Tuesday, February 14, 2012

Good news for a change.

     I started taking Enbrel in March.  It took a while to begin to see and feel the effects of my new RA drug.  In conjunction with giving myself Methotrexate injections, the Enbrel has visibly reduced swelling in my knuckles and has improved how I feel.  I have also been able to reduce my Celebrex from two pills per day to one pill per day.  I was allergic to Plaquenil, (broke out in a rash all over), and the Methotrexate alone was just not working.  It has taken a few years, but...(knock on wood),...I feel better that I have felt in quite a while.  I still ache all over and have numb hands/arms and pain in my feet, but overall, I feel better.   

     I went to my Rheumatologist and using the new RA criteria, my personal interview and physical examination, he counted my affected joints and based on the criteria, told me that my RA was in remission!  YEAH!!!

     I hate to say or even type the "R" word.  I hope it continues.  Now,...I need to focus on losing some weight, while I am feeling better.  I have purchased a meditation (suggested by my therapist, to help me deal with chronic pain) and a beginner yoga (for low impact on my joints) DVD.  I am going to try to do some low impact stuff for starters.  I am not going to do any specific diet, per say.  I am going to focus on shrinking my portions and us the food pyramid. 

     We will see how it goes.  Wish me luck, I need all the help I can get. Tongue out 

9/ 5/10 2:45pm

Wow, thats great! I am actually starting enbrel in about 10 days. I was in a pretty bad flare this last week, ended up at the rheumy's office and she gave me a steroid shot some pain meds and said it was time to start something stronger. I have been on plaquenil, methotrexate, prednisone(low dose) for awhile now and I've had 3 o r4 flares in the last year or so. I am glad to hear it has worked well for you. I am a bit afraid of the biologics as Ish was in an earlier post. There are alot of risks involved. My rheumy said she would reduce the plaquenil and meth and drop the prednisone as a result of starting enbrel. It is good to hear good things about meds especially the BIG ones.

9/ 7/10 7:37pm

      It took a while for the Enbrel to start working for me.  I was the same things going on with flares and etc. prior to trying Enbrel.  I was also nervous about it as well.  I had to get used to the sure click pen and the shot smarts when you to it.  It stings pretty good while you are doing it.  But, it does not have the effect of making you feel rotten  the next day like the Methotrexate does.  I also like the fact that I don't have to measure out syringes or worry about bubbles.  The Enbrel sure click pen is already loaded and ready to go.  So injections are simpler, I think.  Plus, then I can just focus on getting past the injection sting and I'm good to go.

     Good luck.  I hope you do well with the Enbrel.  Keep us posted.  I've got my fingers crossed for you!

9/ 7/10 7:39pm

Thanks so much for commenting! Smile

9/ 5/10 4:13pm

Always good to hear good news!  :-)   I've been on Enbrel for 5 1/2 years and has mostly been pretty good ...

9/ 7/10 7:43pm

Hey Ellen!  Thanks for commenting.  Have not heard from you in a while.  I'm glad the Enbrel is working for you.  I sure hope it keeps working!  Did you find that the Enbrel became less effective as time went on?  Hope you post something soon and give us an update!  Hint Hint Laughing

9/ 5/10 5:18pm

I'm glad to hear your symptoms have improved and that your Rheumy used the "R" word for you! That's great! I hope things continue to go so well for you!

I'm on Enbrel right now, but it has stopped working as well for me, so my doc is switching me to Remicade. I'm trying not to be too eager or have too many expectations in case it doesn't work as it is supposed to. I'm flaring right now and to date (since my diagnosis in April of 09) it's the worst flare yet! I'm anxious to get started on the Remicade because it's clear the Enbrel isn't cutting it.

It gives me hope to read your post about feeling better and using the "R" word! Totally awesome! I hope this trend continues for you!

'Shine

9/ 7/10 8:08pm

     I am so sorry that the Enbrel is not working for you and you are having flares.  Flares are awful and it is so hard to stay positive when you are in such pain.  I hope the Remicade works for you.  Please keep us posted as to how you are doing and how the new medication is working.  Thinking of you.  Good luck and Take Care of YOU!

9/ 7/10 8:09pm

     Thanks so much for taking the time to comment!

9/ 7/10 6:58pm

The "R" word is a good word, especially when it is backed by a doctor's opinion. 

 

Enjoy Life girl.  Have at it and congradulations.  Eat a piece of cake for me for the time being.  Celebratem the diet can wait just a bit.  It is your time now.  Run jump skip and shout it from the mountain tops. 

 

I love to hear good things about RA.

9/ 7/10 8:14pm

     Thanks so much for the uplifting comment.  I am going to try to live it up as much as I can.  I'm still a bit "gun shy" about causing a flare but, I'm gonna look RA right in the face and say,..."You want a piece of me?"  "Bring it ON!!!"  Cool

     As a matter of fact, I'm going camping in the mountians on my next days off.  Wish you could all come too!  Take Care of YOU!!!

9/ 9/10 11:09am

The R-word? Yay! congratulations!

 

it does is it your on your way to getting back on top of things. I'm so happy for you. We do have some post on diet and exercise that may be helpful or you can ignore them - you obviously already have a very sensible approach to it.

 

Keep us posted on your progress, please?

9/10/10 1:59pm

     Thanks for the links.  I am not really sensible when it comes to "Diet" and "Exercise".  I need all the help I can get.  I am never really on top of things either Undecided.  More like flying by the seat of my pants/shooting from the hip stuff!

     I am always worried about the next flare up.  I'm a bit gun shy waiting for the next one to put my nose in the dirt!

     I will get on the links and focus on diet and exercise while I am feeling good.  I still have a beginner yoga and a beginner meditaion dvd to open and get into.  If anything,...it will be a great laugh for my little dogs.

     How are you feeling?  Don't overdo.  Take Care of YOU!

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