Hello - My name is Kathi Burke and I live in Buffalo, NY. I was diagnosed with RA about 10 years ago. Having been diagnosed with Crohn's disease 20 years ago, I was used to dealing with a chronic disease, or so I thought. Joint symptoms followed two hospitalozations for crohn's, several month of steroid treatment, and 6 weeks of total parental nutrition (TPN). I woke up one morning with painful, swollen, stiff joints over most of my body. My doctor thought it could be a reverse reaction from weaning off the steroids, but sent me to a rheumatologist to be sure. Two weeks after seeing the rheumatologist I awakened in the night with severe chest pain. My EKG had inverted T waves, I was experiencing angina, and was admitted to the hospital. After a week of tests including an angiogram, it was determined that I had constrictive pericarditis. Oddly enough, the rheumatologist who had seen me two weeks prior, came into the hospital room to see the woman in the next bed. He recognized me, pulled my chart and sat down to explain
how RA affects the linings of organs as well as joints. Since then I have had pericarditis two more times, pleurisy, and crohns' flares. Since being on both methotrexate and humira I am doing very well. How I handle "life with RA" is to be the best I can be each day. On good days I work out at the gym, take long walks with my dog and just try to forget for a while that I have RA. On bad days I pamper myself with ice cream, or a Starbuck's night, or just a glass of wine, curled up on the couch watching a movie. Yes, often there are more bad days than good, but as the tides change, the waves of pain and flares change and each day is a new beginning.
Kathi : )


Hi Kathi - Good luck with everything!! It's so nice to hear someone who can be so positive about such potentially-debilitating problems. I was diagnosed with Ulcerative Colitis about 2 years ago, and in the past couple months I have started having joint pain... it started out as random pain, affecting a finger for a couple days then going away, then maybe my elbow would hurt for a bit and go away, but lately it seems that multiple joints - knees, shoulders, fingers - hurt all the time. I have been meaning to go to the doctor for a long time now, but I'm scared!! I don't want to be diagnosed with RA. But hearing your story makes me feel a little better!!
We may be talking a lot more in the near future... so thanks for sharing your story :)