What Do You Do When No One Will Listen?

Leslie Rott Health Guide
  • In a previous post, I talked about how one of my main symptoms that had lingered while I was on Methotrexate and feeling pretty good was headaches.


    These headaches are different from the types of headaches I used to get.  Rather than being my whole head, there is intense pounding on either the side of my head or at the base of my skull. Usually the headaches come with nausea, dizziness, and sensitivity to light and sound.


    But the most disconcerting thing about these headaches is that they get exponentially worse when I move my neck.


    In the last headache post, I talked about how I would be seeing a neurologist, in the hopes of making some headway on the headache front.

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    Well, I finally had an appointment with the neurologist, and he tried to convince me that my headaches are not related to RA.


    He claimed that since headaches are much more common than lupus and RA in the general population, that the headaches are just headaches.


    But the part that confuses me is that while they are migraine-esque, they have the properties of several different types of headaches, which leads me to believe that they are RA-related.

    The neurologist I saw wrote me a prescription for Imitrex, which I have not filled. And don't plan on filling because I think he is wrong.


    At this stage in the game, I don't appreciate the insinuation that a doctor can just write me a prescription and the problem will be solved. That might work for people who don't live with multiple chronic illnesses, but it doesn't work for me.


    I won't be placated by a piece of paper. I need a real solution and real results.


    Guess that means I'll be reading my rheum the riot act at my May appointment, and making him send me for an x-ray/CT scan/MRI of my neck.


    But I'm worried.


    What do you do when no one seems to want to listen to what you are saying?


    I know myself better than anyone. And I am convinced that I am correct that the root of these headaches lies chiefly with RA.


    For many of us, we have more "complaints" than the average person, but these shouldn't be taken any less seriously. In fact, I think just the opposite is true, especially when I am waving a flag, saying "look at me," "look at me," "I know what the problem is."


    I try to be the best advocate for myself that I can be. But it is hard when doctors make you feel like you are absolutely wrong and they are absolutely right.


    The doctor-patient relationship should be a partnership, where both sides are equally involved, and where thoughts, feelings, and opinions are equally given consideration.

Published On: April 23, 2012