A poem for November

By Ellen Galo Tuesday, November 06, 2012

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November or The Truth will set you free!

In memory of Ginny Marks who also had RA and passed away because blood clots in her lungs mis-diagnosed as FLU (even though she'd had it before - hereditary)!

And dedicated to my sister Diane, now being diagnosed with RA or PMR…

Here they come again --

Sleet and snow and rain!

Come to take my breath away,

Replaced by colds and flu –

(Or it is now pneumonia?

When will this be through?!)

So help me, God, get through this day

And find how to renew

my energy and strength of will

so all my efforts don’t fall nil !

“Use the pain against the pain!”

Friend Ginny used to say –

To hell with sleet and snow and rain!

I won’t let my RA

Destroy my life’s ambitious course –

No, maybe pain will be my ‘horse’ !

Redoubling motivation now,

I have something to prove –

I’m still a person talent-bound:

As long as I can move (my thoughts),

My brain to think and to decide

I still can move ahead.

And what was that re: lemonade?

“Make lemonade!” they said.

So – don’t evade the truth, embrace

its strength to lead you on –

Instead, take heart, look up, arise

Look depression in the face –

Own it, grab it, stand up tall

And find redeeming grace!

Fuzzy Brains: RA, Pain and Cognitive Issues

Comments (10) | Add comment

V, Health Guide

11/ 6/12 2:15pm

Amen, Ellen. Amen!!!

Ellen Galo

11/ 6/12 2:34pm

Thank you V - I am feeling much better than a few days ago! Even though it's turned cold, the sun is out in force! Yay....

V, Health Guide

11/ 6/12 3:33pm

I am happy to hear you are feeling better, Ellen. Ya know, writing is a good therapy. I think you should continue to write.

Hugs,

Ellen Galo

11/ 6/12 3:34pm

I've been thinking about that too. I remember my daughter doing a poem a day in April (National Poetry Month) - only with my RA brain I was confused thinking it was November .... but it got me started!

See what appears tomorrow ...

Ellen Galo

11/10/12 8:50am

"My Feet are Breaking UP!"

Dear Mr. Rheumy,

I called your phone today-

They told me you were busy,

and going soon away.

Dear Dr. Rheym,

You told me you would care -

But now that I am needing you

It seems you aren't there!

Dear Blasted Rheumy,

I'm just about to croak!

My feet explode to smithereens,

I'm going up in smoke!

Dear Sweetie Rheumy,

I love you very much ...

You have the"key" prescription pad,

You have the "Midas touch."

Dear Dr. Rheumy,

I hope to see you soon -

Your expertise and training,

I hope to be my boon....

(to be continued....)

Lene Andersen, Health Guide

11/ 7/12 12:05pm

Love this! What a wonderful rallying cry.

Ellen Galo

11/ 7/12 12:11pm

Talk is cheap - but gotta start somewhere -

But thank you. Now, if I can only follow my own advice....

As V mentioned - writing is great therapy, and when I atke the time, I always benefit - so I need to do it MORE! (Exercise my brain, if not my body...har har)

Ellen

Lene Andersen, Health Guide

11/ 7/12 8:01pm

sounds good to me - I like reading your stuff.

Ellen Galo

11/ 7/12 8:15pm

November #2

I'm going to the doc today

to see just why my hands won't play play

I love to be 'piano girl' but

all the pain gives me a whirl -

So I withdraw into myself

and just become a quiet elf

perhaps the pain will sneak away

and then I'll have a better day -

Sometimes it works, and sometimes not -

it grows and spreads and foils my plot

till I could wish my body dead ....

but no - that's only in my head!

My thoughts drift on to other dreams

which ne'er will happen, so it seems -

So what's the deal? What should I do?

Perhaps I now should talk with you?

My friend, who knows just what I mean:

Together we'll repair the dream -

It isn't dead, it's just evolved!

Life goes on - we're 'not in charge' -

We're challenged now, our fate writ large...

It matters most that we don't quit -

Take up the charge and challenge IT!

It's not our fault, a shame or curse -

To think so only makes it worse.

So -we've been dealt a heavy blow

but tarry not, we'll do a show

of how to overcome the pain

and doing so, will be our gain.

Hurrah!

Ellen Galo

11/15/12 10:33am

Just an update – finally hit the wall today – I didn’t call the dr’s office yesterday because I was tied up for the day and if they asked me to come right down (not a chance, but…), I wouldn’t have been able to, and then would have been up the creek! And that still could happen because final exams etc are coming up and normally I would not take time away from work. But I may have to, if it happens that way.

SO - I called this morning and said, it’s been over a week again, and I have not gotten a call back. And I do not want a call back to simply verify what my message is, I want to know that something is going to happen. I do have an appointment in January (7^th) but the dr has always said, if I need to come in sooner, call. So now, I’ve been calling for several weeks and nothing is happening. If this doesn’t change, I’m going to have to consider switching to another rheumatologist – even if I couldn’t get it sooner. This is not right.

Then I called one of the 2 other rheumatologists that have offices within 2 hours of where I live. (and they are actually not fully based there, they visit around, so appointments are still hard to get). They were booking for February and would require a referral. So – next I made an appointment with my regular doctor to let him know what’s going on and to see if he thinks this is ridiculous too. I will also ask if he could possibly (maybe by consulting with my rheumy on the phone) could make the prescription for Orencia himself – because I know they can do the infusions in his office. He has TOLD me that!.

So – we will see what happens.

Oy@*#_!

Ellen

A poem for November

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