Thursday, May 31, 2012

Some personal experiences and thoughts re the UK healthcare system (NHS)

By Emma M Friday, August 14, 2009

I've been watching from afar (am a Brit) the (increasingly firey) coverage regarding President Obama's plans to reform the US healthcare system.

 

Now, I have no desire to offer or exchange in any political views as this is most certainly not the place for it nor have I any interest in praising or otherwise the US system (which I know little about) - though I thought I'd share some experiences (good and bad) about the National Health Service in the UK as it's been something I've used heavily over the years - not least for my arthritis - and which, if the TV coverage is true (?!), could be an approximate model for any US system.

 

Firstly, how much does it cost? According to the NHS website (http://www.nhs.uk/NHSEngland/aboutnhs/Pages/About.aspx), the Service is funded via the government (from our taxes) so about £1500 per person annually (2007/8). As the funding comes from taxes, the unemployed, retired, children, etc pay nothing.  The system works on the premise that, no matter your age or wealth, you will be taken care of - including through Accident and Emergency.  Note that I have private healthcare also, which costs £200 ($330) a year.  This is voluntary as the NHS does have issues over waiting times, which vary from region to region, department to department.  I have had at least £1000 of treatment from this policy this year alone, with no hassles over getting approval from the insurer - though I've not had to use it for my arthritis.

 

Secondly, how does it work?  Probably like the US, you will visit a General Practitioner (ie, family doctor) who will examine you and refer you to a specialist if required.  All tests, scans/MRIs, x-rays, operations and most medication is free.  I say most because, in the case of the biologicals, such as enbrel, the cost is so great that only the most needy will be provided with it.  (A friend with v bad psoriatic arthritis gets terrible flare-ups from flying.  Knowing that he needed to be as bad as he could be on the day of assessment to determine whether he was a candidate for enbrel, he arranged a legitimate business trip to Singapore (from London) immediately in advance of his appointment.  He had a 45 min biz meeting (crazy, I know) and almost had to be helped off the plane when he arrived back in London.  The panel of consultants and docs saw him at his worst and he now has the meds he needs; they have transformed his life.  I hasten to add that he was very much in need of the meds generally; this was a legitimate if extreme manipulation.)  If a patient felt they needed it but couldn't get NHS approval, they would have to pay privately.

 

From an RA perspective, I have nothing but praise for the NHS hospital I am with.  It is a major teaching hospital in London (Guy's).  I can call a helpline any time and they always respond within less than 24 hours.  On my last visit, I saw a specialist nurse who spent masses of time with me (an hour, certainly), called in a consultant to have a chat about treatment (only a 5 minute wait) then gave me a deep-muscle steroid injection.  I see her again in a few weeks' time.  Also, on request, she prepared and gave me a letter to use when I go on holiday (to Australia: yippee!) in a couple of weeks' time - the reason being the temperature scanning at airports that's now taking place for Swine Flu; we need to show that, if it's up, it's prob RA and not Swine Flu.  NB: I'm no longer working so they're not getting any money from me.  Another time, I was on holiday in Scotland, and had a terrible flare-up; I was admitted to hospital within three hours of seeing a GP and was treated for two days.  (To be specific, steroids, methotrexate, hydroxychloroquine, sulfasalazine, azathioprine, etc ... all free with the NHS.)

Lisa Emrich, Health Guide
8/14/09 5:11pm

Hi Emma,

 

Thank you so much for presenting such an objective view of the NHS from a patient's perspective.  No system is perfect, but solid foundations are key.  I'm glad that you have personally been able to get the care you need, especially for the RA.

 

It's too bad that the few who are screaming the loudest (from both sides of the issue) are being featured so much in the US media.  So much so that the screaming is heard across the pond.

8/17/09 7:52am

Hi, Lisa ... the screaming has been even louder in recent days as a British Member of the European Parliament said that he "wouldn't wish it [the NHS] on anyone" on Fox TV, I think.  He must have had a v bad personal experience!  Not representative of the whole.  I just wish, wish, wish that things could be easier for those who, if only they could the treatment, could contribute even more to their families/communities/countries - particularly reading the second comment to my post. 

8/15/09 5:37pm

Thank you so much, Emma, for your informative and very interesting post! 

Before RA I took health care for granted, although I've always known that 1 accident or disease onset can send just about anyone into bankruptcy.  Now that I have RA the stakes are higher.  I am purposefully putting off going on to the next step in drug therapy (right now I'm only on Plaquenil) because the longer I can wait the closer Enbrel and his brothers will be to their patents expiring.  I pay about $1,500 per year and my employer picks up the other half for private insurance, which is "managed care".  Basically this breaks down to the insurance companies dictating step-by-step protocols to my physicians.  If the Docs go outside of the protocol, they won't get paid and can lose other reimbursments as a penalty.  That isn't bound to change with any of the reforms. 

You've really given me some things to think about- thanks, again!

8/17/09 7:56am

Hi, Kim - you've confirmed my suspicions re the power of the insurance companies: dictating your care.  It's all about what's good for business rather than what's good for the patient.  No wonder they're suspected of mobilising the few to shout the loudest about NOT changing the system.  (Cue Darth Vadar music ... :-))  I didn't know about the patent issue and hope that day comes swiftly.  In the meantime, I'm sure you're doing everything you possibly can to manage each day and hope that you have many more good days than bad.

8/19/09 11:38am

Thank you for your encouragement and good wishes, Emma.  Yes, typically you can "follow the money" to find the reasoning behind policies in the U.S.  The money men are using fear (as always) to drive resistance to healthcare reform.  The fear of change  is perplexing because the system is so obviously broken.  It looks like in order to make any improvements the President will have to concede on some key reforms.  Hopefully he will pick them back up down the road, if he gets the chance.

I think the silver lining of having RA is that quality of life doesn't equate to how many material things you can buy.  I've noticed on this forum that many of us get introspective about what we need to be happy and I'd like to think that we're closer to the truth of it.  Relationships are at the heart of happiness for me.  I can't tell you how much it means to receive your support and inrformation about a different health system.  Information combats fear of the unknown.

I'm sending wishes your way, too, for more good days than rough ones. 

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By Emma M— Last Modified: 12/19/10, First Published: 08/14/09