Lately, I’ve been engaging in a lot of spontaneous activities. Impromptu lunches, going to the casino, meeting up for drinks, staying up late, and other activities.
After all, I am a twenty-something, and I do occasionally like to feel like I’m living it up, just as my healthy peers do. But I have to keep myself in check. I’m not like my healthy counterparts. More than a devil on one shoulder and an angel on the other, I have the specter of lupus and RA overshadowing every move I make.
And it’s funny. Before I got sick, I was not spontaneous at all. But now that I really can’t afford to be, I want to be able to do what I want, when I want. It’s funny how illness has a way of doing that to a person. Tell me I can’t do something because of illness, and I’ll die trying to prove you wrong.
While I’ve fared well so far, my medication schedule has been less consistent than I would like it to be. This has caused me to skirt the boundary of my threshold point for meds. I know that I can go until a certain time without taking my meds before I start feeling bad.
And there’s a fine line between being spontaneous and being stupid/irresponsible. I’ve been skirting that boundary, too.
In a perfect world, I wouldn’t feel the need to compare myself and have shared experiences with people my age. But I have to admit, I find myself feeling jealous of people who can go until they drop, who can do everything they want to do without having to worry about anything other than enjoying themselves. And in the back of my mind, I’m always wondering which activity is going to be the thing that sets off a chain reaction in my body, causing a flare.
On my blog, I’ve posted a vlog that looks at what I’ll be taking with me on my trips, basically to try and keep myself at baseline health-wise. It’s a lot of stuff, and certainly looks different than the kind of accoutrements my friends will be taking with them when they travel this summer.
I have a busy summer travel schedule ahead, which promises to keep me on my toes, as far as my illnesses are concerned. It’s a crazy few weeks that would even be tough on a healthy person; so we’ll see how it goes.
I hope to share more with you about my travel adventures when I return in mid-July.
For now, I leave you with a question:
How do you balance being spontaneous while simultaneously trying to maintain your health? Can it be done? If so, any tips?
Published On: June 28, 2011