Friday, June 01, 2012

Hey everybody!

By Jeanne Friday, January 28, 2011

Hey guys!  Well I'm soooo frustrated with being on the Humira.  The medicine does wonders for my rheumatoid arthritis but my sinuses are so bad it's making me miserable.  I'm starting back into college in May and I just don't know how I'm going to be able to focus with a constant sinus headache.  I'm miserable!  The pain in my ears, head, and face is just driving me insane!  Now my lungs are super congested from the constant drainage.  It's so bad I'm actually contemplating getting off the Humira.  I just don't know what to do.  Any suggestions?  Also back in December my red blood count dropped really low.  My hemoglobin dropped to 9.2.  Now my hearts beating super fast when I move around and I'm wondering if it's the Humira or the anemia? The doctors saying my hemoglobin isn't low enough to make my heart race so then what could be doing it?

Hi guys!!!!
V, Health Guide
1/28/11 3:31am

Hi, Jeanne,

 

It seems as though a lot of people have trouble with sinus infections when they take one of the biologic drugs.  Were you prone to sinus infections before you started the Humira?

 

Have you seen your doctor or called him/her about your sinus and chest congestion?  A lot of members have been told to stop the biologics until their infections are under control, so you really need to tell your rhematologist what is going on.

 

So sorry you are suffering this way at the moment.  Sinus infections are so painful and chest congestion is no fun, either.

 

I don't know what could be causing your shortness of breath. Your doctor would needt to investigate that. I had a low blood count...I believe it was 8...when I was having trouble hemorraging before I had a hysterectomy.  I don't remember it making me short of breath.  I was just really, really tired.

 

Lene Anderson, one of our experts here, used to have a lot of trouble with sinus infections.  She says that eating garlic helps keep those at bay. You might want to search the site for sinus infections for more info on that issue.

 

I hope you get some reflief soon.  Please let us know what your doctor says and take care of yourself.  Being sick like you are now can be overwhelming, but hang in there.  This, too, shall pass.

 

Blessings,

V

Lene Andersen, Health Guide
1/28/11 9:45am

Never fear, I have just the ticket for you! For the last eight years, I have been on first methotrexate, then Enbrel and now and Humira, and as you've discovered, immunosuppressants and the Biologics in particular are hell on your sinuses. I used to have a sinus infection, and need antibiotics every other month, but found a way of keeping it down to a dull roar.

 

Drink lots of water, lots of pineapple juice (100%, not from concentrate - Dole is good) and eat lots of garlic. The water will dilute the fluid in your sinuses, the pineapple juice has not just vitamin C, but also an anti-inflammatory enzyme which reduces the inflammation in the sinuses so the now diluted mucus can drain and the garlic has antibacterial properties, which helps keep gunk in your sinuses from festering into an infection. I haven't had to take antibiotics for a sinus infection in about three years. If I do feel one coming on, I increase the quantity of all of water, garlic and pineapple juice, get a nasal saline spray (or make my own with some warm water and salt and drip it into my nostrils with a Q-tip, which helps clean the festering gunk) and have been able to beat it back without the help of antibiotics every time. Check out my post on managing side effects for more information on this and how to keep other side effects at bay.

As for your rapid heartbeat - are you taking any other medications that might be causing this? How is your caffeine intake? One of the things I've noticed with Humira is that it has made me react much more strongly to other things, the caffeine, sugar, painkillers, etc., so that could be part of the problem. Also, people react differently, so although your anemia might not below enough to make the average person's heartbeat increase, maybe it does with you. I recommend you go back to your doctor and the like me, yet firmly put your foot down and asked them to look into it some more. Keep us posted on the progress, please?

Never fear, I have just the ticket for you! For the last eight years, I have been on first methotrexate, then Enbrel and now and Humira, and as you've discovered, immunosuppressants and the Biologics in particular are hell on your sinuses. I used to have a sinus infection, and need antibiotics every other month, but found a way of keeping it down to a dull roar.

Drink lots of water, lots of pineapple juice (100%, not from concentrate - Dole is good) and eat lots of garlic. The water will dilute the fluid in your sinuses, the pineapple juice has not just vitamin C, but also an anti-inflammatory enzyme which reduces the inflammation in the sinuses so the now diluted mucus can drain and the garlic has antibacterial properties, which helps keep gunk in your sinuses from festering into an infection. I haven't had to take antibiotics for a sinus infection in about three years. If I do feel one coming on, I increase the quantity of all of water, garlic and pineapple juice, get a nasal saline spray (or make my own with some warm water and salt and drip it into my nostrils with a Q-tip, which helps clean the festering gunk) and have been able to beat it back without the help of antibiotics every time. Check out my post on managing side effects for more information on this and how to keep other side effects at bay.

 

As for your rapid heartbeat - are you taking any other medications that might be causing this? How is your caffeine intake? One of the things I've noticed with Humira is that it has made me react much more strongly to other things, the caffeine, sugar, painkillers, etc., so that could be part of the problem. I don't mean anything caffeinated anymore, instead I drink hot water with a small slice of lemon - it's refreshing, helps me increase my water intake and it also settles this. Also, people react differently, so although your anemia might not be low enough to make the average person's heartbeat increase, maybe it does with you. I recommend you go back to your doctor and the like me, yet firmly put your foot down and asked them to look into it some more.

 

Keep us posted on your progress, please?

 

 

1/30/11 11:13pm

Yes I definitely will.  I'm still trying to figure everything out.  I'm going to try a few different things.  That's what I was thinking about the rapid heartbeat thing...Some doctors can be so dumb!  I really believe the anemia is whats causing the rapid heartbeat for me.  Just like you said, what might affect one person one way could completely affect another person another way.

1/31/11 1:09am

Yes I definitely will.  I'm still trying to figure everything out.  I'm going to try a few different things.  That's what I was thinking about the rapid heartbeat thing...Some doctors can be so dumb!  I really believe the anemia is whats causing the rapid heartbeat for me.  Just like you said, what might affect one person one way could completely affect another person another way.

Lene Andersen, Health Guide
3/ 2/11 10:06am

We're having some problems with our message center and I'm checking with people to whom I've sent a message in the last several weeks so I can send the results on to the tech team. Did you get the message I sent you when this post was chosen for Community Post of the Week? Would you mind letting me know in a reply to this comment, please?

 

 

By Jeanne— Last Modified: 03/02/11, First Published: 01/28/11