Friday, June 01, 2012

So happy to find this site as so few understand living with RA

By BuffaloGal Saturday, March 03, 2007

Hello - My name is Kathi Burke and I live in Buffalo, NY. I was diagnosed with RA about 10 years ago. Having been diagnosed with Crohn's disease 20 years ago, I was used to dealing with a chronic disease, or so I thought. Joint symptoms followed two hospitalozations for crohn's, several month of steroid treatment, and 6 weeks of total parental nutrition (TPN). I woke up one morning with painful, swollen, stiff joints over most of my body. My doctor thought it could be a reverse reaction from weaning off the steroids, but sent me to a rheumatologist to be sure. Two weeks after seeing the rheumatologist I awakened in the night with severe chest pain. My EKG had inverted T waves, I was experiencing angina, and was admitted to the hospital. After a week of tests including an angiogram, it was determined that I had constrictive pericarditis. Oddly enough, the rheumatologist who had seen me two weeks prior, came into the hospital room to see the woman in the next bed. He recognized me, pulled my chart and sat down to explain

how RA affects the linings of organs as well as joints. Since then I have had pericarditis two more times, pleurisy, and crohns' flares. Since being on both methotrexate and humira I am doing very well. How I handle "life with RA" is to be the best I can be each day. On good days I work out at the gym, take long walks with my dog and just try to forget for a while that I have RA. On bad days I pamper myself with ice cream, or a Starbuck's night, or just a glass of wine, curled up on the couch watching a movie. Yes, often there are more bad days than good, but as the tides change, the waves of pain and flares change and each day is a new beginning.

Kathi : )

Trigger Point Muscle Pain
3/ 7/07 11:10am

Hi Kathi - Good luck with everything!!  It's so nice to hear someone who can be so positive about such potentially-debilitating problems.  I was diagnosed with Ulcerative Colitis about 2 years ago, and in the past couple months I have started having joint pain... it started out as random pain, affecting a finger for a couple days then going away, then maybe my elbow would hurt for a bit and go away, but lately it seems that multiple joints - knees, shoulders, fingers - hurt all the time.  I have been meaning to go to the doctor for a long time now, but I'm scared!!  I don't want to be diagnosed with RA.  But hearing your story makes me feel a little better!!

 

We may be talking a lot more in the near future... so thanks for sharing your story :)

3/ 8/07 7:10pm

Your positive attitude amazes me I havent been able to get there yet (maybe someday). Anyway just wanted to introduce myself my name is Paula I was diagnosed with Ulcerative Colitis almost 10 years ago and Rheumatoid Arthritis 3 years ago as you said I thought having dealt with one chronic illness for so long would help but it hasn't. The use of more immuno-suppressants has left me feeling like crap most days and struggling with keeping my white blood cell count up. Not to mention the pain as the RA has progressed from just being in my hands and feet to affecting my neck, shoulders, and now my lower back some days I don't know how I will make it through the day. The summer months are much better for me and this past summer I got a gym membership and did alot of boating and swimming and was doing fairly well but now I haven't been to the gym in months and with the use of PRN prednisone have gained back almost all the weight I had lost. If you can offer any tips on how to remain positive during these times please feel free to email me or IM me. Thanks

Paula

Anonymous
Anonymous
3/20/07 2:04pm

I just wanted to say that i think your a real strong person.  Keep fighting and you will overcome anything.

 

Well done

 

PS, i have focused my attention to more natural ways to cure my arthritis and have enjoyed great improvement in the pain, stiffness and swelling. 

 

Im always happy to help, or you can just visit my blog, there may be something of interest to you, or perhaps you have write a few words of wisdom. You have been through alot and im sure people out there would be very interested in hearing what you have to say.

 

Michelle

 

http://arthritis-treatment-painrelief.blogspot.com/

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By BuffaloGal— Last Modified: 12/23/10, First Published: 03/03/07