Even though I have RA, my journey has been complicated by the fact that I have lupus, as well.
Being part of the RA community here on HealthCentral, while I have tried to talk a significant amount about RA, I have also talked a lot about lupus.
And I want to share with you some information about one of the movers and shakers in the lupus online community:
A little bit about Sara:
Sara was diagnosed with lupus in 2001, at the age of 26. Her illness began with fluid on the lungs and joint pain. She then developed kidney involvement, anemia, rashes, and hair loss.
Sara was lucky in that her lupus was diagnosed rather quickly (a matter of several weeks), because as many of us with lupus know and have experienced, the road to diagnosis can be extremely long and painful.
According to the Lupus Foundation of America, the average time between the onset of symptoms and diagnosis is 4.4 years.
In 2004, she left the television production world in order to better manage her health. And she has succeeded in this regard. She is married, and has two daughters.
Sara is the author of the blog Despite Lupus. In 2009, Sara published the book “Despite Lupus,” which is a must for anyone who suffers from, or knows someone who suffers from, the disease. In it, Sara outlines how she was able to manage her illness and her life, and provides hope to readers that things will get better for them, as well.
More recently, Sara has taken being a “sick chick” to a whole new level, creating an innovative and pretty line of accessories to hold medication.
The Pillfold is a weekly pill organizer, and the Pillpouch is a bag to hold prescription bottles. Both are fabric and come in four different patterns.
The Pillfold has two compartments for each day, and an extra compartment. The Pillpouch has elastic bands to hold up to six prescription bottles.
These are so cute and stylish. They certainly beat the clunky, plastic cases that you can buy at the drug store.
And as was Sara’s intent, these accessories totally disguise the fact that you’re toting medication around.
Of the bags, she says: “Fun, fashionable bags designed to carry medication. Bringing a dose of style™ to your daily routine, at home or on the road.”
And part of the proceeds from the bags will be donated to a lupus organization.
Clearly, Sara is living life with lupus to the fullest, and contributing to the chronic illness community in positive ways. She has used her own experiences to create a product that is useful for those who deal with any medical issues that require medication.
She is a role model, not just for those of us with lupus, but for other chronically ill people, as well, that living life with chronic illness to the fullest is possible.