Thursday, May 31, 2012

Sorry to be a downer but RA has torn apart my life!

By jenmik Wednesday, January 20, 2010

I am the other side of the disease.  The other side of the coin that cannot be ignored.

 

RA has taken away my independence, my pride and self worth.  I am no longer who I once was, RA took that just because.  You have prevented me to get the job that I wanted and took away the job that I once had.

 

RA limits the things that I can do, and dictates how I can do it. No longer that active mom, that I once was, you took that , you went right to it. 

 

RA increased my bills, and damaged my credit. Those 3 month visits, all those pills and that shot.  RA when do you stop, just give it up,  you have already taken alot.

 

  RA makes me put on a smile when really I want to cry. It is the shadow that makes you have to lie.   

 

You make me fake that the life I live now is great, when the life before WAS wonderful.

 

RA has put me in a box, a box so dark lonley.  Its not enough that you tear apart my bones, my body, but you are taking my marriage too!

  

Look on the positive side, they say, but just let me dwell in my sorrow for this day.

I dont want to pretend, I want to say how I feel....

 

I live, breath and feel this beast, so just for today, please let me say

                          I HATE YOU, I HATE YOU, I HATE YOU RA!!

 

Not today RA on Facebook
1/20/10 12:25pm

Very nicely said, I know exactly how you feel. RA and Fibro have robbed me of many things too! It is a relentless Beast, that's for sure.

1/21/10 11:17am

I totally understand, and feel for you.  Thanks for saying it,  I think a lot of us with RA feel the same way.  I miss my life I had and am still having a tough time adjusting to this.  I hate the drugs.  I hate the pain.  I hate the fear of the unexpected flares.  I hate what it has done to my relationships in my life.  (just to mention a few.) 

 

Hang in there!

1/21/10 11:17am

I totally understand, and feel for you.  Thanks for saying it,  I think a lot of us with RA feel the same way.  I miss my life I had and am still having a tough time adjusting to this.  I hate the drugs.  I hate the pain.  I hate the fear of the unexpected flares.  I hate what it has done to my relationships in my life.  (just to mention a few.) 

 

Hang in there!

1/21/10 1:09pm

I hate my RA too.  With significant passion.  If I could materialize it in front of me, I would back into a corner, and it would not get out.  Ever.

 

I hate it so much that I'm refusing to let it win.  Heck, I'm stubborn that way.  Even so, there are days when I tell my wife "I quit this RA business" and I mean it with all my heart.  But there are also days when I say "SCREW THAT!"  :)

 

We are with you Jenmik, we are all with you.  Hang in there!

 

Here's to wishing you a better, brighter tomorrow, and here's to wishing your disease trips down the stairs and leaves you the heck alone for awhile.

Lene Andersen, Health Guide
1/22/10 12:59pm

Thank you for sharing that. Things can get very dark with this disease - at times, it's like it's bound and determined to raze you to the ground, taking everything you are. It doesn't matter that eventually you'll probably adapt or find a new medication or, or, or... sometimes, you just have to grieve and rage and hate the blasted thing. We have all been there, looking into the abyss and the times when the abyss looks back are really scary.

 

I'm not going to do what I normally do and give you a bunch of links to things that may help you, because this post needs to just be about the rage. Later, when you're ready, send me a message and we'll talk.

 

1/27/10 10:11am

It appears you have summed up my life completely

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By jenmik— Last Modified: 12/20/10, First Published: 01/20/10