found a wonderful rheumatologist, someone that actually could help. He started me on Imuran, and  Plaquenil, which seemed to help for a few months, but now, not so much.  Prednisone, the drug doctors love to hate, has become another constant. It seems like as soon as my dosage is lowered, I have a flare up.  

I am still trying to work, but it is becoming increasingly more difficult. Just getting dressed in the morning has become a job. By the time I get to work, I am exhausted, and have started to feel the "brain fog" more often. Part of me still wants to continue working, but a larger part of me is saying that the amount of physical exhaustion is not worth it.

I'm concerned that if I do go on disability, it will be like giving into this disease.  I know that there are many people that have come to the decision, that I am facing, I guess what I need to know, is how do you cope with not having that "job"?