kind of scared of rituxim

By JJ Tuesday, April 15, 2008
 Has anyone tried rituxim infusions and how are they getting along? I have had arth for 18 years, an aftermath of having parvo virus.I currently take 15 mg of Methrotrexate weekly and just finished a course of prednisone. They still have me on prednisone , Kimbrom and dilating drops for Uveitis. I got a steroid shot in my eye a week ago and it kind of helped the inflammation. I now have degenerative ,osteopenia and rheumatoid. I really have gotten along great until lately. I HAVE TOTALLY LOST ALL ENERGY!! I have uveitis and my blood crp has gone high. My Mayo doctor recommends either enbrel or rituxim. I am apprehnsive about the ritxim because I have not heard much about this drug. Would truly appreciate any in put.  
Hollybgroovin, Health Guide
4/16/08 11:01pm

While starting a new medication can be scary, starting a newly available medication for rheumatoid arthritis can be even scarier.  That being said, I myself have actually taken Rituxan on a rheumatoid arthritis study.  Well, may have taken Rituxan as I was never really sure if I got the true dose or not.  I did feel extremely wonderful after my 6 hour infusion whether it was from the saline or the actual medication.  Also the people that I have spoken to during my various 6 hour wait in the infusion room have all had very positive things to say about it.  However, as with a lot of rheumatoid arthritis medications, there are some scary side effects.  I have found a link for you to look over if you would like in regards to some things the Food and Drug Administration had to say about Rituxan.

http://www.healthcentral.com/rheumatoid-arthritis/c/53/3439/drug/

Please know that we are all here to support you in this and feel free to vent or ask questions any time!  Please keep us posted on how you are doing with the Rituxan and if you are having any relief or side effects.  Good luck and best wishes! 

4/17/08 12:20am
I think I might start out with Embreyl instead of Rituxin. Do people really gain lots of wait with Embreyl? I am already fighting alosing battle with my weight. I just got off another go round with steroids. I have all the roids factors,round face fluid and fat stomach.If emreyl causes weight gain I would possibly choose Rituxim do to I am so tird of being fat I use to weigh 120 and I am 5'5" so I actually was thin at one time. I know I have not seen my waist in acute pair of jeans for years. Why can't I ever get a disease that makes you lose weight instead of gaining weight!! 
Anonymous
debbie freiden
5/ 7/08 11:18am

Hi there,

My name is Debbie and about 1 month ago I started Rituxin.  It was my last resort.  I've been on all the other remicade, enbril, humira, etc.  I have had RA for 10 years.  I did one infusion and then another two weeks later.  I am still on methotrexate, but cannot function without 5-10 mg of prednisone.  So far no real improvement noticed.  I live in a very damp climate with many molds and pollens.  I always take notice of the barometric pressure.  We will see.

Debbie

Anonymous
Kim Daemi
7/29/08 12:20pm

I have had RA for 16 years. I have tried other treatments.  Embrel, Arava, Humeria.  Methotrexate made my stomach upset. So we tried the Rituxim I am on my third dose. I lasted 10 months the first time and 9 second dose.  But I had a lot of things going during that second dose.  I don't pain meds right now. With the Embrel and the rest I still hurt and took strong pain meds.  I hope this helps you out.   God bless you. 

Kim Daemi

 

Anonymous
James
1/ 8/10 7:10am

i have a RA for last 6 yrs and have heavy pain,

i cant able to which stand the methroxite it will creat a fevere and alergy.

kinldy reply the sequence of how to proceed further

pls advice me can i take a rituxim

 

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By JJ— Last Modified: 10/26/11, First Published: 04/15/08