Hi AGain..To all
Im here sharing some more of my life..If thats okay!!
HAs anyone ever felt guilty that you were cheating out the ones you love of having a life!! I feel like that so many times..My kids ..Age from 14,12,10,9,7 and sometimes I feel like they get so mad at me!! They try ..I know they do!! THey do help..But really how much can they take!! I have two of my kids that are showing some symptoms of JRA..and it really scares me...My 12,10..are showing some signs..I have one home today because hes in so much pain that he cant bare it!! I feel so bad..And I feel guilty that he might have it because of me!! Where not for sure yet ..waiting on results!! BUt they way they hurt..It mimics me!! I wonder sometimes how life would be with out all this..ANd to tell you the truth I cant even..THink of not having it..I dont remember what it feels like!! I want to be a great mom..and wife..But this disease limits me so much! THeres days that I cant even get out of bed!! My husband is so great ..he helps me out so much!!..
well This is my thought for today!! THanks for hearing me out!!
Michelle
Hi Michelle, I'm also 32 y.o. Sometimes I feel like a burden and guilty because I can't walk as fast or have to ask my husband to open jars, help me get dressed, etc... on days when the pain is the worst. I shouldn't feel that way because my husband is very supportive (it's just the 2 of us) and very helpful. But I still feel that way, it can be a drag. But try not to blame yourself, it's not your fault at all. Sometimes it's easier said than done, I know. Do you have a good rheumatolgist you're going to? That's good your husband is supportive too, it makes a big difference. Hang in there, you sound like a strong person, having to deal with RA, Lupus, Fibromyalgia and raising 5 kids. ((Hugs))
Thanks for the comment!! I relate so much to you..I to feel like a burden!! But as finding out with sharing my post seems like we all feel like that from time to time! And to tell you the truth Im relieved. It has been so nice to hear from people like you that give me advice..Makes my days a so much better..
Gosh so its just you and your husband..Must be so different! I mean My guilt is my husband X5..You know!! And I want my kids to know that I love them so much..And that when I dont do something..Its not lazyness its pain..Or extreme fatigue..But as kids, Sometimes they dont understand it!! My husband is great..Except he works 100hrs weekly..But even when hes tired he'll go out of his way for me..Thats what worries me..THat one day he wont be able to take it anymore!! ..But God has his hand on us!! HE wont let us fall..
Well I hope you ..are having a great day...
we are the same age.and Im sure we can relate to eachother..so if u ever want to vent..just email me..michelle.sarabia@yahoo.com..
THanks again..Hugs
Thanks for the comment!! I relate so much to you..I to feel like a burden!! But as finding out with sharing my post seems like we all feel like that from time to time! And to tell you the truth Im relieved. It has been so nice to hear from people like you that give me advice..Makes my days a so much better..
Gosh so its just you and your husband..Must be so different! I mean My guilt is my husband X5..You know!! And I want my kids to know that I love them so much..And that when I dont do something..Its not lazyness its pain..Or extreme fatigue..But as kids, Sometimes they dont understand it!! My husband is great..Except he works 100hrs weekly..But even when hes tired he'll go out of his way for me..Thats what worries me..THat one day he wont be able to take it anymore!! ..But God has his hand on us!! HE wont let us fall..
Well I hope you ..are having a great day...
we are the same age.and Im sure we can relate to eachother..so if u ever want to vent..just email me..michelle.sarabia@yahoo.com..
THanks again..Hugs
O by the way..In regards to the rhuemy..WE only have 3 where I live..And finally found the one for me...So Im really happy about that..HE actually listens to me..I dont know why some doctors just want to load us up with MEds..Pain or other..and think we will be happy with just that...I wanted one to hear my concerns..FInally found him..
Hi Michelle,
Thanks for your replies. I hope you and your family had a nice Thanksgiving! My husband and I did. Believe or not, we even went shopping Friday morning! We didn't leave until 5:30am and surprisingly stores weren't really crowded at that time. How has your pain and stress level been? Hope you are feeling ok, take care!!
Hello there!! My Thanksgiving was awesome ..I have been ok to surprisely..We to went shopping on friday. (My husband & I)had an awesome time..I look forward to after Thanksgiving sales..I dont ever really buy to much..Because I dont want to fight over stuff ..I just like to get out..So how are you doing today..Hopefully well..
Take care!!