Thursday, May 31, 2012

just life changing

By texasleo/Kevin Friday, April 02, 2010

An update to any who remember Im a 37yo man who has never married and no kids was finally skilled enough to go on his own and start his own const. co after a yr and a half having to shut it all down lose my home and leave the state i lived in to move in with family. I am unable to work and in debt over my ears. Now here I am been diagnosed with RA in my knees hips shoulders back and hands. Severe disc degerative disease and also spinal stenosis and to top it off deposits of fat and tissue on my spine that thank god is NOT cancer YAY. But here I am 37 and walking with a cane now. Taking lidocaine shots in my knees and shoulders doc say it doesnt last me long enough to take the discomfort of having my hips done. I take 15 mg of prednisolone a day 50,000 mg of Vit D 2 times a week 200 mg of celebrex 2 times a day cymbalata for depression 60 mg 2 times a day Folic Acid 1 mg 1 time a day Hydrocodone APAP 7.5 500 tab twice a day and Tramadol HCL 50 mg as needed Prilosec OCD 1 time a day And just starting injections of methotrexate 1 time a week at .4

Surgery is just a temp fix at this point with the stenosis and deposits compounded with bulging discs and I do NOT want to go that route untill I 100% HAVE to. Seeing the career I have trained for and worked over 20yrs learning and perfecting my skill and complete knowledge of residential construction and its all gone in a relative small amount of time. Im on food stamps and public assitance for my health care all i have now is I have an appointment with a SS lawyer to try and have some kind of income. I cant work I cant sit long I cant stand long walking is a joke on my little old man cane and yet all I can do is keep going on.

latest and greatest update on me .... hmm sarcasm.
4/ 6/10 3:01am

Life is hell for you now. It is also hell for many of us from time to time. Just remember you are not alone in your suffering. Try to take things one at a time. I do not know if it is possible to get a good doctor who will talk to you and give you the feeling that he/she is there with your suffering. It does make a lot of diffference and to your spirit to fight your situation.

Ratnapriya

Lene Andersen, Health Guide
4/ 6/10 1:22pm

I'm so sorry that you are having such a rough time with this disease. I am glad to hear, however, that you are starting methotrexate and hope it will help. It usually takes about 6-8 weeks to kick in, but if it doesn't work as well as you'd hoped, talk to your doctor about combination therapy - it's quite common to take two or more different DMARDs (disease modifying antirheumatic drugs like methotrexate and the Biologics), as together they can work better than just one alone. There are a number of financial assistance programs for medication that may be helpful in getting you treated. You may also want to check out my post on SSD - it has a number of links to resources that can help you get through the process and avoid denials.

 

Please keep us posted on how things go?

4/ 8/10 11:19am

I am sorry to hear that things are going do bady for you. It sucks this RA crap.I mostly feel bad that you are on all the meds that you just mention. That has got to be the hard part. I am gratefull that you have some coverage for the meds you are on. They have got to be very costly.I see that you are taking a acid reducer and you know that is a add med due to all the other stuff your taking. To all of you out there this is exacatly why it is hard for some of us to take all that crap. One pill needs this to go along with this one. Sometimes it seems there is no room for food or anything else because of these meds. It is a long hard battle to fight. Thank God for all of you that help us though it.

4/ 8/10 11:19am

I am sorry to hear that things are going so bady for you. It sucks this RA crap.I mostly feel bad that you are on all the meds that you just mention. That has got to be the hard part. I am gratefull that you have some coverage for the meds you are on. They have got to be very costly.I see that you are taking a acid reducer and you know that is a add med due to all the other stuff your taking. To all of you out there this is exacatly why it is hard for some of us to take all that crap. One pill needs this to go along with this one. Sometimes it seems there is no room for food or anything else because of these meds. It is a long hard battle to fight. Thank God for all of you that help us though it.

4/13/10 1:11am

Check out Z-CoiL Pain Relief Footwear, best thing I did for myself. I have RA, and a bad back.

4/13/10 1:11am

Check out Z-CoiL Pain Relief Footwear, best thing I did for myself. I have RA, and a bad back.

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By texasleo/Kevin— Last Modified: 12/19/10, First Published: 04/02/10