Hello everybody....Im here venting with you all...Im a 32 yr old mother of 5 suffering with RA, Lupus, Fibromylgia...This winter I have really been dealing with so much pain!..UGH!. and Im so tired of it...Everything in my body is aching..My feet hurt so bad that when I wake in the morning to get up I cannot walk.. my heels and my ankle hurt so bad I cant take it.. I just feel like Im failing everyone ...My husband works so much that he cannot help very often..but when he is here he does dote on me alot!..
I have felt bad before ..but lately it seems like this flare up has lasted about 3mo...I feel very lonely...I just want myself back!...I mean I have had all this forever but not even my Meds are helping lately...
Thanks for hearing me out..I needed to just let it out!....
Michelle
Hi Michelle
It is frustrating and down right so hurtful with all that you have...and I feel for you...
I think it is hard for others around us to grasp what we are going through...its good that your hubby helps you.....
I have RA and Lupus is not definite at this point...but the pain and tiredness that is non stop is a real challenge....I know the feeling of being tired of being tired....the pain we endure brings on the unrelenting fatigue...I am not happy with the what the RA has taken from me, and I will never give up the fight, but, there are times when I just want it to stop and have some normalcy....
Through being in contact with others that share our disease, its trial and error with the meds...what works for one person may not work for another....
Hang in there, and I hope your doctor can help you get some relief, even if its temporary.....What I pray for everyday, is that a cure will be found in our lifetime...
Lizzy
I have been staying up at night because resting even a few hours just awakens me to so much pain that I can't function....and I need to function....to get to work....in the morning....
Hello Lizzy!...My gosh it sounds like your going through the same thing..I cant believe your still working...I worked at a Dr. Office, and just stopped working because I couldn't take it anymore..
Although I have to say that I miss my co workers so much...I never thought That at at my age I would be dealing with these diseases... I cant function Lizzy there r so many things that these diseases has taken from me that its not funny...and what hurts me more is that our kids have to deal with it...I tell my husband that if I wouldve known all this was going to happen ..I dont think I would have had Kids...I know its sounds wrong...and Believe me I Love My Kids with all THat I have...But for them to see me like this..or They want me to do certain activities with them and I cant..I see the dissappointment in there faces and that eats me up alive...My daughters want me to always be there class mom..and sometimes with this u cant committ to anything because 1 DAY your feeling fine while there are others that u dont how your feeling!...
I hear you about the pain..I dont wish this on my worst enemy...and the fatigue..Geez..Im not kidding with the way Ive been feeling all I want to do is be in bed..I clean my house in the morning when the kids are at school..then I shower and time to lay down again..until everyone gets home...Then I blame myself for doing that..I feel like such a failure...The world is outside and all I can do is Lay Down...
I dont know if this happens to you but .. even to drive its a challenge..its so tiring...I dont understand this...
But thanks for understanding and hearing me out..If you ever need to vent or just talk..Im here...
Michelle..
Ill say a prayer for you Lizzy!