RA and post-infectious Asthma (hard word to type!)

By Ellen Galo Thursday, September 29, 2011

Hi - I developed 'post-infectious asthma' last spring, and have been on Advair twice a day since. Actually, I only used it once a day after the first week - until about a month later, when my doctor had assured me that "If it helps, use it twice a day."  Now, if i dont', I get feeling REALLY BAD, like someone has kicked me in the Solar Plexus.  Not what I would expect from a breathing treatment (i.e., my 'chest' doesn't hurt, but I feel totally crunched in the middle, and I guess that is the lower part of my lungs and/or diaphragm?)

Anyway, it's weird, and I'm curious if anyone else has had 'interesting' episodes with asthma.

P.S. Just got my flu shot and had no problem...

V, Health Guide
9/29/11 8:35pm

Hi, Ellen,

 

Yes, indeed!  Asthma on top of everything else.  Wink

 

I had asthma as a child and then totally ignored that fact most of my adult life.  Well....in July of 2010, before I was Dx with RA, I had a major Asthma attack.  I went to the doctor because I thought I had a bad cold or something. My pulse ox was 86.  My doc went bananas, gave me a breathing treatment and a shot and Advair. I have been on it ever since...twice a day, 250/50.  If I don't take it, I start wheezing.  At the time of the bad attack, my doc was shaking her head and told me my body was all out of whack.  She suspected RA at the time.  Hmmmmmmmm.  Asthma and RA.  Wonder if they go together like Fibro and RA?  We should take a poll!

 

Hope you are doing okay with your asthma.  I have a hard time telling what the discomfort is that is caused by asthma. My shoulders are affected by RA, and my clavicles hurt, etc.  It is just so hard to tell what is what. 

 

Blessings,

V

9/29/11 10:50pm

Wow, your oxygen was 82 !! OMG...

My doc asked if I'd ever had asthma as a child.  I didn't, but I grew up with a lot of second hand smoke - and wasn't athletic either, so there wasn't that kind of stress, I was never very physically inclined.  The kind that could finish the race, but never win!

The funny thing is, for several years now, I would suddenly, out of the blue, be gagging on mucus, and not be sure where it came from, up (sinus) or down (reflux).  It didn't occur to me that it was from my LUNGS.  Back before that, before I first got the reflux diagnosis, I thought it was my LUNGS hurting - I am just not good a figuring out the location of my pain...

I had pneumonia back around 2002, and then the RA started to appear strongly  (as not just more body pain) during the winter of 2003-4.  I'm curious if there's a connection because of info I've read on the www.cpnhelp.org website.  But I had signs of immune problems before that.  I was diagnosed with lichen sclerosus back around 1995.  and the reflux a few years later... all downhill from there!  (Always was the wimpy one in my family! Physically I could never keep up, I was the one who got the music lessons while my sisters got dance lessons, or played baseball!  Hmmm I did mow the lawn, however!    :-) Thanks for writing, it's nice to know I'm not alone!EmbarassedSmile

V, Health Guide
9/29/11 11:25pm

You are definitely not alone, Ellen.  I wonder how many of us there actually are out there with RA/Asthma/GERD. I honestly do feel there is a connection.

 

BTW, I have to tell you about how much better I am feeling.  I started Humira a month ago.  I am so thankful for this med.  Hope you are doing well, also!

 

V

9/30/11 8:41am

Thank you, I am doing well. I take Enbrel on a flexible schedule, and supplement with Celebrex, and an occasional Percocet on a REALLY BAD DAY.  

    I'm especially excited that, STARTING TODAY, I am counting down until retirement, 2 years away on September 30, 2013!   *(of course, I can always change my mind, but it's sure good to know it's not too far!

 

9/29/11 11:40pm

Hi there,

 

I have had asthma since childhood with a severe season for about five years in my thirties. Doc did special lung tests as something seemed different about my asthma, but nothing showed

 

I also have gerd and sinus. I also have trouble at first telling what pain is coming from where

 

What a club to join, I think we could call ra and it's complications the mystery box

V, Health Guide
9/30/11 8:36am

Aha!  Another RAer with Asthma and GERD.  What shall we call our club, ladies?

 

 

V

9/30/11 8:47am

HOw about RAG for RA-Asthma-GERD?   OR can we add something that begins with an E and call is the RAGE syndrom?  How about E for "we try EXTRA hard because of all we are dealing with!" (Actually, the E is already there in GErd....and let's take advantage of the extra A in RA ...

So let's name it the RAAGE syndrome.  Who WOULDN'T rage with all this going on in their body!

 

Thank you, I feel so much better now!

V, Health Guide
10/ 5/11 10:43pm

I love it, Ellen!  When will the T-shirts be ready?  Wink

10/ 5/11 10:44pm

We're waiting for your design!

I vote for RED

E

Lene Andersen, Health Guide
10/ 4/11 1:18pm

if there's one thing I've learned from living with asthma, it's that it doesn't just manifest as having difficulty breathing. It can be that heavy feeling, it can be coughing, losing your voice and it took me a long time to realize that the early signs of bad asthma attack can include irritability, anger and being easily upset/weepy. Now that I know, I take a hit of my puffer and it goes away, but there was a time where I thought I was perhaps losing my mind a little.

10/ 4/11 1:44pm

I don't have a rescue inhaler (yet) but have thought about requesting one.  Oh, yeah, and I'm probably watching my bone density go further into the tank - but if you can't breathe, think, move, what does the bone density matter.

 

I had an attach of SOMETHING over the weekend - was curled up in bed until 3 pm Sunday, after a wonderful day-trip to Syracuse with my husband on Saturday (did I overdo it? I really didn't think so ...)  Thought it was gall bladder, it was the right location etc. although i hadn't eaten anything to provoke it.  Then Monday before I got to the doctor, felt what was left of it move downward, though it must be another phantom kidney stone (been there, done that).  P.A. said, no, you'd be standing in agony over the toilet, clammy with sweat.  WEll, if "most pass with no symptoms" and some people have "agonzing pain" what is to say that some of us aren't something in between?  So, while I was there and she was going through all the past history (yeah, lots of tests, but very little to come up with), I mentioned my concern about the inhaler.  When I first started using it, once a day was enough, even though the directions said to use it twice.  If I forgot, I got VERY T-I-R-E-D.... like a clock winding down.  A month later, when I saw my doctor, he said, if it helps, use it twice a day.  So I did, and that seemed OK ... but NOW if I forget, I feel it within HOURS.  And if I go to bed without remembering, I have waken up crunched in my mid-section, like someone has kicked me in the stomach.  Well, the PA said, "That doesn't make any sense.  It's a pulmonary anti-inflammatory, not a rescue inhaler.'  to which I said, I Know, but that's what happens...maybe it's 'treating' something else, actually?  Or have I somehow come to depend on it in an unhealthy way?  (i.e., taking steroids can decrease your body's production of it?)  it's not supposed to be systemic, but I've been told that before, for a 'topical prescription/ that ended up having an unexpected side effect.  So - we are just waiting and watching.

Lene Andersen, Health Guide
10/ 4/11 11:54pm

my partner has had several kidney stones and every time, ends up loving the floor. A friend of mine has had two kidney stones that he didn't feel at all. So, like you said, it depends. Trust your instincts on that, nevermind what the medical professionals say.

 

in terms of the other, I have no idea. please keep us posted on what you find out?

 

 

V, Health Guide
10/ 5/11 10:47pm

You absolutely need to have a rescue inhaler in your purse or pocket all the time, Ellen.  I don't use one often....maybe a few times a year.  I get a new one once a year so that I know the medicine is still good.  My doc has no problem with this.  Please ask your doc for a rescue inhaler!  If you don't ask, you will probably be booted out of the club, and you wouldn't want that!  Cool

 

V

V, Health Guide
10/ 5/11 10:49pm

You do have a rescue inhaler, don't you, Lene???  If not, you need to get one.  If you don't get a rescue inhaler, your status as a member of the RAAGE club may be in question, and we cannot have that!

 

V

10/ 5/11 10:52pm

Oh Gosh No! 

Actually, I 'd been thinkiing about asking him ... but it wasn't him I saw, and that particular P.A. is always talking herself out of prescribing anything...I always go with mixed feelings, but sometimes it's necessary to see SOMEBODY.

Lene Andersen, Health Guide
10/ 5/11 10:56pm

erm... RAAGE club? I'm so fried my brain ain't working...

 

And yes. Of course I have one. Rarely need it (knock wood), but when I do, it's there and makes all the difference!

V, Health Guide
10/ 6/11 5:10am

RAAGE is the name of our club.  Ellen came up with the name.  It stands for RA, Asthma & GERD.  Nice, eh? Our club is growing, so you are getting in on the ground floor and are now an official board member.  Go get some rest, Lene! Laughing

 

Vanessa

Lene Andersen, Health Guide
10/ 6/11 11:15pm

do we have a secret handshake?

 

And yes, mom. I'll shut off the computer now. Wink

By Ellen Galo— Last Modified: 10/06/11, First Published: 09/29/11