Does anyone, Ever feel Guilty about this Disease!! Like your Cheating the ones you love!!

Michelle is Thankful for Life... Living With It Im 32 yrs old..mother of 5..living with RA for about 4 yrs.. Im a 32 year old mother of 5 beautiful kids..I love them so much..I... Send Message Subscribe: Michelle

Tuesday, November 25, 2008
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Hi AGain..To all Im here sharing some more of my life..If thats okay!! HAs anyone ever felt guilty that you were cheating out the ones you love of having a life!! I feel like that so many times..My kids ..Age from 14,12,10,9,7 and sometimes I feel like they get so mad at me!! They try ..I know th...

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Jenny2008
Tuesday, November 25, 2008 at 03:31 PM

Hi Michelle, I'm also 32 y.o. Sometimes I feel like a burden and guilty because I can't walk as fast or have to ask my husband to open jars, help me get dressed, etc... on days when the pain is the worst. I shouldn't feel that way because my husband is very supportive (it's just the 2 of us) and very helpful. But I still feel that way, it can be a drag. But try not to blame yourself, it's not your fault at all. Sometimes it's easier said than done, I know. Do you have a good rheumatolgist you're going to? That's good your husband is supportive too, it makes a big difference. Hang in there, you sound like a strong person, having to deal with RA, Lupus, Fibromyalgia and raising 5 kids. ((Hugs))

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Michelle
Tuesday, November 25, 2008 at 07:48 PM

Thanks for the comment!! I relate so much to you..I to feel like a burden!! But as finding out with sharing my post seems like we all feel like that from time to time! And to tell you the truth Im relieved. It has been so nice to hear from people like you that give me advice..Makes my days a so much better..

Gosh so its just you and your husband..Must be so different! I mean My guilt is my husband X5..You know!! And I want my kids to know that I love them so much..And that when I dont do something..Its not lazyness its pain..Or extreme fatigue..But as kids, Sometimes they dont understand it!! My husband is great..Except he works 100hrs weekly..But even when hes tired he'll go out of his way for me..Thats what worries me..THat one day he wont be able to take it anymore!! ..But God has his hand on us!! HE wont let us fall..

Well I hope you ..are having a great day...

we are the same age.and Im sure we can relate to eachother..so if u ever want to vent..just email me..michelle.sarabia@yahoo.com..

THanks again..Hugs

re: Untitled Comment
Michelle
Tuesday, November 25, 2008 at 07:48 PM

Thanks for the comment!! I relate so much to you..I to feel like a burden!! But as finding out with sharing my post seems like we all feel like that from time to time! And to tell you the truth Im relieved. It has been so nice to hear from people like you that give me advice..Makes my days a so much better..

Gosh so its just you and your husband..Must be so different! I mean My guilt is my husband X5..You know!! And I want my kids to know that I love them so much..And that when I dont do something..Its not lazyness its pain..Or extreme fatigue..But as kids, Sometimes they dont understand it!! My husband is great..Except he works 100hrs weekly..But even when hes tired he'll go out of his way for me..Thats what worries me..THat one day he wont be able to take it anymore!! ..But God has his hand on us!! HE wont let us fall..

Well I hope you ..are having a great day...

we are the same age.and Im sure we can relate to eachother..so if u ever want to vent..just email me..michelle.sarabia@yahoo.com..

THanks again..Hugs

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Jenny2008
Monday, December 01, 2008 at 03:12 PM

Hi Michelle,

Thanks for your replies. I hope you and your family had a nice Thanksgiving! My husband and I did. Believe or not, we even went shopping Friday morning! We didn't leave until 5:30am and surprisingly stores weren't really crowded at that time. How has your pain and stress level been? Hope you are feeling ok, take care!!

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Michelle
Monday, December 01, 2008 at 10:09 PM

Hello there!! My Thanksgiving was awesome ..I have been ok to surprisely..We to went shopping on friday. (My husband & I)had an awesome time..I look forward to after Thanksgiving sales..I dont ever really buy to much..Because I dont want to fight over stuff ..I just like to get out..So how are you doing today..Hopefully well..

Take care!!

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Michelle
Tuesday, November 25, 2008 at 07:52 PM

O by the way..In regards to the rhuemy..WE only have 3 where I live..And finally found the one for me...So Im really happy about that..HE actually listens to me..I dont know why some doctors just want to load us up with MEds..Pain or other..and think we will be happy with just that...I wanted one to hear my concerns..FInally found him..

Ditto
CharBrue
Wednesday, November 26, 2008 at 02:00 PM

Michelle, I feel the same. Before my symptoms started in July, I was very active with exercise and activities with my three kids ages 14, 10, 6. Now I can barely get out of bed in the morning to prepare breakfast and send them off to school. I tried to go Christmas shopping with my husband last weekend and only made it through one store before I had to call it quits. I feel like I'm depriving my husband of a strong wife and my kids of their once active mother. All I want to do at the end of the day is sleep. I just started methotrexate and was put on a prednisone dosepak for a week. I had a burst of energy last evening and I pray that it continues!

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Michelle
Wednesday, November 26, 2008 at 04:25 PM

Gosh..I hope that you do continue with the energy!! Its crazy isnt it? I know that I took it for granted so many times..And now I wish I would just have one whole week without pain or being so tired..I know what you mean about not being able to get to feed your kids breakfast..I feel like u do everyday..And I ask myself if im the only one..I literally feel like a bad mom!! Its really heart breaking..I know exactly what you feel when it comes to the husband..ITs so great that we can all just pump eachother up..

THanks for the Comment..

Happy ThanksGIving!! Hope you continue on the well path..If u ever need to chat..Im here!!