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Wednesday, November, 25, 2009
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Immune issues and fertility

Emma M
Emma M
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Emma M is An old hand (32 yrs with RA and climbing ...)
Diagnosed RA aged six. Now 38 with Juvenile Chronic Arthritis.

I'm a generally sunny person who has had RA since 6: now 38. Am a...

Emma M

Sunday, July 12, 2009
View All of Emma M's Posts
Hi, everyone.  Hope you're having a good day today.  A site member suggested I share my recent experiences in trying to get pregnant.  Sorry if this is a long post!   A bit of background: I'm based in London, England.  I am 38 and was diagnosed with RA when I was 6.  S...
  1. Untitled Comment
    Alice
    Monday, July 13, 2009 at 12:29 AM

    I have been pregnant twice since having R.A and both times my R.A had seemed to just go away but it aways seemed to come back worse. It seemed as if the R.A was making up for lost time!! Good luck trying to have a baby dont try so hard and it will happen!!

    Reply
  2. Untitled Comment
    Lene Andersen
    Tuesday, July 14, 2009 at 11:50 AM

    Thanks for much for posting your story - you certainly are having the hard time of it. I learned a lot from reading this post. Good luck with your next try and please let us know how it goes?

    Reply
    pregnancy and RA
    Anonymous
    Monday, July 20, 2009 at 12:03 AM

    I had significant fertility issues related to RA.  I was able to get pregnant easily, however the NK cells in my uterus caused seven miscarriages- three of them alone were in the span of seven months.  Please consider doing a web search for Dr. Allen Beer, MD.  He was based in Chicago, but consults world wide. He specializes in women with fertility issues related to autoimmune diseases.  In my case the problem was solved by remaining on Enbrel until a strong fetal heart beat was viewed on sonogram.  My Enbrel baby is now 5 years old and will be starting school this fall.  I would not have this wonderful, smart little guy without Dr. Beer's cutting edge research.  

     

    Best Wishes on your journey to become a mum.

    Reply
    re: pregnancy and RA
    Emma M
    Monday, July 20, 2009 at 05:11 AM

    Thankfully, my doc follows Dr Beer's protocol to a large degree (though I can't get to see Dr B as he died in 2006.  His book - Is Your Body Baby-Friendly? - seems to be a much-read book by those with fertility and related issues).  Despite difficulties getting there, it's good to read that ladies with RA are able to get pregnant.  Unfortunately, it seems to be because I have the inflammatory version of the disease that we're not getting there; I'm not offering the safe haven of a womb - I'm providing an oven (!) which even I find difficult to cope with so the embryos have little chance.  And, with the arrival of swine flu and the added risk that brings to pregnant ladies/people with suppressed immune systems, I fear that our chance has passed.  (We were on a time deadline as my other half is significantly older than me and doesn't wish to be a doddering dad ... Laughing)

    Reply
    re: pregnancy and RA
    Emma M
    Monday, July 27, 2009 at 10:44 AM

    Hi ... it's good to know that people with our condition can get a little one.  My rheumatology doc says that others with JIA get PG ... just not me.  For info, I had my Chicago tests updated after the latest failed IVF cycle.  My NKs were at exactly the same levels as pre-treatment (TNF-alpha is in normal ranges), even though I'd been on 25mg prednisolone daily plus had 1 x ivig and 2 x intrallipids.  The tests indicate that ivig should work for me but the intrallipids do nothing.  However, I have to ask if any of it actually works if my NKs haven't changed?  We've decided to give it a break for a few months as my body has been overloaded on all fronts and I've been terribly emotional lately - plus my JIA has flared-up and progressed.  And, when I saw my gastroenterologist last week, he said that a) I look like a wreck (he meant well and he's not wrong!) and b) my neck is swollen so now I've got to go and have thryoid and other tests done. 

     

    If reincarnation exists, then I must have been v bad in a previous life - as it seems my body goes from one crisis to another.  Oh for a Fairy Godmother with a magic wand ... Laughing

    Reply
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