Friday, June 01, 2012

Happy First Anniversary

By Feels like the TinMan Tuesday, July 14, 2009

Here it is, my first anniversary of my official RA diagnosis.  I keep checking with my front office here at work, to see if I got flowers, or a card, or even the traditional paper gift.  Nothing.  Guess no one remembered this day, but me. 

 

     A year ago today, I was shellshocked to the get the DX.  I really shouldn't have been, because I had diagnosed my own illness (with the help of WebMD)and presented it to my primary care doctor, after ruling out everything else (I should have stuck with medical school as I had originally planned).  I remember being scared out of my mind, thinking I was going to be disabled. I remember not being able to sleep at night.  I remember being frustrated with the pain, the lack of empathy, and the lack of meds, and the 'death wish' I had nurtured for those 3 months. I remember not liking my rheumatologist, because I felt he really didn't care about me.  I remember my mother being as scared as I was, and even more worried, because she's the Mom, and Moms worry about EVERYTHING. 

 

    I remember Mom telling me she would buy a handicapped shower chair, and all kinds of special devices for "people like me" (for when I went to visit her in TX). Now hold on a minute!   People like me do things like ride a motorcycle. People like me do yardwork.  People like me sweep and mop their floors and clean their homes! And people like me have Rheumatoid Arthritis and manage just fine!  And I realized I had to remember that!  Once I got my precious drugs (Plaquenil and Prednisone), I got back to being "a person like me". 

 

     Fast forward to a year later, today, and I think about those horrendous months of not being able to zip up my pants, or hold my arms up to wash my hair (what good it would have done, when I couldn't move my fingers either). I remember the days of not being able to hold a pencil, or tie my shoes, or staple my papers at work.  I remember dreading to get up to go to the restroom or the copier, because I could swear that everyone could hear the inner screams of pain inside me.  I remember the days when I wasn't "ME".  But now, life is good again.  My pain is virtually non existent. I guess I was one of the lucky ones.  RA doesn't consume my every living thought.  Some days I forget I have it. 

 

     Today was my 3 month date with my beloved rheumatologist (who I like now). I just remembered that I did get my "paper gift" for my anniversary. Actually, I got 2 gifts of paper! One was a prescription for another 3 months of Plaquenil and the other was an Xray order (of my hands and wrists because now I have "thickening").  *Sigh* 

 

     But, to celebrate my "anniversary", I can smile again because gone are the worries of disability, the pain, the sadness, the depression.  I know that fearful 'flare' is lurking somewhere waiting to hit me when I'm the most vulnerable, but it's not today.  This is my first anniversary.  And I'm celebrating without pain.  Happy Anniversary to me! 

~desiree

Express yourself with an RA tattoo
Lene Andersen, Health Guide
7/15/09 10:50am

Congratulations!  I'm so happy to hear that you and your RA have found a way to live in  harmony.

 

And thank you so much for this upbeatand hopeful post. I love hearing the success stories - it so important for us to remember that good things happen.

7/16/09 10:45am

Well, tomorrow is my 27th birthday and I'm still learning about this new diagnosis.  It the "early stages" of RA and not guarenteed to reach the worst.  However, I've now been on Plaquenil and Naprosin for two weeks today.  The first day of realizing I was on DMARDs was terrifying but the NSAIDs have given me a large amount of relief.  Because it's the early stages I'm not in the middle of a bit flare-up, it's rather mild right now.  But the 6 weeks of inner screams and vocal cries as a reflex when I simply tried to pull up my pants or wash my hair (before even seeing my doctor about the pain) linger below the surface of my mind.  Every day I wait expecting it to bubble right to the top and flare up again.  Reading posts like yours help me to see that it's not all bad, all of the time and that I'm not alone.  Today my TMJ is receiving a visit from my RA so it might mean soup for lunch, but that's ok.  At least I can talk and walk.  And tomorrow it will have moved on to visit another lonely joint, so I will eat cake and be merry!

Anonymous
pipercat
7/16/09 12:15pm

Its sereIndipitous that I should find yours today as its two years of symptoms for me and I was thinking back to the process - I became worse and worse and could barely get out of bed - I decided to go to the er to see what help i could get as I didnt have a family doctor and chances of finding one here are very slim - the er doctor said you shouldnt be here and gave me a perscription for celebrex and that was that.

 

I was lucky enough to find a really good doctor who diagnosed me and sent me to a wonderful rheumatologist who i love - he prescribed plaquinal, sulfasalazine and methotrexate and after several months they kicked in and I began to feel more like me.

 

Its been about 1 1/2 years on meds.  I exercise daily - I walk one day and stationary bike the other plus weights and feel almost normal - just the odd twinge when I stand up but compared to what i was this is fine.

 

thank you for yours.

 

pipercat

7/16/09 2:17pm

This is one of those anniversaries where you have to decide if it's something to celebrate or something to mourn.  I had my 1 year anniversary May 1st (May day May day!!).  I too felt a bit ambivalent.  You know, good that it got diagnosed so I can do something about it but.....dang, I got RA!! 

 

Like you I am doing oodles better.  I likewise appreciate reading posts like yours that celebrate the improvements.  It can get better.  Still sucks, but it doesn't have to be the worst case scenario either. 

 

I'm so glad you're back to being the biker babe you wanna be, luv.  Good on ya!

 

-Amy

7/16/09 4:42pm

riding days are over for at least another 2-3 months.  i live in ARIZONA and it's been 114 or so for the past week.. with yet another week to endure.  i'm hiding in my house, and only coming out to forage for food.  the sun makes my skin sizzle!! 

but yeah, a melancholy anniversary..  glad to hear you're doing 'oodles' better!

~desiree

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By Feels like the TinMan— Last Modified: 12/19/10, First Published: 07/14/09