Today was the day for the first Acetmtra Infusion. I went reluctanly and hopefully. After some extrem flaring of rib carltlidge recently I felt I had to jump into the Biologic pool, although my rheumy has been trying unsuccessfully to get me there for three years due to chronic infection.
The infusion centre was pleasant, the nurse was pleasant and helpful, I still my fears and sat while he found a vein, a bit of a difficult proposition.
He fed it slowly for fifteen minutes, I felt lightheaded, dry mouth and slightly weird, but talked myself into the idea that it was just nerves.
He turned up the flow and within five minutes I felt much worse...weird all over, dry mouth tight muscles, stuffy head.
I asked him to turn it off and he called the doc who confirmed it as a reaction. Yay.
So here I am slowly feeling better, with a swollen area around the injection site, and intermittent lightheadeness. I was released with a warning to call an ambulance it I felt worse Yay....
They want me to try again next month with prednison and claratyne dosage beforehand, but I don't think I will. I have a lot of these reactions, so it is hard to live in fear of them all the time. I am also going off Methotrexate again. I had stopped it for two months due to extreme nausea, and after three weeks back on it, the nausea is returning. My body probably needs a break.
So on with the show. Keep your chins up everybody [ no, not a typo, a joke]